[brandonc]

A couple of days ago my double vision came back with a vengence and hasn's gone away since....can anone tell me why and how i can make this stuff go away??

[Stellatum]

Hi, and welcome! I don't have any good advice, but there are some really knowledgeable and experienced people here. What kind of myasthenia do you have? (ocular...myasthenia gravis...LEMS...congenital) and how are you being treated?

Abby

[Pat 110]

Hey Brandon,

Unfortunatly that's part of the unpredictability of this disease. Have you used your eyes more than usual over the past couple of days as in more reading or using the computer? Are you weaker or more tired from doing more and not getting enough rest? Have you been out in the heat? First of all, I would suggest you let your neuro know since it's something that's resurfaced. Rest is key and avoid any bright lighting. If you can, try laying down and put a cold wet cloth on your eyes. Do this for a while changing the cloth to keep it cold. This may help temporarily. Someone else here may have more suggestions. Please keep us posted on how you're doing.

Hugs,
Pat

[brandonc]

I have general MG and im taking 2-3 Mestinon Timespans a day 25 mg of prednizone and 1000mg of CellCept a day. Lately Ive been feeling that it has been getting a little worse. Like I have needed 3 timespans instead of two for a lot of days. I dont feel like I've been using my eyes anymore than normal because I'm in college and I'm always on the computer anyways.

[KathyV]

The same thing happened to me last November after being off Prednisone for a month. Neuro started me back on Pred beginning with 5mg and kept increasing it, but no help. Mine was so bad I couldn't drive, put on make up, and had trouble walking about in unfamiliar territory. After 3 weeks still no improvement in DV, and then started to experience general MG symptoms which up to that time I did not have. Long story short, he put me in the hospital, had 4 plasma exchanges, and moved up my thymectomy. About a week after the surgery the DV finally went away and has been gone since then. I'm now off the Pred again after 5 months on it, and am keeping my fingers crossed it doesn't come back again.

For me the only thing that works for DV is Prednisone. Mestinon doesn't help if I already have the DV. I've always been on Mestinon since diagnosis in July 09.

Sorry your DV is back. I know how bad it can get. Hope you and your neuro find a quick solution.

[brandonc]

The most frustrating part is that after I became fed up enough and desperate enough to post about it on here, it take like 5 hrs to clear up for no reason whatsoever, it just comes and goes as it pleases

[kjchipmunk]

I just found out I have myasthenia gravis a couple weeks ago and I've been taking Mestinon (3) tablets per day at 60mg but it doesn't do a thing. It sounds like I may have to go to a steroid? I see the doctor in a few days. I have ocular only, but feel weakness in my hands too.

Is it possible that I will have double vision forever? Will steroids help? I'm ready to take the patch off.