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Old 10-08-2007, 09:19 PM #1
Jocelyn Jocelyn is offline
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Default Hello This Is Mt First Post.

Hi I am new here and I thought I would post my introduction here instead of the official page. I found that one slightly confusing. I am a 66 year old Australian woman and I have had various inflammatory diseases occuring throughout my life.

In an attempt to solve the problem I visited a Functional Health doctor in 2000. She did a heap of bloodwork and one test IgA came back as positive, but she dismissed it as she said that the other one IgG was negative and that the it needed the pair of them to be positive. I did not realise the importance of this until quite recently and did not question her about it's meaning.

Over a course of years I have had a variety of symptoms that suggest CD. These include consistent anemia, that continues to today, graves disease, migraines, vertigo, osteoporosis, small skin lesions and lifelong asthma. My intestinal woes consist of pain, bloating, burping, and constipation. I also have various allergies and I am lactose intolerant. I have noticed that only 20 minutes after ingesting any gluten products I bloat immediately.

Since going on a gluten free diet all intestinal problems have disappeared, that is until I eat something with hidden gluten, then I start bloating and burping again. I also have noticed that panic attacks are more common then.
I follow a strict vegan diet and take added iron and vitB12. I have not had a biopsy and I would prefer not to have this *** it involves a general anesthetic and with asthma that is not advisable.

Anyway I am glad to have found this forum. Two years ago I was diagnosed with Regional Sympathetic Dystrophy, but after 18 months of treatment, this seems to have resolved, thankfully.

Jocelyn
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Old 10-08-2007, 09:36 PM #2
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Hi Jocelyn!!! Welcome to Neurotalk!!
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Old 10-09-2007, 10:21 AM #3
watsonsh watsonsh is offline
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Hi Jocelyn,

Welcome to NT! Great to have you.

Glad to hear your RSD has resolved. And it sounds like you have your CD under control.

There is a great group of people here. Take a spin around.

Look forward to seeing you.
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Old 10-09-2007, 02:55 PM #4
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Hi~

I am somewhat curious about the exact blood work that you had done, and what specific antibodies they looked for, but the bottom line is that many people have completely negative blood work, yet they improve significantly on a gluten free diet.

I'm so glad you decided to take the plunge and give a gluten free diet a chance to speak to you. In the end, it may be the best test of all for some people.

Your list of symptoms over the years certainly does sound like gluten sensitivity may be an underlying problem.

Cara
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Old 10-09-2007, 03:06 PM #5
watsonsh watsonsh is offline
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Hi,

Cara is right. I tested negative for CD and psoitive for IBD. Either way, gluten free has helped me immensely. And the stickey's at the top of the gluten forum are fantastic!

Best of luck
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Old 10-10-2007, 02:19 AM #6
Jocelyn Jocelyn is offline
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Quote:
Originally Posted by shelley View Post
Hi,

Cara is right. I tested negative for CD and psoitive for IBD. Either way, gluten free has helped me immensely. And the stickey's at the top of the gluten forum are fantastic!

Best of luck
Shelley my RSD resolved because it was caught early and that I worked hard in the hydrotheraphy pool for a full year. Unfortunately my daughter has RSD too and she is confined to a wheelchair because of the severity of the disease. She was diagnosed later than I was.

Jocelyn
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Old 10-10-2007, 08:08 PM #7
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I see that I am still termed a visitor. Why is that?

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Old 10-15-2007, 01:31 PM #8
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Quote:
Originally Posted by Jocelyn View Post
I follow a strict vegan diet
Woo hoo! There are so few of us around the gf boards. My family has been eating a vegan diet (except for occasional honey) for nearly 8 years, and we've been gf for 2 1/2 (ish) years. Welcome aboard!
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Old 10-15-2007, 09:57 PM #9
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Woo hoo! There are so few of us around the gf boards. My family has been eating a vegan diet (except for occasional honey) for nearly 8 years, and we've been gf for 2 1/2 (ish) years. Welcome aboard!
Thank you Jamie two. Nice to meet you as well. I am finding a lot of GF foods are vegan.

Jocelyn
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Old 10-21-2007, 04:19 AM #10
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This is utter nonsense, that you also need a positive IgG version of the test. It does not say so anywhere on the entire Internet. She made it up.

I did not have any sedation during endoscopy, and only heard about a few others who got any, the rest were done without here in this country. They do that if you gag too much so it is impossible to perform the procedure. It only takes some minutes anyway.

nora
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