ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB.


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Old 05-08-2008, 07:07 AM #1
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Trophy Ken Patterson [Video] Drives Wheelchair From Florida To DC



Man Drives Wheelchair From Florida To DC
Ken Patterson Sr. has ALS disease. He is riding in a motorized wheelchair from Florida to Washington, D.C. and is passing through the Triad.

Ken, Glenda Video
http://www.digtriad.com/video/defaul...storyid=102813


http://www.rolloverals.org/




http://march-of-faces.org/
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Old 05-12-2008, 02:59 PM #2
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Ribbon

ken patterson is in washington dc.

he ken do it.
he ken did it.

thanks ken and thank you glenda.

ken is just left of center white shirt, bb cap, next to pals in orange shirt.


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Old 05-14-2008, 12:29 AM #3
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Default Ken Patterson In Washington, DC

My Sister and I had the amazing pleasure of meeting Ken & Glenda Patterson in Washington, DC. We took the trip so we could find out how we could help. I will post on ALSTSI forum about our experience there but wanted to share our video of Ken & Glenda ending their amazing journey and of the wreath ceremony in Arlington Cemetery. They did it and we will never forget it.
Love to you all.
Michele & Tricia
check out our myspace/stopals
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Old 05-19-2008, 07:04 AM #4
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Orlando to D.C. ... by Wheelchair

Last Edited: Sunday, 18 May 2008, 11:13 PM EDT
Created: Sunday, 18 May 2008, 11:13 PM EDT


kens video
http://www.myfoxorlando.com/myfox/My...1&locale=EN-US


By Steve Gehlbach
FOX 35 News

ORLANDO, Fla. (WOFL FOX 35) -- A trip of a lifetime is over for a local man living with Amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig's disease.

Ken Patterson set off from Orlando and rode more than 900 miles to Washington D.C. as part of the "Rolling Over ALS" tour. The journey took twenty-one days and three electric wheelchairs.

Ken and his wife, who drove behind in a van the entire way, say the trip was a lot tougher than expected.

Somewhere in Geogia, Ken retreated to the van for a mile or so because deputies pulled him over twice for holding up traffic. "People were just very angry, and we were called names we didn't know exsisted. It was bad," Ken said.

After returning this weekend to their home in Titusville, they say the mission to raise awareness was accomplished. "You have to live every day, like it's your last," said Ken.

Ken was joined by other ALS patients for the final three miles through the nation's capitol. The trip ended with a ceremony at Arlington National Cemetery.

For more information about Ken Patterson's journey, you can visit Ken's website at: kensjourney.com

http://www.myfoxorlando.com/myfox/pa...Y&pageId=3.2.1
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Old 05-19-2008, 07:09 AM #5
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Awesome story! Thanks for letting us know about it!
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Old 05-22-2008, 08:07 PM #6
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Ken Patterson's Journey from Orlando to DC

Ken Patterson’s ALS Journey - I don’t know of any other congressional district in the United States that has a constituent as great as Ken Patterson. Ken was diagnosed with ALS, Lou Gehrig’s disease, in 2006. He was a former Florida State Fire Fighter and was working at Kennedy Space Center when he was diagnosed with ALS. Below is a brief story of his visits to Washington DC.



Like most tourists, Ken and Glenda Patterson decided to visit Washington DC by plane in the spring of 2007. After meeting with our staff, and taking a Staff-Led Capitol Tour, I didn’t think that Ken wanted to leave Washington. Reluctantly, Ken flew home to Titusville. We kept in touch over the next year emailing back and forth. We even had breakfast during a trip I made to Florida. Shortly after our breakfast I got an email from Ken stating that his next trip to DC would be in the spring of 2008. I was thrilled! He was a pleasure to have in the office, and the whole staff would be delighted to see him again. Then he hit me with the “ken-ism” as I like to call them. This year, he wouldn’t be traveling by plane, but by wheelchair. I had to read the email twice. Who would “roll” from Florida to Washington DC in a wheelchair? Ken would, and he did.

He traveled from Florida to Washington DC taking back roads, and state highways covering over 900 miles in 21 days. They were escorted by police part of the way, and ushered off the road as well. Jamming on his iPod and XM radio so he didn’t miss a Red Sox’s game, Ken arrived in Washington with his maroon van covered in donation ribbons. Prior to the roll up to Washington, Ken petitioned friends, co workers and his community to donate money by purchasing a magnetic ribbon to cover his van with.

After his arrival in Washington, and hearing all of his stories, I can say that they hit a few speed bumps but they made it up here in one piece. Ken rolled up for the ALSA Advocacy Days. His kids flew up from Titusville this year to join in the festivities. Representative Feeney assisted Ken in securing time to present a wreath at the Tomb of the Unknown Soldier at Arlington National Cemetery. It was great for Ken to be able to lay that on behalf of all of those fighting ALS. They met with Representative Feeney and staff, took another Capitol Tour and toured the White House. After the White House tour he returned to our office grinning from ear to ear. Apparently, the White House elevator was broken so Ken was escorted upstairs on the President’s “personal” elevator.

In case you are entertaining the thought of traveling to Washington by wheel chair; here is a list of a few things you might want to bring that helped Ken along his way…
Two motorized wheel chairs. You will need a back-up when one battery dies.
Three iPod’s loaded with all your favorite music (Thank you Tabitha and Kenny Jr for donated yours for this trip).
A wife who is willing to drive behind you at eight miles per hour for 21 days. Cruise control doesn’t work at low speeds.
The drive and determination to raise awareness for something you believe you can change.

Thank you Ken, Glenda, Tabitha, Kenny Jr and Samuel for letting the Feeney office take part in what you are doing to fight ALS.

http://www.kensjourney.com/24.html


http://www.house.gov/htbin/blog_inc?...ngdetail.shtml
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