[BobbyB]

http://rolloverals.org/

Saw this on another site.
Great idea KenSr.


Some of you may know my husband as KenSr from other ALS sites. This
is his plan for getting that much needed media attention for ALS.
Let's hear what you think and please spread the word.

We all think about all the media attention given to AIDS and Cancer,
yet we never see anything about our disease, ALS. No national
spokesperson, not many commercials on TV promoting our cause nor any
famous reality shows donating all of their funds to the ALSA or even
the MDA-ALS Division. Sure, you have Curt Schilling and Mike Timlin,
pitchers for the soon to be crowned World Champion Boston Red Sox,
they only do it locally, in MA. People with ALS need to have someone
bring them to the national limelight, and I am the person to do it.

How do I propose to accomplish this? Glad you asked…(insert
appropriate drum roll sounds here)

Announcing the "Rolling Over ALS Tour". What is that? On April 19th,
the final Florida Walk to d'Feet ALS walk, I will leave Orlando, FL
with my father-in-law riding a bike alongside me, and my wife
trailing behind us in the van to go to Washington, DC for the Opening
session (Roll Call) of National ALS Advocacy Days. Something needs to
be done in dramatic fashion for ALS to get on the map. Lou Gehrig
gave his name to this disease over 60 years ago, and yet it is still
considered an "orphan disease", could it be because of the orphans it
leaves behind. If you believe the estimates of people dying from ALS,
since Uncle Lou died from ALS, enough other have died from ALS to
cover the population of Miami, FL. And I think the estimates are way
off…I think the total would cover FL from I-4 south. The people that
truly know me, know I am not the type to sit around and wait for help…
I go get what I need…and WE need some National ALS attention. This
ride will not be about me getting some media attention thrown my way;
it will be about ALS getting some media attention thrown ITS way.
Sure, I'll go on Oprah if she asks, yet I will not let her make it
about me and my challenges…it will be about ALL people with ALS and
their challenges. Maybe then, we can get something done about the
lackadaisical approach that people have about this non-discriminatory
disease.

Rolloverals.org is the website for the trip. As with any website, it
is in its early stages, it is a work in progress. I will set up an
email list for anyone that wants to keep up with the preparations for
the trip and I will send out emails from the road as often as I can,
and when I get to DC, I will post all of the pictures I take along
the way. I have 22 days to travel 940 miles, I am planning on
traveling about 8-10 hours a day, sleeping in hotels along the way…
and doing it with 2 days to spare. I openly invite PALS, or anyone
else that wants to join in honor of a PALS, to join me through their
towns. Hopefully, the whole ALS Advocacy Contingency can join
together to roll into DC. Maybe then WE will HAVE A VOICE…

Living despite ALS,
Ken P

[BobbyB]

Ladies and Germs,



It’s here. The day y’all have been waiting for. Yours truly is taking the trip of a lifetime. Man, it has been a hectic last three weeks, watching Glenda run around like a chicken with her head cut off has really been tiring for meJ. Actually, I’ve been conducting interviews and being filmed for TV news. So far I have interviewed with News 13, Channel 9 (an ABC affiliate), WKMG Local 6 (a CBS affiliate) and the Orlando Sentinel…look for that one tomorrow.



So this is the schedule of events. We will get up at 6am (I thought I was done with getting up that early) tomorrow morning. We will take part in the Walk to Defeat ALS in Orlando’s Blue Jacket Park. Around noon I will head out to Washington DC, expecting to arrive on May 9th or 10th, depending on the weather. I will update a blog daily, you can find it at www.rolloverals.org and selecting the daily journal link. You can post to the link too, so if you have any comments or questions, leave them there and I will get back to you as soon as possible. If anyone wants to join me for part of the ride let me know and we will make arrangements.



OK, this is the sappy part. When being interviewed for one of the TV stations they asked me what I wanted to do when I had ALS. I wanted to run and hide from everyone, which is what I did. I probably ran and hid from some very good friends of mine, and for that I apologize. I won’t make any excuses, if you sent me an email and I didn’t answer, send me another one…I will answer it when I get a minute.



Sorry so short, I got another interview at 9:30 with Fox 35. Keep me and my family, including my buddy that just had his dad pass away, in your prayers.



