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09-15-2007, 07:30 AM | #1 | ||
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i was diagnosed 2 years ago with idiopathic hypertrophic cranial pachymeningits and would like to communicate with someone who has any experiemnce with this disorder.
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09-15-2007, 11:53 AM | #2 | |||
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Hello,
I had to Google that one, had never heard of it before. this is what came up on the search- http://www.google.com/search?q=pachy...ient=firefox-a http://www.google.com/search?hl=en&c...ngitis&spell=1 Idiopathic hypertrophic cranial pachymeningitis is a rare inflammatory disease of unknown origin that affects the meninges. The diagnosis is made by exclusion of other known causes of pachymeningitis or thickening of the dura mater, such as rheumatoid arthritis, sarcoidosis, syphilis, and tuberculosis. A review of the literature on idiopathic hypertrophic cranial pachymeningitis reveals clinical features similar to those in our case (1–6). The peak age for occurrence is in the sixth decade, and headaches and progressive cranial nerve palsies are the most common clinical features. http://www.ajnr.org/cgi/reprint/19/3/450.pdf
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09-16-2007, 12:05 AM | #3 | |||
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Dotty,
Hello and welcome to NeuroTalk. Nice to see you have come to be with us. You will find a great number of caring, supporting members here willing to help each other as they can. Again welcome, looking forward to seeing you around. Darlene
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09-17-2007, 06:11 PM | #4 | |||
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Hi Dotty and Welcome... I hope you can find some help and comfort from this board/forum. NT is a great place for info, advice and communication. Welcome again!
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09-19-2012, 07:56 AM | #5 | ||
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I was diagnosed this summer. On Decadron. What drugs are you on? Side effects from steroids worse than brain biopsy, etc....There isn't alot of info out there and this is so new to me too.Never even to this forum thing. I am a 43 yr old F. Mom of 3. Wife.
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"Thanks for this!" says: | stad5 (11-20-2012) |
09-19-2012, 08:21 AM | #6 | |||
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Welcome to NeuroTalk:
This is a pretty old thread, so the original poster may not reply if they have moved on. You are welcome to start a new thread on our General forum. It will then show up on Google searches, and others may see it. If you choose a title with the diagnosis in it there is a greater chance someone will see it on the net in general. Here is the link to our General forum: http://neurotalk.psychcentral.com/forum2.html
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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"Thanks for this!" says: | audpod13 (10-14-2012) |
09-29-2012, 02:33 PM | #7 | ||
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Quote:
** Best of luck to you and I hope to hear from you soon. Wendy Last edited by Chemar; 09-29-2012 at 02:44 PM. Reason: NT guidelines |
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09-29-2012, 11:42 PM | #8 | |||
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Wendy,
It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place. Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.
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10-10-2012, 10:00 PM | #9 | ||
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Quote:
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"Thanks for this!" says: | stad5 (11-20-2012) |
10-13-2012, 12:13 PM | #10 | ||
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Thank you again, Wendy. |
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