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Old 11-28-2010, 12:25 PM #1
Yam1 Yam1 is offline
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Thumbs up Dbs
I have not been around because i have been busy recovering from Bi-lateral DBS surgery. It was a grueling experience. but it gave me my life back. I still need some additional programming and realize that I am in this for life, however long that will be. Our health insurance paid for most of the cost. I had much to be thankful for this thansgiving.
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Old 11-28-2010, 12:46 PM #2
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Quote:
Originally Posted by Yam1 View Post
I have not been around because i have been busy recovering from Bi-lateral DBS surgery. It was a grueling experience. but it gave me my life back. I still need some additional programming and realize that I am in this for life, however long that will be. Our health insurance paid for most of the cost. I had much to be thankful for this thansgiving.
Yam1, I am so happy for you and I hope you continue to do well.

Jean
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Old 11-28-2010, 11:11 PM #3
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Default Thank you
Thanks for the good thoughts, you are sweet.

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Yam1, I am so happy for you and I hope you continue to do well.

Jean
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Old 11-29-2010, 01:45 AM #4
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God bless you!

My DBS was done 06.22.2010 and is nothing short of a miracle!

I still get my "tune ups" on a sixty day cycle, but WHAT A VAST change oin QOL....

Keep us posted!!
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Kimberly M. Fowler

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dx'ed w/Young Onset Parkinson's Disease May 2006 at age 43. Symptomatic since 1997 or earlier. DBS June 22, 2010

dx'ed w/TN on right side 2007. GK x4, last GK 02/2013
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Old 11-29-2010, 05:26 PM #5
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Default Me too
Yam and Fowki,
I agree with both of you. I'm almost 7 yrs post DBS and remain eternally grateful for it.
Jean, you have a kind and positive attitude which I really admire.
Cheers,
Lee
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Old 01-27-2011, 04:25 PM #6
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Default Update
Had my DBS 06.22.2010 and am now COMPLETELY DRUG FREE!!!

Still getting tuned up about every 60 days, but that is a small burden to bear for this incredible freedom!! At the programming sessions, the neuro always takes the settings down to zero at least once and I sit back in amazemennt and wonder how I ever lived liked that....it is perfectly awful what my body does without intervention.

I am SO grateful for my neuro and neurosurgeon....they have truly given me my quality of life back.

If you are considering DBS, please feel free to PM me with any questions, fears, concerns that may be impacting your decision. I'd be happy to share my experiences with you!
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Kimberly M. Fowler

Each player must accept the cards life deals him or her: but once they are in hand, he or she alone must decide how to play the cards in order to win the game.
-- Voltaire

dx'ed w/Young Onset Parkinson's Disease May 2006 at age 43. Symptomatic since 1997 or earlier. DBS June 22, 2010

dx'ed w/TN on right side 2007. GK x4, last GK 02/2013
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Old 01-27-2011, 08:41 PM #7
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I had mine on December 20th and feel so good I still can't believe it.
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Old 01-28-2011, 12:59 PM #8
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Thanks for all your kind thoughts and words. I unfortunately had a small (?) set-back, On Christmas Eve as I was going down to our basement to do laundry and I missed the bottom stair and fell. It was awful, I sprained both of my ankles - my left shoe even came off! I have never sprained or broken anything before and I was afraid I had broken them, it hurt terribly. The Orthopedist called it a stage 2 sprain - a four to six week recovery. Fortunately my husband was home - he carried me up the stairs, otherwise I would have been stuck until someone came home. It was that bad. I am so careful going up/down stairs now, (we have a three story house) and I carry my cell phone in a pocket always now. My ankles are now feeling much better. But I am wary of hurting them again.
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Old 01-29-2011, 01:10 PM #9
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Ooo
Quote:
Originally Posted by Yam1 View Post
Thanks for all your kind thoughts and words. I unfortunately had a small (?) set-back, On Christmas Eve as I was going down to our basement to do laundry and I missed the bottom stair and fell. It was awful, I sprained both of my ankles - my left shoe even came off! I have never sprained or broken anything before and I was afraid I had broken them, it hurt terribly. The Orthopedist called it a stage 2 sprain - a four to six week recovery. Fortunately my husband was home - he carried me up the stairs, otherwise I would have been stuck until someone came home. It was that bad. I am so careful going up/down stairs now, (we have a three story house) and I carry my cell phone in a pocket always now. My ankles are now feeling much better. But I am wary of hurting them again.
Oh yam, how awful! I am glad your ankles are better now. Good idea to carry the cell phone. Be well!

Jean
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Old 01-31-2011, 11:05 AM #10
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Default Post DBS
HI I am in the DBS club now as well. most of my tremor is gone. I have had two adjustments thus far. I am definitely not perfect but i am better. I do have some concerns that this might be the best i can be, likely because i went through alot to get it & want MORE. Truthfully though, if it turned out that the condition i am in now is the best i will be, well I will still be so glad I did it. not shaking is GREAT. I wish all of you the best, dbs or not. it is definitely not for everyone. Take care! FG
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