[TevyesDaughter]

What a delight to find this forum! My name is Rivkah and yes, I am really TevyesDaughter. I grew up on a farm, and yes, I am Jewish.
I was DX with RSD/CRPS six months after a work related injury. Workman's Comp is SLOWLY dealing with this, but I do have one question:

Has anyone experienced dental decay and loss of bone mass in the jaw? This has suddenly happened to me and according to my dental x-rays taken just prior to the accident, I had one cavity, now the Dentist is talking about root canals , bridges etc....

Well, that is it for now, thanks for allowing me to join in and I look forward to "meeting" all of you!

Be well,
TevyesDaughter

[ali12]

Hi - welcome to this forum,
My name is Alison, I am 12 years old and I suffer from RSD in my left leg. I used to have RSD in my right arm but it is now fully recovered - thankfully.
I developed RSD in my leg after an ankle sprain in March, I was diagnosed 4 months later. My foot is rotated out to the side and I am unable to move it, due to Dystonia. I also have muscle spasms, swelling, hypersenstivity, colour changes, temperature changes, chronic pain (which is a 9 and a half out of 10), balance problems and many more symptoms. When I was diagnosed my PM doctor performed a Guanethadine nerve block which caused me to lose my balance.
2 months after diagnosis my doctor put me on Amitriptyline to try and help me sleep but this didn't work, it caused me to have a nasty side effect of 'blurred vision' and resulted in a knock to my right arm, I was diagnosed with RSD 2 weeks later.
I do have trouble with my teeth, I find that they chip a lot and they are also quite sensetive.
Take care and if you need anything I'm here
Alison

[tayla4me]

Helllo Rivkah,


With RSD/CRPS there is often loss of bone density/osteoporosis so this could explain your jaw problems. Teeth do react very quickly to any illness in the body, with RSD and the medications we take this just makes matters worse. Smoking will also cause discoloured, unhealthy teeth.
I had a beautiful white, healthy smile 10 years ago. Now I have discoloured and chipped teeth as do just about most people I have met with RSD/CRPS.
I think taking calcium and fluoride supplements may help and of course good Dental Hygiene will go a long way in keeping our smile dazzling.

Nice to meet you and lots of luck with your teeth, I hope you have a really good and understanding dentist. Mine is since I supplied him with 6 pages of information about RSD.
Love Tayla

[TevyesDaughter]

Thank you so much, he put me on flouride supplements and a flouride wash. I am looking for a dentist in the NYC / Westchester, NY area that is familiar with RSD and dental issues.
I found an interesting article on the web: http://www.homestead.com/robertgschw...nalDental.html

I am on workman's comp and my Attorney is applying for them to cover the cost of the dental issues.
Thank you so much,
Rivkah

[ali12]

Hi there,
Many thanks for the link it is really interesting. Tell your PM doctor (if you have one) about the dentistry treatment you need and see what he says. Also inform your dentist about RSD.
It is good that you wont have to pay for the treatment.
Tayla is right - RSD does cause bone density so that could be why your teeth keep chipping - talk to your doctor about it, maybe he could arrange a bone scan just to put your mind at rest.
Take care and it is nice to have a different religion on Neurotalk
Thanks
Alison

[Desi]

Hi Rivkah!
I just want to welcome you here. I wish you the best of luck with your teeth!!

[TevyesDaughter]

Dear Alison,
You are such a ray of sunshine. I relate to you in many ways, I had Juvenial RA from the age of 8 through my early adulthood, it really stinks when we are young and get hit with health issues that change our lives so early. I love your attitude, you appear to be quite the cheerleader and show your kindness, compassion to us all.
Thank you again for such a warm welcome!!
Rivkah

[ali12]

Many thanks for your kind words, I really appriciate it. I am so sorry that you have had health issues since the age of 8, yes it does stink.
RSD is horrible for anyone but especially for young children like myself, I am unable to go to school, I haven't seen my friends for ages (I have seen a few of them but not many), I can't go shopping etc. I can't do things that normal 12 year olds do, it gets me really mad. I am sure you know how it feels. I just feel like I am too young to be dealing with RSD.
If you need anything I am here, just PM me or reply, I am happy to help you
Pain free hugs
Love
Alison
-x-

[frogga]

Hey Rivkah - welcome!!! I have lost bone mass from my jaw as well which means that my teeth are moving around in my mouth which is really annoying - it means that even though I have worn braces and stuff my teeth are going crooked. Apparently I've lost the bone mass from RSD and my meds.

Ali - I thought you were back at school now? for 2 hours a day? hope your knee improves - try and keep it as mobile as possible and do desensitisation etc on it.

Love

Rosie xxxxxxxxx

[TevyesDaughter]

Originally Posted by frogga

Hey Rivkah - welcome!!! I have lost bone mass from my jaw as well which means that my teeth are moving around in my mouth which is really annoying - it means that even though I have worn braces and stuff my teeth are going crooked. Apparently I've lost the bone mass from RSD and my meds.

Wow! Sorry to hear about this. I am just confused, the jaw bone on the left side is pretty well shot, so I am losing my molars. On a good note, makes my cheek bones look very high What do you mean by your teeth are moving around in your mouth? Are they loose or ???
All of this has happened so fast, who knew a fall could do so much damage?
Thanks for all the warm welcomes!
Rivkah