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Old 04-07-2007, 04:42 PM #1
mistofviolets mistofviolets is offline
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mistofviolets mistofviolets is offline
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Join Date: Aug 2006
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Default Compounded Meds Bill

(copying from the other forum)I'm reposting this (with permission) from Delphi Avoiding Corn. I don't know how many of you use compounded medications, but with a corn allergy...I compound tylenol (And wow, that first compounded tylenol was amazing. Who knew you could eliminate a headache and fever without abdominal cramps?) Anyways...there's legislation being drafted that would limit access to compounded meds. Here's the Delphi Post along with link to easily contact your congress people if you're interested.


Quote:
PLease go to this website to write to your senator to stop this legislation from getting voted on. The big pharmaceutical companies are trying to stop pharmacists from getting access to the pure form of medications for them to compound for people like us.

http://ga4.org/campaign/compounding

If you go to the link above, they have a link so you don't even have
to find your own politicians' email addys... they'll send it
automatically. They'll send a copy to Asshats Kennedy, et al as
well. Just fill in the letter... Tell your story. Allergic to corn, there's not a blessed thing over
the counter or behind it that I can have. Were it not for
compounding pharmacists, I'd have no chance at all if I need meds.

People will DIE in the name of pharma company profits. Below is the
article, but the link to the letter doesn't work for whatever
reason. Go to the link above, I'm begging you.

AAHF/HFF rarely asks you to take action on a bill BEFORE it is even
introduced, but occasionally we come across a piece of legislation
that we consider so horrendous that we must act before it is even
introduced. Unfortunately, Senators Kennedy (D/MA) Burr (R/NC) and
Roberts (R/KS), among others are considering legislation that would
severely restrict and possibly deny your access to critical
medications. Act today to protect patient access to compounded
medicines. Send your letters today to your Senators with a copy
going to Senators Kennedy, Burr, and Roberts.

About the Bill

Just as everybody has a unique fingerprint, so is our response to
various pharmaceuticals and other healing modalities. No reasonable
person can expect a mass produced pharmaceutical to address all the
subtle nuances of varying human physiology – but that is not
stopping Big Pharma, the FDA, and Congress from trying to take away
your right to individualized medicine.

If this legislation passes, federal regulators, not your doctor,
will decide what medicines you can take. Do you really want to
leave your customized medicine needs in the hands of bureaucrats in
the government? We cannot stand idly by while our pharmacists and
doctors are forced to become mere dispensers of a few heavily-
advertised, one-size-fits-all pharmaceutical products.

Among other things, the so-called Safe Drug Compounding Act of 2007
would give the Food and Drug Administration the power to:

Broadly eliminate the availability of many critical, commonly
compounded medications that many patients rely on, such as
bioidentical hormones for women, hospice care treatments for the
terminally ill and customized medicines for children.
Determine when compounded medicines are needed - a decision that has
always been and should always be made by doctors.
Restrict the compounded medications your doctor can prescribe even
if he or she determines you need them.
According to the Washington , D.C. political magazine Congressional
Quarterly, pharmaceutical manufacturers are in "high lobby mode" in
support of this legislation. From what we understand, hospitals are
staying silent, anticipating that they will be exempt from this
bill. We are working with doctor groups, compounding pharmacist
organizations, consumer groups, and women associations among others,
but it's not enough. We are up against a highly organized, well-
funded front and we need you to stop them.

A Sample of Those Affected

Menopausal women and andropausal men, the Autistic community,
individuals living with HIV/AIDS, hospice patients, infants and
young children with conditions like gastroesophageal reflux disease
(GERD), and people who are extremely allergic or sensitive to
fillers, dyes, and additives in medicines will be left with no
choice.

What can you do?

If you or someone you know depends on compounded medications, act
now to stop this dangerous legislation!

1. Write your elected representatives in Congress. Use AAFH's easy-
to-use tool to write your members of Congress. REMEMBER: It's
critical that you personalize your letter. Tell your own story.
Tell them how you rely on compounded medicines and what your life
would be like without them.

2. Tell a friend. Even if your friends and relatives don't rely on
compounded medicines themselves, they still have a loved one - you -
who does. That's their story to tell. Please encourage them to
tell their representatives in Congress.

3. Tell more friends. The best weapon we have in this fight is
you. You are involved in the patient/doctor relationship. Yours is
the story that Congress cannot ignore. The more people we can get
to unite in support of compounded medicines, the better our chances
of winning will be.

4. Show your support with a financial contribution and/or join AAHF
today. In order to do all the things that we will need to do over
the next few months (and particularly the next few weeks), we need
funds. This is an unexpected fight and we need to act fast and we
have to think outside of the box!

5. Keep updated! Listen to our lobbyist, Dr. William Duncan on the
Deborah Ray show on April 4th in the afternoon - find out more
information or listen online at www.healthytalkradio.com.
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Old 04-08-2007, 11:06 AM #2
NancyM NancyM is offline
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NancyM NancyM is offline
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Cool! I sent in mine to both my senators.
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