Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-26-2007, 07:59 AM #1
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Default Nov. is RSD month

Hi all.

Nov is rsd month. I've just contacted my local tv stations to tell them and to see if they can do an article on it.

If you have a few moments, maybe you can contact your local stations. THe more we get it out, the more research will be done for us.

Just a thought. I hope it's ok...if not..to late, I've done it already

My mother always said that it was easier to apologize then to ask for permission...I don't think it's a problems tho

Hugs
Mary
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Old 10-27-2007, 05:47 AM #2
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I have contacted several tv shows/radio stations etc to see if I can do an article on RSD and they have not responded to my letters! I really wanted to explain to people about RSD.
I hope all goes ok with your article, if you want any help just ask me, I would love to help you
Love and pain free hugs
Alison
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Old 10-28-2007, 12:12 PM #3
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I have called, e-mailed and none of the stations seem to think its not that important. they are so ignorant. My next step is yo show up on their door step. They can either listen or throw me off their property. Oh they make me so mad.

SUE K
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Old 10-28-2007, 06:41 PM #4
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Quote:
Originally Posted by sue k View Post
I have called, e-mailed and none of the stations seem to think its not that important. they are so ignorant. My next step is yo show up on their door step. They can either listen or throw me off their property. Oh they make me so mad.

SUE K
Hi Sue!
That would be one way to just pop on in there live! LOL I too think that they are so ignorant to this RSD that they think it unimportant. Just tell them that their ratings are going to go down real fast, as you have a huge no. of family, friend's that won't watch their local news channel anymore, just a thought?? Love ya!~Desi
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Old 10-29-2007, 07:22 AM #5
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Heart

with the tv stations...try emailing the anchor people directly. the am and noon people have more time open to fill with human interest stories. or look for the newbie young reporters.

i know that the video from discovery health is outdated, is there another video that would be better? emailing a link that has a visual might get their attention. even links for forums, so they can see the numbers of people involved.

don't give up. pm me for my email addy. you can email me what you are sending out and i can fw it on in my area. i have a very good friend on a national morning show.

oh...many areas have local freebie newspapers. they print many articles for free.
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Old 10-29-2007, 10:55 AM #6
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Hey, Curious! Good idea! I e. mailed our local news with a few links!! I hope I hear back from them, or I am going to call!!~ Love, Desi
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