Parkinson's Disease Tulip


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Old 06-26-2008, 12:12 AM #1
Jim091866 Jim091866 is offline
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Default When you really stop to think about it...

I'm sorry but thinking today that I've had PD now for 11 years now, I'm still where I was 11 years ago! I still have to take these damn pills every 2 hrs just to be able to get outta bed. And that's AFTER DBS!!! Ya know when you really stop to think about it the special interests really control a lot of what goes on in this country and frankly its a bunch of BS and right now I'm pretty tired of it.

-Viagra. Give us a problem with sex and we throw more drugs onto the market than anything you've ever seen. I know it was discovered as a side effect. But have you seen anything else move that fast. The pharma companies are making gazillions.

-Iraq. Sell the public a bill of goods. Post 9-11 and all of a sudden Sadam Hussein MUST be attacked. Pleeease. I think we were all taken for a ride on this one. The only people making money here are VP Cheney, Halliburton and all the other companies involved. Not to mention the lives lost, the toll on the families in terms of PTSD, brain and other injuries. Lack of VA care, etc. And they want to deny an new GI bill,,, WTF are we doing sending BILLIONS overseas when our own country is falling apart..and if, IF these guys make it home they don't have jobs to go back to or they don't have the house that they were living in.

-PD research. Thank God for MJF and the Parkinson's foundation. If it weren't for them we sure would not be as far along as we are. That said, the latest new drug to come out was an agonist patch- NOT even a primary medication as such but a "helper". Then they recalled this one for problems that I'm sure never showed up before, yeah right. How long has it been since big pharma has given us any drug for anything that has actually cured something or at least made a major advance in treating it. Yet they don't want us to go to other countries for meds or treatment? Please, we live in the richest nation on this planet and the best they could do is flood the market with drugs so I can have an erection that wont quit but they can't figure out why I don't remember last night (alzhiemer's) or my heart couldn''t bear the stress (cholesterol and heart disease). You watch the brain cancer funding go off the chart after Kennedy passes. Bless him. I know, he wasn't driving.

Now my apartment complex wants to take over the cable billing for our standard service, we still get billed from the cable co. for all the extras, huh? I checked into this and they finally admitted that they can then include it in the rental charges then "control costs" as in raise the rates by 10.00 a month to start with. You can't have a dish because cable service is included in your rent!

Big oil says their profits are't excessive! How long does it take to figure out that the public wants a plug in car!!! That's right Detroit if you would wake up and figure that one out you could have the market back overnight. But GM won't have a plug in such as the Volt until about 2010. Forget it, you missed the boat again. Meanwhile our Toyota and Honda dlrs cant keep a hybrid on the lot and they're selling for full price!

In closing you're damn right I'm voting a Democratic ticket in November. I'm so mad I could spit nails. Thanks for listening
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Old 06-26-2008, 06:57 AM #2
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I'm sorry but thinking today that I've had PD now for 11 years now, I'm still where I was 11 years ago! I still have to take these damn pills every 2 hrs just to be able to get outta bed. And that's AFTER DBS!!! Ya know when you really stop to think about it the special interests really control a lot of what goes on in this country and frankly its a bunch of BS and right now I'm pretty tired of it.

-Viagra. Give us a problem with sex and we throw more drugs onto the market than anything you've ever seen. I know it was discovered as a side effect. But have you seen anything else move that fast. The pharma companies are making gazillions.

-Iraq. Sell the public a bill of goods. Post 9-11 and all of a sudden Sadam Hussein MUST be attacked. Pleeease. I think we were all taken for a ride on this one. The only people making money here are VP Cheney, Halliburton and all the other companies involved. Not to mention the lives lost, the toll on the families in terms of PTSD, brain and other injuries. Lack of VA care, etc. And they want to deny an new GI bill,,, WTF are we doing sending BILLIONS overseas when our own country is falling apart..and if, IF these guys make it home they don't have jobs to go back to or they don't have the house that they were living in.

-PD research. Thank God for MJF and the Parkinson's foundation. If it weren't for them we sure would not be as far along as we are. That said, the latest new drug to come out was an agonist patch- NOT even a primary medication as such but a "helper". Then they recalled this one for problems that I'm sure never showed up before, yeah right. How long has it been since big pharma has given us any drug for anything that has actually cured something or at least made a major advance in treating it. Yet they don't want us to go to other countries for meds or treatment? Please, we live in the richest nation on this planet and the best they could do is flood the market with drugs so I can have an erection that wont quit but they can't figure out why I don't remember last night (alzhiemer's) or my heart couldn''t bear the stress (cholesterol and heart disease). You watch the brain cancer funding go off the chart after Kennedy passes. Bless him. I know, he wasn't driving.

Now my apartment complex wants to take over the cable billing for our standard service, we still get billed from the cable co. for all the extras, huh? I checked into this and they finally admitted that they can then include it in the rental charges then "control costs" as in raise the rates by 10.00 a month to start with. You can't have a dish because cable service is included in your rent!

