Parkinson's Disease Tulip


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Old 03-08-2011, 09:41 PM #1
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Shocked i was told while i was in the hospital - parkinsons disease is only

parkinsons disease
is a mental illness
dyskinesia is fake - dystonia - akinesia - aka freezing - they do this to themselves
they said this to me - as though I were dead...
the dead have ears - mostly broke my heart
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by
.
, on Flickr
pd documentary - part 2 and 3

.


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Resolve to be tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant with the weak and the wrong. Sometime in your life you will have been all of these.
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Old 03-08-2011, 10:50 PM #2
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What kind of nutty place was this?
Some back woods hospital with no internet and ignorant idiots ??

It has to be that, or they were just messing with your mind...
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Old 03-08-2011, 10:56 PM #3
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Default Dear friend

Quote:
Originally Posted by lou_lou View Post
parkinsons disease
is a mental illness
dyskinesia is fake - dystonia - akinesia - aka freezing - they do this to themselves
they said this to me - as though I were dead...
the dead have ears - mostly broke my heart
Dear friend,
Many of us had the pleasure of knowing you through your posts and work
We felt your courageous and generous heart
Inspired by your creative art
we learnt to embrace life and joy of every new day
and the pain which we bore well
washed away the heavy guilt of sins we never committed

So please never feel lonely
even if you are alone
and listen to the silence of the hour
as the sweetest song of them all

Imad
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Old 03-08-2011, 11:36 PM #4
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Lou my dear..They remind me of this song


They just "Dont know what its like"

"If they had to walk a mile in our shoes
Then they really might know what its like to sing the blues"

http://www.youtube.com/watch?v=vCZ1YteCv5M
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Old 03-09-2011, 05:42 AM #5
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Default beautiful

....or Lou, you could just read Imad's beautiful words and Steve's empathetic and compasionate post. They are enough to soothe anyone!

I wish the people at the hospital were right. They can't understand the on and offs and even more don't understand the moods going off and on with it.

i watched Love and Other Drugs a few days ago and ended up liking it. They didn't focus on the physical, but a lot of detail was there. She was ravenous for sex, her apartment was a mess, she frequently stretched, her feet were dirty because her apartment wasn't clean, she couldn't afford her meds so she drank. She smoked pot. She was quite the mess and so uplifted when she finally met other pwp.

Maybe you should send a copy of it to the hospital, but they probably wouldn'r even know what to look for.

hope you're feeling better,

adding one of the major behaviors: pushing people away so you don't get hurt.
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"Time is not neutral for those who have pd or for those who will get it."

Last edited by paula_w; 03-09-2011 at 06:06 AM.
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Old 03-09-2011, 07:19 AM #6
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Shocked

Report this treatment to EVERYONE... the state licensing board, hospital accreditation groups, the newspapers, anyone who will air your experience. Have you consulted a lawyer? Sue them!
No charge unless you win, you know. Check into this before the statute of limitations kicks in.

That is just barbaric!
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Old 03-09-2011, 02:40 PM #7
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Default washing away the guilt

Quote:
Originally Posted by imark3000 View Post

and the pain which we bore well
washed away the heavy guilt of sins we never committed


Imad
p r o f o u n d.... we do carry others transgressions

i've heard of animals taking on the karma of their owners into their own bodies.... but i am confused ,because doesn't pain just create more pain-i'm really relating to the contextual shift theory...what one focuses on increases...especially where pain is concerned...maybe its the transforming of the pain that is our task?

please, post more poetry--its very healing and comforting thanyou
md
thankyou
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Old 03-09-2011, 03:25 PM #8
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Heart dear one -

Quote:
Originally Posted by imark3000 View Post
Dear friend,
Many of us had the pleasure of knowing you through your posts and work
We felt your courageous and generous heart
Inspired by your creative art
we learnt to embrace life and joy of every new day
and the pain which we bore well
washed away the heavy guilt of sins we never committed

So please never feel lonely
even if you are alone
and listen to the silence of the hour
as the sweetest song of them all

