[granniefrannie]

Hello all! I'm grannie frannie and I have recently been diagnosed with Tarlov's
disease. It's been an almost three year journey and I'm sure most of you
know what a journey it has been. For the last three years I have been thru
all the paces. The first MRI studies indicated a degenerative disc at L3/4 level. That turned out to be the red herring that kept me and the dr.s going
through every test available. All along I kept saying that place did not hurt and I kept showing them where it did. I didn't give up (of course it should be
said I'm a bit like a dog with his last bone) and kept searching for a doctor
who could tell me what it was and the biggest problem I kept running into is
the doctors would sometimes become angry with me because I questioned
authority. My accupuncturist listened and had mri's done that showed a 5 cm
cyst on my S2 nerve. Even then the first doc I saw at Portland OR's OHSU pooh poohed it and sent me back to my pain dr. A year later I'm back to see another nuerologist who see's the cyst which is now 7 cm. I go back in a couple of months to talk about the future. Any questions I should take back
to them that has been helpful to anyone here? I could sure use your input and thank you all for being here.
months

[Alffe]

Welcome to NeuroTalk grannie frannie! Here is the link to our Tarlov Forum

http://neurotalk.psychcentral.com/forumdisplay.php?f=87

I'm glad you found us!

[DM]

H granniefrannie and welcome.

[dorrie]

Hello, Granniefrannie! Welcome to Neurotalk. I see that you are a visitor. I hope that you like it around here and that you decide to come on board as a member. I am sure that you will enjoy being here, as I do. Neurotalk has many wonderful people that are here to listen and help when they can. Hope to see you around and again,

[Darlene]

Granniefannie,

Hello and welcome to NeuroTalk. Great to see you have come to be with us. You will find a great number of caring, supporting members here willing to help each other as they can.

Again welcome, looking forward to seeing you around.

Darlene

[archgoddess]

I want to thank everyone for being here and welcoming me into the fold!
I lost my password book and couldn't log on. Very helpful, the password
help button. I look forward to being a part of this forum. Hang in everyone!
I'm grateful for the people here who unfortunately share my pain. I hope
the best results for you all.

grannie frannie:

[watsonsh]

HI Granniefrannie,

Welcome. Glad that you found us!

I am sorry to hear about your pain but I sure do admire your persistence and that you question authority.

Hope you come to love NT as many of us have.

[AfterMyNap]

Hi, GrannieFrannie! Welcome to NeuroTalk!

I love that name!