Big oil says their profits are't excessive! How long does it take to figure out that the public wants a plug in car!!! That's right Detroit if you would wake up and figure that one out you could have the market back overnight. But GM won't have a plug in such as the Volt until about 2010. Forget it, you missed the boat again. Meanwhile our Toyota and Honda dlrs cant keep a hybrid on the lot and they're selling for full price!

In closing you're damn right I'm voting a Democratic ticket in November. I'm so mad I could spit nails. Thanks for listening

Jim,

I'm with ya, brother...

See the movie "Idiocracy" for the perfect take on Viagra et al.

Saddam was a horrible man... but at least he held that mess of a country together, not to mention counterbalancing Iran. Strange, you just can't force liberty on people, no matter how badly you want them to be free, they have to want it for themselves. And, they have to be tolerant enough to live peacefully with each other... that's if you believe we're there as "liberators" (my apologies to the fine and honorable people doing the heavy lifting, I know your hearts are in the right place).

No one should be paying for programming that contains advertising, lose the ads and maybe I'll pay. Looks like they may get me with the digital changeover in 2009, though, and if the NFL goes to pay channels, well, that'll be it.

GM made an electric car... the EV1, and scrapped it about a decade ago. Not enough profit potential. How good do you think the batteries would be by now?

I'm not sure the Democrats are immune from the disease, special interests have them too. The whole system needs changing, though, and I guess keeping the current regime's successors out is a start. Maybe the Dems will own up to (1% of) their promises
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Old 06-26-2008, 08:03 AM #3
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The multinationals have become what were once called buccaneers. Landless, they owe allegiance to no one and just don't care. They are interlocked in ownership and management so that it boils down to a single group of names we never hear run the show. Anyone who has not heard George Carlin's "Who Really Owns America" should jump to YouTube and check it out. As he says, it's a big club and you aren't in it.

Big Oil, Big Pharm, Big Guns, they all answer to the same masters. They've worked 100 years and have pretty much gotten what they want - power. Eisenhower warned us. The victims of the 60s assassins were all threats to Federal power. The Bush family heads up the largest criminal organization in the world and controls the drug traffic. The elections were stolen and 9/11 was not even close to what we are expected to swallow.

We're surrounded by sheep and see the wolves around the perimeter. Sigh, it was such a promising country.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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Old 06-26-2008, 09:07 AM #4
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Until we [Americans or anyone else I guess] stop borrowing money to live above our means [guilty here but finally learning]; nothing will ever change. The "who has the most toys mentality" has doomed us to a life of slavery to bills. One house isn't enough. Gotta trade in that car for a "different" one - tired of that one.

Love of money is the root of all evil. And that's what we have controlling the world - love of money.

We can't have it both ways. The drug commercials on TV are so repulsive they make me unsettled in my innermost being. Just as we are trying to learn about the mind/body connection; the mind/love of country connection has never been worse. We have never been less safe.

We are here to help others. We are here to serve. Those looking for toys and glory are the real lower class. Which doesn't mean you can't have money and still be a good person - it goes without saying that priorities are everything.

On all levels, the leaders of the world have failed the masses. They are murderers. Will someone save us on a white horse? I doubt it - no one is using the right ammo, which must come from a spiritual source of love and peace.

paula
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Old 06-26-2008, 09:48 AM #5
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well, I Feel compelled to respond to this,
1. President Bush has kept us safe since 9-11. This is no small accomplishment! Would you rather fight them in Iraq or here???
2. You have your choice here, higher taxes and more government intervention in our lives or the status quo.
I am not happy with either candidate. I look at Obama's voting record and I see someone that I could never support. I like Alan Keyes, another black, for President. Since he doesn't stand a chance of getting elected, I will voe for McCain. OVerall, I like the job that Bush has done.
Iraq wants to be free. Those zealots that want to turn Iraq into an Islamiic state, are by-in-large, foreigners, NOT Iraqi's. How many people have we saved from death at the hands of the Baathist thugs? IF history teaches us anything, it teaches us that Saddam would have continued on his murderous ways.

WE waste alot of resources to be sure. The war was poorly managed at first. It was a learning experience for us. Medical research has been under-funded to be sure.
Don't listen to what they say, explore their voting records.

Jim, have you had your lead placement verified??
Are you better off post-DBS than you were before???
Were you able to cut your meds???
I am sorry to hear of your plight. I'd like to know of your programming history.
Who was your programmer?
Who did your surgery?
Do you have a copy of your post-op MRI's??

Don;t give up on yourself!!!! Sometimes the answer to your problem takes some investigative work. I'd askk you to do this, turn your DBS off for a day. Are you better off or worse off?
Only about 10% are able to quit their meds entirely.

The above post is NOT meant to cause conflict, but to inspire thought.
There are always two sides to every story.
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Old 06-26-2008, 09:53 AM #6
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Originally Posted by paula_w View Post
Until we [Americans or anyone else I guess] stop borrowing money to live above our means [guilty here but finally learning]; nothing will ever change. The "who has the most toys mentality" has doomed us to a life of slavery to bills. One house isn't enough. Gotta trade in that car for a "different" one - tired of that one.

Love of money is the root of all evil. And that's what we have controlling the world - love of money.

