Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 12-18-2011, 07:27 PM #1
Ali B Ali B is offline
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Join Date: Oct 2010
Location: Hove, UK
Posts: 20
10 yr Member
Ali B Ali B is offline
Junior Member
 
Join Date: Oct 2010
Location: Hove, UK
Posts: 20
10 yr Member
Default A word to others who are as stubborn as me

Hello all

I've been reading recent threads and re-reading some of my old ones on here. I came in to be positive for once...

I am now 15 months into my PCS. I see a TBI support specialist nurse and a neuro physiotherapist regularly.

Finally I have days and days without noticing a headache, and other symptoms (all the classics) are lessening. I have not had a 'drop attack' (what I earlier described as a 'collapse' and posted for advice on here for) as it's finally been labelled, for weeks and only then one very mild one in the last few months.

A week resting in the countryside end of Oct this year got me over my latest hurdle of, what felt like relentless anxiety and pain in my head, and I even started working (very, very part time). That proved a little too much so I've taken a deep breath and turned down the work offered to me after Christmas. But I'm keeping up some more flexible volunteer work.

I got some perscription glasses with low level tint to help with glare when I drive and watch TV. The eye test was excrutiating (as I'm very light-phobic since the accident) and left me in tears and in bed for a couple of days, but it was worth it.

I continue to find yoga unbelievably helpful and do some every day.

My youngest child started school, so at last there is some breaks in the round the clock parenting (though I do miss them!).

I still don't feel recovered, but I'm finally seeing an improvement which, ironically is giving me the strength to make more changes to help speed up my recovery.

I found the wonderful advice on here confronting as I was always making it impossible for myself to rest. I became guilt-ridden and felt entirely useless.

Now I'm getting my confidence back and starting to see a life ahead which allows for my PCS but is not ruled by it.

This is not my exit from this forum, simply a lighter post from me, for once.

Happy holidays to all and thanks again for being on here and helping
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Old 12-20-2011, 05:44 PM #2
AllAmericanAmy AllAmericanAmy is offline
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Join Date: Jul 2011
Location: Southwest Michigan
Posts: 57
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AllAmericanAmy AllAmericanAmy is offline
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Join Date: Jul 2011
Location: Southwest Michigan
Posts: 57
10 yr Member
Default

WOOOOHOOOO

Celebrating with you. I know it's not as fast as you'd like.... but so happy you ARE improving and feeling better and coping and .....

Blessings to you !
Amy
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