Love y’all



Living despite ALS,

Ken Patterson Sr

kensr@kensjourney.com

http://kensjourney.com

How can we connect the dots if we don't collect the dots?

[BobbyB]

video
http://www.cfnews13.com/uploadedImag...pshot(421).jpg

Man Kicks Off Wheelchair Ride To Washington For ALS
Saturday, April 19, 2008 1:42:45 PM
Tools: E-mail | Print | Feedback |

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Video
ALS Walk
ORLANDO -- Hundreds of people in Orange County hit the road at Blue Jacket Park as part of a walk to raise awareness for Amyotrophic Lateral Sclerosis, better known as ALS, or Lou Gehrig's Disease.

Ken Patterson, who suffers from ALS, had a much longer journey planned.

The former Army sergeant began his 940-mile journey by powered wheelchair to Washington, D.C., to bring more attention and awareness to his disease.

Patterson planned to travel 50 miles and 10 hours a day, carrying a letter from others with ALS, detailing their struggles.

Patterson's wife, Glenda, said it was a simple reason for Ken's long journey.

"Raise awareness for ALS. Too many people don't know what it is, and there's no cure for it, and we want researchers to find a cure for this disease," Glenda Patterson said.

Patterson's sendoff was part of a ALS Walk that helped raise over $100,000 for ALS research.

http://www.cfnews13.com/News/Local/2...n_for_als.html

[BobbyB]

Hi everybody! Seems like forever since I've been here. (PLM) (Ken and Glendas kids above) Yes that was Cedric and I tagging along with Ken, the wild man! It was quite an emotional send off. Ken was awarded a national award for courage, from the ALS Association as we left. Nothing like a little emotional liability before you leave. Shwew! Add to that we lost two pals from our group last month. I know that fueled Ken's determination.

Our group coordinator, Rhonda Rittenhouse, Cedric and I Followed Ken about 5 miles. We were pulled over by the police for going too slow. LOL! We were forced to ride the sidewalks. In the first hundred yards Ken went off and got stuck... so much for the permission from that town. I hope that doesn't happen again. I don't think Glenda could pick him up. It took two of my brothers. It was really hard to watch them go off alone.

As for the batteries... after the walk, and the beginning of Ken's journey (about five to 7 miles?) he was down to 30%. He has two more chairs. But no extra batteries. Rhonda said it best... Ken, I don't know how religious you are... but these will be some god days for you! I hope some of you can join in and be a part of this journey. Roll on brother!

[BobbyB]

any ken sighting yet, anyone planning on meeting him along the road to the white house ?

Rolling Over ALS Tour http://www.rolloverals.org/
Rolling Over ALS Tour blog http://rolloverals.blogspot.com/

0. Orlando, Florida
1. Orange City, FL
2. St. Augustine Beach, FL
3. Jacksonville, FL
4. Brunswick, GA
5. Hinesville, GA
6. Statesboro, GA
7. Allendale, SC
8. Orangeburg, SC
9. Columbia, SC
10. Pageland, SC
11. Albemarle, NC
12. Greensboro, NC
13. Danville, VA
14. Lynchburg, VA
15. Charlottesville, VA
16. Warrenton, VA
17. Arlington, VA
18. Washington DC

[BobbyB]

Must see videos...
Created by Glenda
This is the story a local news station did about ALS and the Rolling Over ALS Tour... you gotta watch this one...it is really great.

http://www.wftv.com/video/15958318/index.html

Here is another one, not as good but it is still coverage...

http://www.cfnews13.com/MediaPlayer2...SWalk_04192008...

[BobbyB]

ken is in
http://www.mapquest.com/mq/7-50XtP6TtkipB1TCA

[BobbyB]

His latest Blog... http://rolloverals.blogspot.com/


Thursday, April 24, 2008
WANTED - Dead or Alive - day 5
Today we were greeted by two of Georgia's finest...NOT! The first officer was very nice; however the second one was on a power trip and was a real JERK. I was forced to give in to the powers that be and ride in the van. Thankfully it was a very short distance to the hotel.

This wheelchair adventure has made me realize even more how our society is so busy and preoccupied with their fast paced lifestyle that whenever they are inconvenienced (for example by the guy driving down the road in a wheelchair) they get absolutely crazy. We were called all kinds of obscenities and received the "one finger wave" more times than I care to count.

