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05-29-2008, 11:49 PM | #1 | |||
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Elder
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I've been taking it now for a month. I saw the dermatologist yesterday. Main thing I told him about was how I reacted to the heat in the light booth. I said 'You know that heat is one of Ms's worst enemies'. He said 'Is this soemthing that just you have or is it common in all MS patients?'. I knew then that it had been a long time since this dermatologist had learned about MS. So I had to give him a little MS lesson in a minute since he double books each of his 15 minute appointments.
But he really listened and wanted to know how we could accomplish these treatments. I take these pills 90 minutes before my photothrapy to make me hypersenstitve to the UV rays. So he increased the pills and decreased the times in the booth. I had a treatment today and they really wanted to know how I reacted. I was in the booth for 10 minutes on Tuesday so he decreased it back to 5 minutes today. I told them that it wasn't a walk in the park for me but much easier. I was able to accomplish some errands afterwards and I know I wouldn't have been able to do that if I had been in there for 10 minutes. |
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05-30-2008, 12:26 PM | #2 | |||
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In Remembrance
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I'm glad that the Derma is on the same page with you now. Do you think the treatments are working on your psoriasis, or is it still too soon to know?? How many treatments are you supposed to have?
I hope it works for you....Keep us up to date, OK?
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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"Thanks for this!" says: | AfterMyNap (05-30-2008) |
05-30-2008, 01:33 PM | #3 | |||
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Wise Elder
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Geez, Doyd, are you thinkin' new derm doc? Do you think this treatment is really helping you? I hope so, I miss you around here.
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—Cindy For every day I choose to play, I set aside a day to pay. —AMN "Sometimes plastic wrap just won't cling, no matter how much money you put in the meter." —From the Book of True Wizdom |
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05-30-2008, 10:39 PM | #4 | |||
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Elder
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We both think it is working. according to the websites about this therapy, you can get up to 200 treatments. I have had 11. But I have seen people with just terrible psoriasis which I don't have. I just wish the therapy would penetrate through my hair to my scalp. Unfortunatley it doesn't.
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05-30-2008, 10:55 PM | #5 | |||
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Elder
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Doydie,
I was RX'd Clobex shampoo for itching scalp. I think it's also used for psoriasis. Have you heard of it or ever used it? I have three bottles unopened that I probably won't use now. I discovered I was allergic to something in my new pillow. I went back to my chicken feather pillow, go figure! Now it's fine, the itching is gone. BTW, I hope the phototherapy will help you a lot.
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Wiz Turn Left at the next election. . RRMS DX 01/28/03 Started Copaxone again on 12/09/09 |
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