[lou_lou]

i moved back to midwest, i have refills left from my doc by the ocean, for which i am thankful, need to find a new doctor in missouri, my old neuro had a cruel women badgering me for moneey, i am a medicaid patient, so can not find a good doctor in my lil town only 3 neuro's!
went to ku, but anhaving bad dystonia - causing horrible pain, to the pointof screaming?
cant get a family doctor,
had a doc - yell at me to warn me to gett offf clonazepam now! ??????????????
have been on it foor many years, aand havve never abused it, my health is deteriating rapidly, dystoinia -freezing my sciattic nerve,was given neurotin at ku,
nee d to see a movement disorder specialist. asap
need help...extreme pain

[Jomar]

If sciatic nerve pain, would a chiropractor or some sort of bodywork or therapy possibly help?
I know some love them and some hate them..but if they can be of help...

Possibly can help with treatments for muscle pain/spasms if they are a part of the cause.

Have you had Xray or MRI recently - to be sure lumbar spine or other bony structures aren't a reason for this new increased pain?

[lou_lou]

the pain from sciatic nerve -has messed me up - terribly...
I could go to a chiro -if medicaid was accepted...
but the town is too little, and no one is a PD specialist, when I went to
KU, the neuro oncall at ER, was very kind gave me gabapentine/ neurontin

Many sorry to say PD ignorant doctors, in my little town...

Was treated with cruelty, by a DO- female doctor, who the hospital at heartland, in st. joe, mo. is located- (referred me to her)

she actually yelled at me!? and said no one can take clonazepame for more than 2 weeks - without having a heart attack...
she said I must get off the drug immediately, I am in a wheel chair alot these daze, because of the sciatic nerve -ad, dystonia, ad old PD patient - I am 48 now -a once young onset PD, ---- very much thanking you for helping
we need a real advocate!
a get on the phone kind?
1-800 -helpaparkie
no joke...
my heart races when I take sinemet/levadopa carbidopa 50 /200
without food?
I need to live please tell me, how to take all three, meds
klonipin .5 -4 times daily
sinemet cr. 50/200 -5 times daily
gabapentin - just starting must take one in evening and work up?

need prayers please... and a real person/aka angel...
love to you,
,

[stevem53]

Hi Lou..I dont know if Medicare/Medicaid regulations are different from state to state, but here in R.I. my Medicare covers Chiropractic, and I pay a co-pay of $7.03

As far as the clonazepam, I dont know how many mgs you are on, but you cant just stop taking it, you have to taper off..Dont know if the Dr told you that..Detox from any drug in the Benzo family, is dangerous, and can be fatal

Why she told you to get off the clonazepam is questionable, but I am not a Dr, so who am I to say?..But I do know about the danger of abruptly stopping Benzos cold turkey

Hope you feel better soon

[paddy]

Hope this suggestion does not seem trivial, bearing in mind your problems but with regard to the sciatica, if it is worse at night have you tried putting a thick pillow or cushion between your legs when you are on your side. It alligns the spine in some way. It worked for me although the irritation of the nerve took a weeek of two or three to die away completely. I have suggested it to two other people and they both found it helpful - one was on another PD forum who hadn't slept for weeks - as I hadn't until I remembered seeing this idea somewhere

[lou_lou]

Thank you both so much -
I have been an artist most of my life but now I must seek out another creative talent though it feels so futile to be in pain most of the time
love -
peace to your hearts -

http://www.flickriver.com/photos/sol...r-interesting/

[imark3000]

I am sorry to know you are in pain. You have been an inspiration to forum members for many years.
My wife suffers from complicated back disk problems .. had two surgeries ..had horrible nerves pains.
Invariably, the first line of treatment has been pain medication and drugs for nerves inflammation.
I am surprised that the Doctor did not prescribe pain medication to start with.
Love and regards
Imad

[lou_lou]

dearone,,
i am allergic tooso many drugs..and i havebeen sent to alot of primary care doctors, who know zipp about PD...
peace to you always...

Originally Posted by imark3000

I am sorry to know you are in pain. You have been an inspiration to forum members for many years.
My wife suffers from complicated back disk problems .. had two surgeries ..had horrible nerves pains.
Invariably, the first line of treatment has been pain medication and drugs for nerves inflammation.
I am surprised that the Doctor did not prescribe pain medication to start with.
Love and regards
Imad