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Old 09-30-2007, 03:03 PM #1
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Default Hello, I am new to this forum

I am dealing with issues related to what it means to provide care giving to a family member. I am also here to help me in my adjustment to a recent worsening of my own health due to what my doctor refers to as an axonal polyneuropathy that is ,he suspects, immune mediated.
My care giving duties are mostly physical in nature. I have a young adult son who was born with a neurological condition that has rendered him unable to move his body at will. Joseph has what is called spastic quadriplegia. Remarkably he has been able to learn to articulate fairly clearly ,the muscles that control his speech being the most useful in his body.He has no seizures and his favorite pastime is listening to audio books,especially murder mysteries in which the characters are quirky,have romantic encounters ,and in which humor is prominent even as people get killed in all manner of not so fun ways.
My own health concerns developed about five years ago but it is only recently that they have reached a level of significance and severity that allows for a dx. I have had first and second tier testing including a ncs and am hoping confirm or disprove my doctor's tentative dx within the next year and discover if there are effective treatments.It is important I get a handle on the nature of this challenge so I can plan carefully how best to meet my son's needs as well as my own.
I am to here gather and share information and to give and receive emotional support during a period of difficult challenges in my life.I look forward to meeting people here who can relate to the challenges I face.
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Old 09-30-2007, 07:51 PM #2
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Welcome Aboard, Donna!! Joseph sounds like a wonderful young man...he is so lucky to have you! I am sure that you will find that our community is a great place to find support and advice from so many caring people. It is alot of fun here too! Keep posting! The weekend is always a little slower but we have lots of members here that you will soon meet. I can't say enough about Neurotalk.....it is a great place to be and we are so happy that you are here!
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Old 10-01-2007, 12:53 AM #3
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Donna,

Hello and welcome to NeuroTalk. Great to see you have come to be with us. You will find a great number of caring, supporting members here willing to help each other as they can.

Again welcome, looking forward to seeing you around.

Darlene
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Old 10-01-2007, 06:44 PM #4
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Hi Donna and Welcome to NT. So sorry you are having a rough time. Your son sounds like an amazing young man..

Hope you feel better soon. take care and
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