Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
Reply
 
Thread Tools Display Modes
Old 07-13-2010, 01:51 PM #1
Newbie87 Newbie87 is offline
Junior Member
 
Join Date: Jul 2010
Posts: 20
10 yr Member
Newbie87 Newbie87 is offline
Junior Member
 
Join Date: Jul 2010
Posts: 20
10 yr Member
Default question

Ladies- have you notice your mg getting worse with menstration? anything to do to help this? anyway of getting around this?
Newbie87 is offline   Reply With QuoteReply With Quote

advertisement
Old 07-13-2010, 02:09 PM #2
rezmommy rezmommy is offline
Member
 
Join Date: Nov 2008
Location: Ontario, Canada
Posts: 189
15 yr Member
rezmommy rezmommy is offline
Member
 
Join Date: Nov 2008
Location: Ontario, Canada
Posts: 189
15 yr Member
Default

I noticed this before I was on meds. Now that I am on meds it is not as noticeable. I am on Mestinon and Imuran. Take care ~ Melanie
rezmommy is offline   Reply With QuoteReply With Quote
Old 07-13-2010, 03:29 PM #3
Newbie87 Newbie87 is offline
Junior Member
 
Join Date: Jul 2010
Posts: 20
10 yr Member
Newbie87 Newbie87 is offline
Junior Member
 
Join Date: Jul 2010
Posts: 20
10 yr Member
Default

i am on mestinon and prednisone, i am not doing good generally anyways....breathing and things just aren't getting better but now that i have started it seems to be hitting me hard.
Newbie87 is offline   Reply With QuoteReply With Quote
Old 07-14-2010, 09:35 AM #4
teresakoch's Avatar
teresakoch teresakoch is offline
Member
 
Join Date: May 2010
Location: Fort Worth, Texas
Posts: 199
10 yr Member
teresakoch teresakoch is offline
Member
teresakoch's Avatar
 
Join Date: May 2010
Location: Fort Worth, Texas
Posts: 199
10 yr Member
Default

It may be that it has always been like this since you first developed (but didn't know that you had) MG. You just weren't paying as much attention and/or making the connection to the "little" things before you had a name for your illness. From what I have read, it is quite common for this to happen in women who haven't yet gone through menopause - I guess the hormones place an additional stress on our systems....
teresakoch is offline   Reply With QuoteReply With Quote
Old 07-14-2010, 11:33 PM #5
DesertFlower's Avatar
DesertFlower DesertFlower is offline
Member
 
Join Date: Aug 2009
Location: Tucson, AZ
Posts: 466
10 yr Member
DesertFlower DesertFlower is offline
Member
DesertFlower's Avatar
 
Join Date: Aug 2009
Location: Tucson, AZ
Posts: 466
10 yr Member
Smile

Quote:
Originally Posted by Newbie87 View Post
Ladies- have you notice your mg getting worse with menstration? anything to do to help this? anyway of getting around this?
Yes, it does make MG symptoms worse.

I try to rest more during this time, drink plenty water and eat good food - these things help. It has taken me over of year of having MG to realize that this is the time when I have to take care of myself or I crash hard and end up not able to do anything but rest.
__________________

.
DesertFlower is offline   Reply With QuoteReply With Quote
Old 07-16-2010, 07:38 AM #6
dog lover's Avatar
dog lover dog lover is offline
Member
 
Join Date: Aug 2009
Location: mo
Posts: 267
10 yr Member
dog lover dog lover is offline
Member
dog lover's Avatar
 
Join Date: Aug 2009
Location: mo
Posts: 267
10 yr Member
Default question

I too have noticed I feel much worse when I am having my period. I am like Desert and rest alot more, drink alot of water and try to avoid salt and eat more fruits and vegetables.
Kendra
dog lover is offline   Reply With QuoteReply With Quote
Old 07-23-2010, 10:41 AM #7
wondergirl wondergirl is offline
Junior Member
 
Join Date: Jul 2010
Posts: 41
10 yr Member
wondergirl wondergirl is offline
Junior Member
 
Join Date: Jul 2010
Posts: 41
10 yr Member
Default

Good topic. Yes. Mostly on the first day or two. I get in a tired or extra tired state where even Mestinon doesn't seem to help so much. Though I am not actually diagnosed with MG, I think I have it.
wondergirl is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Question about 6 question cdr form Bobby17 Social Security Disability 18 07-14-2013 11:36 AM
Question Pepe Myasthenia Gravis 8 04-24-2009 10:22 AM
MAC Question Bobbi Computers and Technology 6 08-08-2008 03:57 PM
Med question AJ49 Multiple Sclerosis 2 01-30-2008 07:08 PM


All times are GMT -5. The time now is 02:28 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.