[BobbyB]

Hello everyone,

I have been trying to post a comment here for the past several days, however I have been so exhausted that I keep falling asleep before I finish.

Steve - yes it was Wade who helped with the chair. He was a very nice guy and spoke highly of you as well.

Yes that was a stogie in his hand... very rare to find Ken outside without one.

He is getting an average of 25 miles to a full battery... one of the chairs won't last quite that long... we have a generator in the trailer we use to charge them while driving. It doesn't get a full charge that way, however it is enough to get him to the next hotel.

Ken is doing very good... he is tired but he is hanging in there.

Yes, we have had several issues with the cops...for the most part they have tried to work with us (providing alternate, less traveled routes).

There is so much more I would like to share with you all... but I can barely hold my eyes open. Thank you for all your encouragement.

Look out DC...here we come!

Glenda

[BobbyB]

Floridian/U.S. Army vet to spread awareness about ALS
FROM STAFF REPORTS Gulf Breeze News news@gulfbreezenews.com


An Army Veteran with Amyotrophic Lateral Sclerosis (ALS) will travel to the nation's capitol by wheelchair to help find a cure for Lou Gehrig's Disease.

Wheelchair-bound Ken Patterson, a man living despite having ALS, also commonly referred to as Lou Gehrig's Disease, will embark on a 20- day trek traveling by wheelchair to deliver a message to Congress: Veterans are two times more likely to be diagnosed with the progressive, neurodegenerative muscular disease than those with no history of military service.

On April 19, Patterson will begin the 940-mile journey at Orlando, Florida's Blue Jacket Park.

The journey will commence immediately following The ALS Association Florida Chapter's Annual Walk to Defeat ALS. The walk will raise money for research and patient services for people living with ALS in Florida. Patterson will cover nearly 1,000 miles beginning on April 19 and will conclude at the nation's capital on May 11. May is National ALS Awareness Month.

A U.S. Army veteran who specialized in safety training, Patterson, 39, will attend The Association's National Advocacy Day and Public Policy Conference in Washington, D.C., where he will visit his elected officials and advocate for issues directly affecting ALS patients. Although ALS can strike anyone regardless of age, sex or origin, those who have served in the military are at a greater risk of developing the disease.

The fatal neurodegenerative disease is striking at our nation's heroes the hardest. However, the reasons are not known at this time.

The chapter has proclaimed Patterson and his caregiver, Glenda Patterson, the two people in Florida who best exemplify the spirit of "ALS Across America" during ALS Awareness Month. The national campaign recognizes courageous individuals with ALS and their caregivers who are role models to people with Lou Gehrig's Disease. These special individuals reflect the spirit of the organization as they make a positive difference in their community by expanding awareness of ALS and embodying the spirit of living life to the fullest.

The 20 days of travel will take Patterson through cities and military installations between Orlando and Washington D.C., as he educates others about ALS. Patterson also plans to meet other patients living with ALS along the way and carry their messages to Capitol Hill.

Patterson plans to film the journey and use the footage to inform and educate people about the disease.

"The tour is not a fundraising event: it is strictly intended to raise awareness for people with ALS," Patterson said. "However, we realize that we need financial assistance to make it happen and have collaborated with The ALS Association Florida Chapter to establish a research grant with any monies remaining after the tour."

Throughout ALS Awareness Month, The Association and its nationwide network of 41 chapters will reach out to communities across the country to educate the public about Lou Gehrig's Disease and urge people to join The Association in the fight to make ALS a disease of the past.

The Association's National ALS Advocacy Day and Public Policy Conference, which has grown to be the single largest gathering of the ALS community, and is part of ALS Awareness Month, will be held this year on May 11-13 in Washington, D.C.

The Association is the preeminent leader in the fight against Lou Gehrig's Disease. The mission of the organization is to lead the fight to cure and treat ALS through global, cutting edge research, and to empower people with Lou Gehrig's Disease and their families to live fuller lives by providing them with compassionate care and support.

ALS is a neuromuscular disease with no known treatment or cure. It robs the body of the ability to walk, speak, and eventually breathe.



http://www.gulfbreezenews.com/news/2...ealth/035.html