[mskitty]

Hi everyone, i had tears in my eyes as i read all your symptoms. Thank you for being so detailed. It's so important for us to share. I feel like my symptoms will never go away. I have been doing 1000 cc's every 4-6 days for about 2 months. I have celiac disease, pernicious anemia, and atrophic gastritis.

I was taking Prevacid for 10 years. No doctor told me to ever keep an eye out on my stomach. The Prevacid only aided in my atrophic gastritis.

My symptoms: dizziness, heart palpitations, numbness, back of the head is numbs, feet numbmess and legs, vision is blurry and i am unstable when i walk.
My symptoms have gotten better. I have had some better days and have been able to eat a little bit more with an appetite. But i still lost 12 lbs. I have stabalized.

I was prescribed Carafate too. I am better than what I was, but anything was better than that. I too went to the ER and under went all the tests. Thank God that Dr. Fayad, was wonderful and immediately got me on b12 injections. But i do see the resistance with B12 testing amongst doctors. I also have a homeopathic doctor who is big into b12 and folic acid. my levels were at 140. I am not sure where i am at now. but i am just trying to listen to my body and when i think i need the b12 shot i take it.

You are not alone-I too want the depression to go away, I want to be myself like I was, strong, active, and zooming about. But it has been so slow to get better. I sometimes feel like I am taking too much b12, but at this point I am taking it and it seems to make me feel better. I am not anything like I was before this b12 crash, not even close. But I am just a little bit better.

Neuropathy, i don't know if it will all come back. I haven' t seen a neurologist yet. My doctors seem to think it will come back. Every thing i read seems to point to a year-to years of recovery.

I have read that the methyl b12 might be better to absorb. I know I don't absorb the b12-i am on a gluten free diet. i am still drinking milk. i hear that you all take the sublingual b12.. i am not sure if that will work for me if i have pernicious anemia and i don't absorb b12. maybe someone could respond.

REmember you are not alone. If your doctor doesn't want to check your b12 levels get another doctor. there are good doctors out there who are big on b12.. find one. i know you can. take control of your health. there is hope. i will keep reporting on how i feel.
have hope!

[mrsD]

Welcome to NeuroTalk.

A level of 140 is very low.
It will take some time to get you back up to snuff.

Here is a B12 thread. Studies have shown that oral works.
The medical link on that thread discusses it. When you have no intrinsic factor, you can absorb passively when the B12 is in large amounts. This happens in the small intestine, not the stomach.
I'd take 5mg orally daily on an empty stomach and in about 3 months you should be over 400. (Ideally over 1000)

http://neurotalk.psychcentral.com/thread85103.html

The B12 from an injection only lasts 3 days in the blood stream. There is an active transport system in the spinal cord to deliver B12 to the brain and cord. It is dependent on high amounts in the blood and this system will not work as well when the blood levels fall. Some doctors will give injections daily, until blood levels increase. But not all doctors understand this. That is why oral every day, is more natural.

Depending on how long you were low, will determine how long it will take to recover. If you were low for YEARS? It will take longer than if you are only recently low. The neurological symptoms typically take longer to resolve.

And yes do the methylcobalamin since that is the active form.
Cyano is not natural, and your body has to do 4 chemical steps to activate it to methyl. Sometimes that fails.

[azoyizes]

Hi, and welcome to NT! This is such a great place with many friendly, caring, and helpful people.

We're so glad you found us!

[mskitty]

Originally Posted by mrsD

Welcome to NeuroTalk.

A level of 140 is very low.
It will take some time to get you back up to snuff.

Here is a B12 thread. Studies have shown that oral works.
The medical link on that thread discusses it. When you have no intrinsic factor, you can absorb passively when the B12 is in large amounts. This happens in the small intestine, not the stomach.
I'd take 5mg orally daily on an empty stomach and in about 3 months you should be over 400. (Ideally over 1000)



The B12 from an injection only lasts 3 days in the blood stream. There is an active transport system in the spinal cord to deliver B12 to the brain and cord. It is dependent on high amounts in the blood and this system will not work as well when the blood levels fall. Some doctors will give injections daily, until blood levels increase. But not all doctors understand this. That is why oral every day, is more natural.

Depending on how long you were low, will determine how long it will take to recover. If you were low for YEARS? It will take longer than if you are only recently low. The neurological symptoms typically take longer to resolve.

And yes do the methylcobalamin since that is the active form.
Cyano is not natural, and your body has to do 4 chemical steps to activate it to methyl. Sometimes that fails.

Wow! thanks so much for your reply. I am just so grateful that you are out there. It makes sense as to why i have to take these shots so freuently. I am going to change to the Methyl this week. I don't know how long i have been low. But it sure gives me assurance to know that the slow process is normal. I am going to look into taking a littl e bi of b12 daily. it makes more sense to me. a little a day.

Just a note, we live in Las Vegas, and i am currently out at the casino with my daughter as they are working the football central, and the stimulus of all the activity is almost too much. i am very dizzy, and its so hard to focus. The wild carpet gets me off balance as does the scurrying about of the people. The smoke, oh, the smoke really bothers me as well. So I am still very sensitive

[MelodyL]

Originally Posted by mskitty

Wow! thanks so much for your reply. I am just so grateful that you are out there. It makes sense as to why i have to take these shots so freuently. I am going to change to the Methyl this week. I don't know how long i have been low. But it sure gives me assurance to know that the slow process is normal. I am going to look into taking a littl e bi of b12 daily. it makes more sense to me. a little a day.

