ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB.


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Old 10-19-2007, 08:58 PM #1
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BobbyB BobbyB is offline
In Remembrance
 
Join Date: Aug 2006
Location: North Carolina
Posts: 4,609
15 yr Member
BobbyB BobbyB is offline
In Remembrance
BobbyB's Avatar
 
Join Date: Aug 2006
Location: North Carolina
Posts: 4,609
15 yr Member
Link New book: Losing My Voice!

You may have heard that I have just published my story: Losing My Voice! Living with motor neurone disease. See http://www.losingmyvoice.com/ and http://neurotalk.psychcentral.com/sh...ad.php?t=28759

My story covers the time from when I was diagnosed with ALS in late 2004 while living and working in Sydney, Australia and the next two and a half years when I travelled extensively for work and holidays while slowly losing my voice and my ability to eat.

My book is unique in describing, from a health professional's perspective (I'm a nurse and clinical research associate), my daily life whilst dealing with the progressively disabling bulbar symptoms of ALS. Other books I know of are written by or about people whose symptoms started in arms or legs. Feedback is that it's "riveting" and a "can't put down" story. Losing My Voice can be purchased on line http://www.losingmyvoice.com/
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