[Stitcher]

Several members of the Parkinson Pipeline Project and other Interested PWPs have been working for several months to prepare the following document. We hope you will take the time to read the content found at both the links below, and provide feedback via this thread or by email directly to the Project. Thanks for you attention to this important matter.


A New Era in Collaboration: The Road to a Parkinson's Clinical Trial Participants' Bill of Rights

"Clinical trials are the stepping-stones to discovering new, more effective treatments for Parkinson’s disease. Research and approval of new treatments cannot be conducted without human volunteers, who agree to take substantial risks in hopes of improving their health and their lives, furthering scientific knowledge, and ultimately finding a cure for Parkinson’s."

Visit Parkinson Pipeline Project website to READ the FULL page content...




Parkinson’s Clinical Trial Participants’ Bill of Rights (DRAFT)

"The purpose of the Parkinson’s Clinical Trial Participants’ Bill of Rights is to:

• "Acknowledge the rights people with Parkinson’s (PWP) have when participating in clinical research trials.
• "Educate everyone with a direct interest in these trials about standards that will improve the overall clinical research process, increase clinical trial participation, and help speed discovery and approval of treatments for Parkinson’s disease."

Visit Parkinson Pipeline Project website to READ the FULL page content...

[jeanb]

I hope all interested PWP will take a look at these documents.

Having these in place will go a long way in helping all PWP who are considering participating in clinical trials.

I have participated in many trials, and believe me these are important issues!

Well done all!

[Jaye]

Take the responsibility.

The single most important factor in the length of time it takes to get a drug from discovery to prescription is lack of patient participation in clinical trials. Clinical trials = trying out new drugs on people after animal experiments have been successful.

Jaye