Just a note, we live in Las Vegas, and i am currently out at the casino with my daughter as they are working the football central, and the stimulus of all the activity is almost too much. i am very dizzy, and its so hard to focus. The wild carpet gets me off balance as does the scurrying about of the people. The smoke, oh, the smoke really bothers me as well. So I am still very sensitive

HI.
Hope you are doing okay tonight.

First, GET AWAY FROM THE SMOKE IF YOU CAN. That stuff will kill you.

Now back to Methyl B-12. I have been taking 5000 sublingually for 2 years now. Best thing I have ever done. No neuropathy symptoms at all.

I do wish you well.

Melody

[mskitty]

Well i have changed to Methyl- but even before i did, it seems that my symptoms have been getting better. It's been about 2-3 months of b12 shots almost every 3 days. I still have pain the legs, numbness, but it is beter. I have been eating and sleeping. IT's a miracle. I am still waiting to get sublingual b12. i am not jumping up and down yet. and also now have been getting tired. more frequently. But i am muc better. will post on my days after Methyl .

Originally Posted by mrsD

Welcome to NeuroTalk.

A level of 140 is very low.
It will take some time to get you back up to snuff.

Here is a B12 thread. Studies have shown that oral works.
The medical link on that thread discusses it. When you have no intrinsic factor, you can absorb passively when the B12 is in large amounts. This happens in the small intestine, not the stomach.
I'd take 5mg orally daily on an empty stomach and in about 3 months you should be over 400. (Ideally over 1000)



The B12 from an injection only lasts 3 days in the blood stream. There is an active transport system in the spinal cord to deliver B12 to the brain and cord. It is dependent on high amounts in the blood and this system will not work as well when the blood levels fall. Some doctors will give injections daily, until blood levels increase. But not all doctors understand this. That is why oral every day, is more natural.

Depending on how long you were low, will determine how long it will take to recover. If you were low for YEARS? It will take longer than if you are only recently low. The neurological symptoms typically take longer to resolve.

And yes do the methylcobalamin since that is the active form.
Cyano is not natural, and your body has to do 4 chemical steps to activate it to methyl. Sometimes that fails.

[Raycerguy1]

I am glad I ran across your post. I have been struggling with such bizarre symptoms since August. My heart was racing when I ate, i was not sleeping, started to have anxiety and started losing weight. I ended up getting my Gallbladder out and as a result developed a pelvic abscess after surgery. Well after that I developed a surging feeling in my body, anxiety, tingling in my feet and hands and eventually depression. through a lot of testing it was discovered that my b12 level was 172. nobody did anything about it until i brought it up to my endocrinologist. She has me taking sublingual B12 which I am not sure is working since I take prilosec. I also wonder if my folic acid is low too. i am waiting for my new b12 results to see if anything is improved. It has been the most devastating, difficult thing I have ever endured. without my faith I dont think I could have made it. I have been so miserable I can hardly stand it. it has been torture. I would love to hear how you have progressed since your last post.

Originally Posted by mskitty

Hi everyone, i had tears in my eyes as i read all your symptoms. Thank you for being so detailed. It's so important for us to share. I feel like my symptoms will never go away. I have been doing 1000 cc's every 4-6 days for about 2 months. I have celiac disease, pernicious anemia, and atrophic gastritis.

I was taking Prevacid for 10 years. No doctor told me to ever keep an eye out on my stomach. The Prevacid only aided in my atrophic gastritis.

My symptoms: dizziness, heart palpitations, numbness, back of the head is numbs, feet numbmess and legs, vision is blurry and i am unstable when i walk.
My symptoms have gotten better. I have had some better days and have been able to eat a little bit more with an appetite. But i still lost 12 lbs. I have stabalized.

I was prescribed Carafate too. I am better than what I was, but anything was better than that. I too went to the ER and under went all the tests. Thank God that Dr. Fayad, was wonderful and immediately got me on b12 injections. But i do see the resistance with B12 testing amongst doctors. I also have a homeopathic doctor who is big into b12 and folic acid. my levels were at 140. I am not sure where i am at now. but i am just trying to listen to my body and when i think i need the b12 shot i take it.

You are not alone-I too want the depression to go away, I want to be myself like I was, strong, active, and zooming about. But it has been so slow to get better. I sometimes feel like I am taking too much b12, but at this point I am taking it and it seems to make me feel better. I am not anything like I was before this b12 crash, not even close. But I am just a little bit better.

Neuropathy, i don't know if it will all come back. I haven' t seen a neurologist yet. My doctors seem to think it will come back. Every thing i read seems to point to a year-to years of recovery.

I have read that the methyl b12 might be better to absorb. I know I don't absorb the b12-i am on a gluten free diet. i am still drinking milk. i hear that you all take the sublingual b12.. i am not sure if that will work for me if i have pernicious anemia and i don't absorb b12. maybe someone could respond.

REmember you are not alone. If your doctor doesn't want to check your b12 levels get another doctor. there are good doctors out there who are big on b12.. find one. i know you can. take control of your health. there is hope. i will keep reporting on how i feel.
have hope!

[Darlene]

Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Just let us know if we can be of any help.

There are great number of fellow members here to assist. My thoughts and prayers are with you.

Again welcome, looking forward to seeing you around.

Darlene