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Old 09-27-2006, 11:55 AM #1
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Default What is an appropriate B12 level

My B12 level is 485. I take 5mg. sublingual b12 methyl type.
What should your B12 level B
I have Fibromyalgia and RSD (nerve condition) and am in pain constantly.
Thanks
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Old 09-27-2006, 12:26 PM #2
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Question you are borderline in USA...

In Japan, 550 is the cut off for "normal". They have higher standards than USA.

You should strive for 1000 or more since you have significant issues.

It takes time...and be sure to take that B12 on an empty stomach. There
should be nothing in your GI tract to interfere with absorption. Only a small
percentage is absorbed with each dose.

How long have you been using the B12 at 5mg range when you had your test?
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Old 09-27-2006, 05:07 PM #3
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Default

Did you see my post? My level was 595 recently. I thought this was fine. However, I have lots of problems with fatigue. When I started taking the 1000 mcg of B12, there was improvement. I'LL TAKE IT! This stuff really intriques me.
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Old 09-28-2006, 01:21 PM #4
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Default b 12 REPLY

i HAVE BEEN TAKING THE b12 for about a month or so daily faithfully. Prior to that was inonsostent taking in for about a year. Can't type muh - arms killimg me. the I was on mt feet too long and now have the FM there. A simple dental procedue (panorama x ray) where I just rested my top teet on a plastic tube for a minte - set off severe pain in about 6 of my top teeth. This condition is horriblw. It goes way beyond FM and RSD.
How long to get to 1,000 B12?No injections
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Old 09-28-2006, 03:17 PM #5
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Red face gosh...

Sounds like you are in terrible pain.

This forum is not a diagnosis forum, and we here cannot "treat" illnesses or
give you expectations beyond that which is on the net.

If you have RSD, that is another different issue. Full body RSD is not
common, and you should talk to the patients on that forum here.

Raising B12 levels is important because spinal cord degeneration leads
to severe impairment and even death.

We cannot separate out your various symptoms on an internet board.
All you can do is take what you know you are low in, and wait/hope that
improvements follow. Rose herself has waited years, but has had steady
improvements with her journey from very low B12 levels that were ignored
by doctors. (until a one day one doctor noticed it).

I am sorry that there is no quick solution for you, in this area.
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Old 09-28-2006, 06:26 PM #6
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Default Improvements

Important to note that although I have improved consistently through the last several years, it often did not feel that way. It can seem that improvement has stopped, sometimes for many months at a time, and then something changes.

It is not at all like getting over the flu or healing a regular wound.

Very weird process when damage is severe.

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I will be adding much more to my B12 website, but it can help you with the basics already. Check it out.

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Old 09-28-2006, 08:06 PM #7
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Default what do you mean by...

"Raising B12 levels is important because spinal cord degeneration leads
to severe impairment and even death"

If you're dx with subacute combined systems disease aka combined degeneration and you're taking the b12 shots is that all you can do?

Will it be cured?
Am I gonna go through these crazy symptoms forever?

I understand if this really what I have, that I have to take b12 shots for the rest of my life.

thanks,
laura
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Old 09-28-2006, 08:19 PM #8
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A poster here (Consider This) has some very good/helpful information on B12.
She recommended that I read this (hopefully link will work). Interesting stuff:
http://www.health-boundaries-bite.co...B12-Level.html
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Old 09-29-2006, 09:57 AM #9
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Default trying supplements because nothing else works

I have both conditions: RSD and Fibromyalgia. I am on those forums constantly and have tried everything suggested. I am also on the chronic pain forum . I see 2 doctors who specialize in alternative therapy. I even have gone under a magnet for weeks at a time. I am desperate to get out of this pain. It is now widespread due to trauma each time in various locations(neck and arms from computer, etc.) feet,legs, knees, etc.-overdid it one day and now am suffering permanently. Now even in my teeth rom dental procdure. Terrible wrist and hand pain from an IV which triggered off the rsd there. Also epidural triggred off RSD and FM in my lower back. Constant lb pain as well as everywhere else. I once was very active and now am like a vegetable. Gained 70 pounds from meds that never worked.
I was just looking for any additional advice by going to this forum. Thanks to all for your help. I'll take any additional suggestions
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Old 09-29-2006, 02:56 PM #10
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Because of many variables, a blood serum B12 result doesn't tell the story. What for one person is a severely disabling and nearly deadly 300 will be contrast to another's completely healthy and vigorous 200.

For great information, provided by someone who understands the B12 issue, go to Cara's site: http://jccglutenfree.googlepages.com/

Mine is under construction, but I will be happy to answer questions here.

rose
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I will be adding much more to my B12 website, but it can help you with the basics already. Check it out.

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