Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 12-05-2007, 03:07 PM #1
richard d richard d is offline
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Default dizzy

hi, anyone ever get dizzy laying in bed to the point where you feel you could faint. Nothing swollen or discoloured just dizzy. Have been taking tramadol for a year 200mg a day.

thanks Rich
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Old 12-06-2007, 07:49 AM #2
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Hi

I have beeb having real bad dizzy spells. When getting up I feel like I'm going to fall over. I have been so dizzy that I feel sick. I have trouble walking without supprt. I actually look like I'm drunk...it's horrible. I knew something wasn't right so I went looking for help. I had a hearing test and balance test done and everything was ABNORMAL! I've never had any problems before in my life! I can't even stand up straight lately. I have seen 3 different ENT's who feel this is all coming from the neck (TOS). Even the vascular surgeon agreed. The question is...will it be permanent damage to the inner ear? We don't know. They are hoping that once the TOS gets managed ...it will all get better. A PT confirmed yesterday that the vertigo is coming from the TOS and at this point my only option is surgery.

I'm scared about everything and I was going to post yesterday but I was absorbing everything and I felt really crappy. I want to be pain free and I want my life back.

Wish you lots of luck
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momz of NE PA:
Right side TOS (Scalenectomy 1-14-08). Spinal problems. Thoracic Spine hernaited discs pressing on spinal cord and small tumor - still being investigated. A very tired mom who feels like giving up!

Wishing I could think more positive and be well again!
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Old 12-06-2007, 07:52 AM #3
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hope you feel better!!!! soon!!!!





rich
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Old 12-06-2007, 08:46 AM #4
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Quote:
Originally Posted by richard d View Post
hi, anyone ever get dizzy laying in bed to the point where you feel you could faint. Nothing swollen or discoloured just dizzy. Have been taking tramadol for a year 200mg a day.

thanks Rich
Oh yes.

And there can be so many TOS reasons for this...

Inner ear nerve damage - permanent or temporary...

Circulation halted and the fluids are just interfering with your normal functions...

and I'm sure there are more...
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Old 12-06-2007, 02:25 PM #5
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Have you seen this page-
http://tos-syndrome.com/newpage12.htm

Do any of the other VERTEBRAL ARTERY symptoms fit for you?

I had many of those but after the worst of my neck/shoulder pain was resolved from PT & chiro they faded away.
My voice is still not as strong as it used to be - I used to be able to sing without my voice cracking

DIPLOPIA, - double vision
DYSARTHRIA, weakness or incoordination of the speech muscles. Speech is slow, weak, imprecise or uncoordinated. ...
DYSPHONIA, voice changes, hoarseness or other phonation disorders
DYSPHAGIA- i think this is trouble swallowing
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Old 12-06-2007, 06:53 PM #6
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Well I have had the weak voice for over a year .

The difficulty swallowing is off and on, depending on the condition of my neck at any given time.


thanks richard
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Old 12-06-2007, 07:24 PM #7
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I too have difficulty with swallowing. It drives me NUTS! I figured it had to be due to the TOS. No other explanation for it. Somedays it's really bad adn also I have trouble talking. I wouldn't wish TOS on anyone! It's awful in every way shape and form.
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Right side TOS (Scalenectomy 1-14-08). Spinal problems. Thoracic Spine hernaited discs pressing on spinal cord and small tumor - still being investigated. A very tired mom who feels like giving up!

Wishing I could think more positive and be well again!
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Old 12-10-2007, 01:39 AM #8
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Count me in on the sometimes dizziness club

My voice sounds okay speaking, but cracks all the time if I sing along to the radio.
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Old 12-10-2007, 08:11 AM #9
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Default Me Too!

I had the same problem from time to time before my surgery.

Lightheadedness while even just sitting, and sometimes problems getting words out without stumbling over them.

They thought once I had had a stroke, but of coarse when tests were ran and they didn't see that........that was when I was told I needed a Shrink.

Of coarse, this was before TOS was diagnosed.

Feel better soon! I know that's a bad feeling!
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Old 12-11-2007, 02:01 AM #10
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Default hmmmm

i get it sometimes. brings up something 4 me. inner ear damage? I was hit in the head/ear with a baseball a couple yrs a go. wonder if it could have damaged a nerve??
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