Imad
dearest friend,
my ex-boyfriend was having an argument with me/ attemping to hurt me,
I called the police...
it tuned on me as he -is a professional liar, he told them I wanted to kill myself and that I asked him to give me my pills one by one?????????????

they put me on the 3rd floor of heartland hospital located in the midwest of the USA, fairly vague...
the police did not arrest me because they knew I was disabled, so they took me straight to the hospital on a 96 hour hold - which they took my meds away - amnd I seizured... I was holding on to my faith in G d
omg... before that I weighed about 115 now - I dont weigh 100 pounds
I was not sent to court to oopose charges....
nothing
I am too tired to take this to court alone... and i am broke -then it got worse
cant think about it now,
pray for me please
here is a ruling from the state in which it happened







SUICIDE: A Civil Right

--------------------------------------------------------------------------------

http://www.antipsychiatry.org/suicide.htm

The U.S. Supreme Court addressed the question of whether the U.S. Constitution protects the right to die in 1990 in the case of Cruzan v. Missouri, 497 U.S. 261. In the words of Time magazine, in this case the U.S. Supreme Court "declared for the first time that there is indeed a right to die" (July 9, 1990, p. 59). Of the nine justices, all except Justice Scalia acknowledged the right to die is a federal constitutional right. In his concurring opinion, Justice Scalia argued vigorously against the reasoning of the majority and dissenting opinions, both of which acknowledged the right of self-determination is a constitutional right and that it includes the right to die. Justice Scalia opposed the view of the other eight justices, arguing vigorously against what he called the right to commit suicide. But in this respect he stood alone on the Court.
Since the rationale of these cases is that people have a right of self-determination that includes the right to die, they support my assertion that suicide is a civil right even though, at present, the right to die has been upheld only in cases involving physically ill or disabled people who are conscious enough to express their desire to die or who when healthy enough to express an opinion indicated death is what he or she would want in the circumstances. In fact, this justification is probably in many cases a mere excuse or rationalization to cover up the real reason. If the sole reason for permitting death was the desire of the ill or disabled person, involuntary psychiatric commitment of suicidal people would not take place. A bona-fide but unacknowledged reason ill or disabled people are allowed to deliberately end their lives is they have become a burden to other people. In other words, just as able-bodied suicidal people are incarcerated for their own supposed benefit (to prevent them from committing suicide) when the real reason is selfish concerns of others, people with severe, permanent disability or incurable disease are allowed to die for their own supposed benefit when a real but unacknowledged purpose is to relieve others ("society") of the burden of caring for them. However, the reasoning of judicial opinions upholding the right to die emphasize personal autonomy and self-determination as the basis for the decision and therefore support my opinion that each person is the sole owner of himself or herself, of his or her own body, and of his or her own life. They support my opinion that the right to commit suicide is a civil right.
If you are a legislator who supports the right of self-ownership you should introduce legislation to delete references to "dangerousness to oneself" in your state's psychiatric commitment laws. If you are a judge deciding questions of constitutional law, you should strike down as unconstitutional laws that imprison ("hospitalize") people only for supposed dangerousness or harm to oneself. Whoever you are, you should respect the autonomy of all of your fellow men and women whose conduct does not unlawfully harm others.
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with much love,
lou_lou


.


.
by
.
, on Flickr
pd documentary - part 2 and 3

.


.


Resolve to be tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant with the weak and the wrong. Sometime in your life you will have been all of these.
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Old 03-09-2011, 10:39 PM #9
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Default lou_lou, Your most loved saying is:

" Peace upon you"
and now I say it to you: may God give you peace.
Imad
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Old 03-09-2011, 11:08 PM #10
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Default thank you md

Quote:
Originally Posted by moondaughter View Post
p r o f o u n d.... we do carry others transgressions

i've heard of animals taking on the karma of their owners into their own bodies.... but i am confused ,because doesn't pain just create more pain-i'm really relating to the contextual shift theory...what one focuses on increases...especially where pain is concerned...maybe its the transforming of the pain that is our task?

please, post more poetry--its very healing and comforting thanyou
md
thankyou
Thank you so much for relating to my post. But No way it was meant to be poetry. Just thoughts that may help one to remain sane in an insane world.
Imad
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