[Tiril]

What medicin are you on? maybe there are some news out there?

I am on these, after I have tried different thing the past 7 years,

Tegretol; helps a lot with the Electric Shock like pain

Neurontin, the burning pain

Elavil; sleep and pain

Rivotril; myoclonus and tremor

HOPE is we can help each other find something that helps

[Sandel]

Hi there..

Baclofen, for cramping and muscle seizures (works ok)

Trazadone, for sleep and nerve pain (works well)

Lyrica, for pain and Jabbies and stabbies (works very well)

Flurbiprofen, for inflamation and pain (works ok)

Citralopram, for depression (works well) need to replace this drug due to
recently discovered long term possible complications to bone structure.

Pariet, to protect my tummy from all the other drugs (works I hope)

Vitimin B 12, my levels are low (works I hope)

Ativan, when needed under the toung for chest pain and anxiety (works ok)

Cyclobenzaprine, when needed, muscle relaxant (works ok)

Lorazapam, when needed for anxiety and chest pain, long acting (works ok)

Whew welcome to my pharmacy..

Sandra

[GalenaFaolan]

I take baclofen for jerking and muscle spasms and it works really good and generic vicodin for pain, it works not very well at the moment, I need my mg raised finally after 2 years. But up till now, it's worked at keeping my pain tamped down enough so I can function.

Hugs,

Karen

[ali12]

Hi there,
I am currently taking:
Baclofen for the muscle tightening (I think it helps a bit)
Tramadol for neuropathic pain (doesn't seem to be working)
Lyrica (doesn't seem to be working either)

THANKS
Alison

[CZZ74]

Hi to answer u question
I take:
Opana ER synethtic morphine oxyconmorphine-80mg twice a day. this drug has saved my life . I have been on this for the last 10 days. took my pain form a 9-10( i was in crisis for a whole month) to a 4. During this crisis my PM droctor tried everything, fentynal patched, did nothing, uping my oxycontin to 100 mg taken spread out 3x per day- this helpd but only brought pain dowon to a 7-8, not low enough.
Finally he tried this new med, OPana ER and POW relief!!! He also took me off my neurotin , 1800 mg a day and put me on 150mg of Lyrica twice a day and burning pain was controlled immmediately. I feel this combinaiton is a miracle workder and recommend it for everone who can to try!
I also has a ketamine infusion ever two months- big boosters- two days or three in Philadelphia- this also reduces my pain. significantly.
I still have breakthroug pain and I take 10/325 Percocet as needed up to 4 per day max,as needed
I take 50mg or Bacolfen twice a day for spasms and charlie horses that can las over a half hour( helps but not perfect)
I take topamax to control migraines 50mg twice a day( this works 100%)
I take ativan(lorzenpan) three times a day 2mg to settle me down and to control flash backs from the ketamine. I am one onf the people who experience pretty severe flash backs and hallucinations from the ketamine boosters.Hope this information willl help someone. the opana saved me.
So to simplify:
[*]Opana ER 80 Mg 2x a day[*]Percocet 10/325 [*]Ativan 2mg 3x per day as needed( to control flash backs, hallucinations, and heart rate.[*]Baclofen 10 mg twice per day- spasms, charlie horses, shooting pains, works pretty good.[*]Cymbalta 50 mg at bedtime(dont know if it is working)[*]Topamax 50mg twice a day for migraines ( works really well)[*]Lyrica (New for me) 150mg twice a day[*]Phennegran spellling? for Nasusua as needed( usually twice a day) I have GI problems from RSD-works well[*]Lunesta 3mg at bedtime( sleep aid) works well

[Tiril]

Thank you all, I like to know there are some things I haven't tried yet. My big nightmare is, that the drugs Iam on stops to work. I have som quality of life now; gues my wxpectation is lower than in my previos life
TheTegretol has and are my big lifesaver.
Blocks and infusions did nothing for me.

Have anyone of you tried this one?

[CZZ74]

Your post ended with out finishing the question, you said Has anyone tried this one? Which one do you mean? thanks CZ

[Sandel]

Nope but my son was on it for seizures.. I do remember one of the side effects of long term use at the doses he had to be on was protrusion of front teeth, a dental bone thing, we never kept him on that one long (though it worked well while it worked). I know others do take it for RSD, but this is my experience with it. hmm I remember reading something (i wsh I was more organised lol) I will find it later.

Hugs,
Sandra

ahh here it is near the end of this page on Tripple C syndrome (also an RSD)

http://robertgschwartz.homestead.com/page3.html

[Tiril]

CZZ74; it was Tegretol

Sandel; Thank you, I have used Tegretol for 6 years without any side effects.
It is such a lifesaver for me, and over all this years I have never heard anyone on the different boards talk about taking Tegretol for RSD/CRPS.


Thank you for the link, Ihave Small fiber neuropathy in my feets/lower legs(CRPS is in upper body) and the symptom for Sfp is the same as Triple C Syndrome, never heard of that name.

1. Cold hypoesthesia - patients don't feel the cold. They cannot distinguish cold from pain. This keeps me indoors wintertime, I live in a cold country.



2. Cold hyperalgesia - cold hurts. Yes

Tiril

[frogga]

Ketamine 100mg-150mg/day
Dihydrocodeine (similar to Vicodin I think?) - 80mg 3/4 times day
Diazipam up to 20mg day
Baclofen up to 110mg day
Paracetemol 1mg 4x day
Nortriptylene 30mg night
Ibuprofen 400mg 3x day
Trihexyphenidryl 38mg day

I personally think that the ketamine is the most useful drug I have ever used - far more effective than morphine, oxycontin or anything else - it has made such a difference to me and my quality of life. Well. I don't think I'd be at uni without it. Have you tried things like amytrip/ nortrip? or catapres/ clonidine?

Take Care

Love

Frogga