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11-06-2007, 08:17 PM | #1 | |||
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In Remembrance
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I did a little searching and sometimes NPH responds to ldopa! Now, if an eminent researcher at Yale with over 250 published papers can spend ten years in hell, then who knows?
1: Clin Med. 2007 Jun;7(3):296-9. Comment in: Clin Med. 2007 Aug;7(4):416. Normal pressure hydrocephalus: a case report by a physician who is the patient. Conn HO. Yale University School of Medicine, New Haven, Connecticut, USA. halcon1109@aol.com This report describes the case of an elderly physician who endured a slowly progressive, ambulatory illness, which was erroneously diagnosed as Parkinson's disease. After ten years of progressive illness the correct diagnosis of normal pressure hydrocephalus (NPH) was finally made, revealing itself, by accident, through incontinence and mild dementia. The patient-physician enjoyed an instantaneous remission induced by a large lumbar puncture (LP) sustained by a ventriculosystemic shunt. The patient-physician dedicated his renewed life to informing the medical profession about this dramatic syndrome, which he believes is more common and more reversible than generally thought. Although the patient had been virtually restored to normal, a series of complications typical of ventriculosystemic shunting (VSS) occurred, including significant hearing loss and subdural haematoma (SDH). The patient feels, however, that his clinical improvement far outweighs the complications and that every patient with NPH should have the opportunity to decide whether or not to have a VSS. PMID: 17633954 [PubMed - indexed for MEDLINE]
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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