ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB.


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Old 10-27-2007, 05:42 PM #1
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Trophy whatkindofWORLDdoyouwant.com

whatkindofWORLDdoyouwant.com

http://www.whatkindofworlddoyouwant.com/


Augie's Quest
http://www.whatkindofworlddoyouwant....view/id/382360
Every time somebody watches this video, $2 will be donated to fight ALS, also known as Lou Gehrig's Disease.


Eric Lowen
http://www.whatkindofworlddoyouwant....view/id/401480
Every time somebody watches this video, $2 will be donated to fight ALS, also known as Lou Gehrig's Disease.


Scott Stafne
http://www.whatkindofworlddoyouwant....view/id/450622
Every time somebody watches this video, $2 will be donated to fight ALS, also known as Lou Gehrig's Disease.


http://www.whatkindofworlddoyouwant.com/

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"Thanks for this!" says:
soxmom (01-28-2008)

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Old 11-09-2007, 07:59 AM #2
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Ribbon

A Midwinter Night's Dream
http://www.whatkindofworlddoyouwant....view/id/464551
Every time somebody watches this video, $2 will be donated to fight ALS, also known as Lou Gehrig's Disease.


Description: A gala event ran by High School Students has raised $472,000 for ALS research in the past three years.
Charity: augiesquest
Author: Chris Lynch
Credits: Chris Lynch, Sarah Pattison, Don and Jess Strasser
Views: 230
Posted: 11/02/07 2:34 AM
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Old 11-19-2007, 11:28 PM #3
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Bumping it up for you Bobbi, keep on clicking away guys. Please
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Old 12-04-2007, 12:18 PM #4
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Old 12-05-2007, 12:12 PM #5
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did you catch anything bobby?

this is a wonderful picture. where was it taken?
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Old 12-05-2007, 04:02 PM #6
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sebastian inlet fl.
http://www.sebastianinletcam.com/

fishing and skydiving
http://www.skydiveseb.com/
3 weeks ago


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Old 12-05-2007, 04:15 PM #7
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my son rusty 19 jumped to.

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Old 12-05-2007, 05:20 PM #8
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Heart how cool! thank you for sharing this bobby!!!

oh my gosh bobby!!!!!!!! i am so excited for you!!!! so happy you got to do this. man i am grinning ear to ear.

i did a tandom jump years ago. i'll have look for my pictures. lol..didn't have digital then.

it's awesome huh? dumb question. lol

i am going to copy these to the ccf so everyone will see them.

hehe..can you tell i'm excited?
wow bobby AWESOME!!!!!!!

so glad your son got to jump too.
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Old 12-16-2007, 09:31 AM #9
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'Quest' Follows Exec's Mission For A Cure
By Michelle Archer

USA Today
12/17/07

--------------------------------------------------------------------------------

Contributed photo
Augie Nieto has proclaimed himself as a face of ALS and appeared on Jerry Lewis' Labor Day MDA telethon.
Sometimes it’s easy to pinpoint the moment things go wrong.

For fitness executive Augie Nieto, it started with a backache in 2004. Other signs followed: weakness, slowed speech, involuntary muscle spasms in his right arm, difficulty shaving. After being unable to hold on to a tow rope while waterskiing in early 2005, Nieto went to the Mayo Clinic.

Several tests and a few days later, Nieto returned home to Corona Del Mar, Calif., with a dreadful verdict. Doctors were fairly certain he had amyotrophic lateral sclerosis, also known as ALS, or Lou Gehrig’s disease. He was 47.

“Augie’s Quest,” co-written with T.R. Pearson, is about Nieto’s battle with ALS and his mission to find, if not a cure, at least an effective treatment for the disease that’s killing him.

ALS is a fatal disease that attacks motor neurons in the brain and the spinal cord, leaving the neurons unable to control muscle movement. As the neurons lose function, the patient becomes paralyzed. Because ALS victims go on thinking, seeing and hearing as well as they did before ALS, they are essentially trapped in a degenerating body. Most patients die of respiratory failure within three to five years.

Not only is there no cure, there is only one FDA-approved drug for ALS, and it, at best, extends life for a mere two or three months.

Nieto, who built a fortune by popularizing the Lifecycle exercise bike, had the means to seek no less than seven second opinions from coast-to-coast. A few short months and an unsuccessful suicide attempt later, Nieto digested what he learned.

No one knew what caused ALS, and research efforts were scattershot, underfunded and largely conducted in an uncoordinated vacuum, he decided. “That’s no way to run a business,” he says.

Nieto doesn’t dwell on the larger issue of the state of health care in the USA, but its dysfunction is revealed time and again.

Nieto has also proclaimed himself as a face of ALS, saying that as in business, it’s important for the disease to have a “brand.” Now in a wheelchair and experiencing speech difficulties, he’s appeared in The Wall Street Journal, on the “Today” show and on Jerry Lewis’ Labor Day MDA telethon.

http://www.hartfordbusiness.com/news4025.html
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Old 01-11-2008, 04:15 PM #10
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A Cruzin Cooler, a motorized scooter with a cooler and a cup holder, is displayed at the Consumer Electronics Show (CES) in Las Vegas, Thursday, Jan. 10, 2008
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