Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-25-2007, 01:46 PM #1
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Default I'm getting my perm SCS on the 20th

HAPPY DANCE,,,,HAPPY DANCE...Ok.. not really, my back still hurts, but if I could that's what I would be doing. . I just got off the phone from my docs office. I am scheduled to get the perm on Nov 20th. 2 days before Thanksgiving. I am so happy. It will be great to be able to get around again. I understand that it will be a painful recovery, and I think I'm ready for that part. If not... no changing my mind. Luckly, my daughter (who is at Rutgers getting her masters) and her roommate are coming down to cook and help out. I have to be at the hospital at 7:00am..that means I have to leave the house about 5:00am. I'm going to have my other daughter, (she is at VCU getting her BS in Biology), come up Mon nite and stay over. That way she can feed the boys and put them out. Kinda scared, but happy at the same time.

Mary
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Old 10-25-2007, 03:58 PM #2
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CONGRATS!!!! Im doing the "dance" with ya's and wishing you luck next month!! jsut think.. by this time next month it will be over and hopefully pain free or less pain!! CONGRATS again!!

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Old 10-25-2007, 04:27 PM #3
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congrats mary...the perm is definetly painful but knowing that everyday you feel a little better and within 6 weeks you will be cruising around like a brand new person. i am so happy for you that it all worked out so well
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Old 10-25-2007, 07:42 PM #4
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Ohh good for you Mary.. I can imaginary happy dance too I love to hear friends are getting helped
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Old 10-26-2007, 02:20 AM #5
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Oh Mary... Now, this is the "BEST NEWS" I have heard all week! I hope your recovery time go's by fast and smooth! Gotta do the Happy dance for ya... ~Love and Mary!! Desi
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Old 10-26-2007, 06:27 AM #6
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Mary,
I am so very happy for you and will keep you in my thoughts at the end of November.

Love Tayla
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Old 10-30-2007, 08:15 AM #7
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Mary
Congratulations in finaly getting the SCS, you so deserve it!
I hope all goes Ok, don't worry too much I am sure that everything will be fine.
Good luck and I will be thinking about you on the 20th Novemeber
Pain free hugs
Alison
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Old 10-30-2007, 09:35 AM #8
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Alli and all my friends

3 WEEKS FROM TODAY, Yeaaaa. This is worse than being a kid waiting for Christmas. Time is going so slowly. Yesterday, I got my winter clothes out of storage and got them all taken care of. Put up summer stuff. (it's not that much, I hate shopping lol). If my back wasn't still sore, I would go out and groom my horses. Maybe later, if I can get their heads out of the round bale.

Ok.. I'll hang in there. It will get here soon.

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Mary
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Old 10-30-2007, 10:08 AM #9
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Hi Mary,

There are a lot of RSD people who have had great results from the SCS and and I devoutly hope and pray it will perform even beyond your hopes...Vic

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Old 10-30-2007, 12:19 PM #10
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Vicc,

I hope it works also. With the trial I had 100% relief. I even put shoes and socks on and went to a Home and Garden Show. I walked about 3 hrs. A couple of times my feet started feeling sore so I just changed programs to allow another one to set in. Ok.. walking for 3 hrs, when I have been in bed or using a wheelchair/walker, wasn't really smart, but I figured the only way to know how it would work is to put it to the test. I've heard the sometimes the perm. isn't as great as the trial. I hope it's not the case with me. My doc even said that in about a year, that he didn't see why i couldn't go back to riding my horses. He said jumping isn't a great idea, but as I gave up jumping the last time I jumped and my horse didn't. lol. I'm getting too old for it anyway. I love classical Dressage. That is the riding that is done in the shows for the White Stallions.

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Mary
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