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10-25-2007, 04:20 PM
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Member
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Hey out there. Sorry that it has taken me a few days to get back in touch with all of you who may have been wondering how my DBS is going. Well, it's great, GREAT, GREAT! I was activated on Tuesday. I went in to the office using my walker and obviously was "off" so as to truly get the effectiveness of the stimulator. I carried the walker out the car!. People in the waiting room were cheering and clapping when I came out of the room and someone who they had just seen barely getting along with a walker was now walking a fairly normal gait. That was an incredible moment when my doctor asked me to get up and take a few steps! Since then, I have been taking meds just to supplement the stimulator if I feel like I am getting stiff,etc. I was taking Stalevo every 3 hrs. I think I took it 2x yesterday and once so far today. I am sleeping better-not rigid and uncomfortable to where I am constantly trying to find that spot in bed. In addition I am not as fatigued during the day. My face has made a drastic change in that the parkinson's "mask" is mostly gone. Heck, I can get up now and actually get to the bathroom in the morning, not having to use a bedside urinal or wait til that first dose kicks in. All I can say is this is a great blessing and I am very thankful to have this experience. It is beyond words.
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10-25-2007, 04:43 PM
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Congratulations on your sucess, Jim! I was one of the people out here waiting to hear how you did with your DBS implant. This is really great news, and I hope you continue to have success with it.
John |
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10-25-2007, 05:14 PM
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Junior Member
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That is a fantastic report Jim.
I had similar results except mine were all squeezed into a week. I had the electrodes implanted on Monday, the stimulators on Thursday am, initial programming Thursday pm, 3.5 hour plane trip home Friday, and back to work on Monday. Prior to surgery I was taking 35 pills a day and after 6 weeks was down to 6 with two meds completely eliminated. Again congratulations on your very successful life changing surgery. Dale |
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10-25-2007, 05:31 PM
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In Remembrance
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Jim,
Your courage [ok so it was desperation ....lol] has been rewarded - I'm very happy for you. Enjoy your renewed life. sincerely, paula
__________________
paula "Time is not neutral for those who have pd or for those who will get it." |
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10-25-2007, 09:53 PM
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Magnate
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__________________
You're alive. Do something. The directive in life, the moral imperative was so uncomplicated. It could be expressed in single words, not complete sentences. It sounded like this: Look. Listen. Choose. Act. ~~Barbara Hall I long to accomplish a great and noble tasks, but it is my chief duty to accomplish humble tasks as though they were great and noble. The world is moved along, not only by the mighty shoves of its heroes, but also by the aggregate of the tiny pushes of each honest worker. ~~Helen Keller |
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10-26-2007, 12:02 AM
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Member
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.this is the story of the majority of DBS'ers. Although most still take meds.
Last edited by chasmo; 10-26-2007 at 07:58 AM. Reason: inappropriate content |
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10-26-2007, 05:37 AM
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Member
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I am so pleased for you.You must feel so elated.
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DBS activated, WOW!
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