We can't have it both ways. The drug commercials on TV are so repulsive they make me unsettled in my innermost being. Just as we are trying to learn about the mind/body connection; the mind/love of country connection has never been worse. We have never been less safe.

We are here to help others. We are here to serve. Those looking for toys and glory are the real lower class. Which doesn't mean you can't have money and still be a good person - it goes without saying that priorities are everything.

On all levels, the leaders of the world have failed the masses. They are murderers. Will someone save us on a white horse? I doubt it - no one is using the right ammo, which must come from a spiritual source of love and peace.

paula
I wish I had written this!! ATTA GIRL!!!

Charlie
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Old 06-26-2008, 10:42 AM #7
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I am not happy with either candidate.

WE waste alot of resources to be sure. The war was poorly managed at first. It was a learning experience for us. Medical research has been under-funded to be sure.
Don't listen to what they say, explore their voting records.


The above post is NOT meant to cause conflict, but to inspire thought.
There are always two sides to every story.

Inspiring to be sure... glad we live where we can have this discussion!

At the risk of stirring the nest, anyone worried about the privatization of this war? What's that money doing for us? I am certain that there are some things that the profit motive does not improve, if you get my drift...

There are always many more than just two sides... That's where the understanding and tolerance comes in. Baathists, alien terrorist groups, or US troops, the people in the way are still dead...
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Old 06-26-2008, 01:20 PM #8
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Hi Chasmo, you say that overall you are happy with the job that Bush has done? Are you kidding me?? He has strung us along on this facade of Iraq for yet still unknown reasons. Saddam did not have WMD. Was it to avenge the job his father didn't finish? I don't know. I dare say that you would face those some 3,000 families who have lost a loved one not to mention the thousands that are in hospitals around our country and say " it was a learning experience." How dare you. As for Sen. McCain, He shows all of the more of the same that has us where we are. I don't deny that we have a worldwide obligation to those who are subjugated. I was trying to point out that we have billions going overseas while our own country is going down the river-It really is. Where were these concerns for others and the need to spread "democracy" when Rawanda was taking place, or the other areas of ethnic cleansing. At least when the Nazi's were killing the Jews the world was not as far advanced as CNN, HNN and the others that bring it right to the living room where you cannot deny what is going on. So I don't see how we can justify going into Iraq but not the other spots. Let the people see what the taliban, etc are doing to their country. Then you won't have to fight them, guess what? The people will do it! As for the rest of my post I was trying to point out how absurdly blind the automakers are to the consumer-do you think oil is ever- ever going to be below 2.50 a gallon? The consumer wants alternative fuel sources not some behmouth V8. The funny thing is we won't care who's label is on it or if its written in English or not. If it works, well that's it. And before you go jumping up and down about buying American. We don't make anything, we import it. And the car makers brought it on themselves. Finally big oil. Despite what they say, do you think that they're really working that hard to develop other fuels? Brazil is almost completely off of oil, really! But we can't figure it out? We've got this country run by an oil family that wants to drill in ANWAR. For what? Oil that won't help us for some 5-10 years down the road?? Not that the Dems would likely do better given the way things have a way of changing once you get to where the deals have to be made, etc. But it's time that the big companies and President Bush wake up and smell what they're shoveling. The problem is that this never affects them, just the little guy.
(spit).


Oh, by the way I have seen my post op-MRI's. My neuro was trained at The Cleveland Clinic so I have confidence in him. As for the targeting, that is always a question but we have not been through enough of the settings to determine that yet. I think he is progressing very slowly to be honest. I don't have a tremor and that is a good signal for targeting so they had to locate the leads based on feedback from my motor function alone. I don't know the percentage of patients who actually go drug free after DBS. I did not know that it was only 10%, maybe you can share that info, it's much lower than I expected. Thanks for you comments/input. Your ball....
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Old 06-26-2008, 03:10 PM #9
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Quote:
Originally Posted by Jim0918 View Post
Hi Chasmo, you say that overall you are happy with the job that Bush has done? Are you kidding me?? He has strung us along on this facade of Iraq for yet still unknown reasons. Saddam did not have WMD. Was it to avenge the job his father didn't finish? I don't know. I dare say that you would face those some 3,000 families who have lost a loved one not to mention the thousands that are in hospitals around our country and say " it was a learning experience." How dare you. As for Sen. McCain, He shows all of the more of the same that has us where we are. I don't deny that we have a worldwide obligation to those who are subjugated. I was trying to point out that we have billions going overseas while our own country is going down the river-It really is. Where were these concerns for others and the need to spread "democracy" when Rawanda was taking place, or the other areas of ethnic cleansing. At least when the Nazi's were killing the Jews the world was not as far advanced as CNN, HNN and the others that bring it right to the living room where you cannot deny what is going on. So I don't see how we can justify going into Iraq but not the other spots. Let the people see what the taliban, etc are doing to their country. Then you won't have to fight them, guess what? The people will do it! As for the rest of my post I was trying to point out how absurdly blind the automakers are to the consumer-do you think oil is ever- ever going to be below 2.50 a gallon? The consumer wants alternative fuel sources not some behmouth V8. The funny thing is we won't care who's label is on it or if its written in English or not. If it works, well that's it. And before you go jumping up and down about buying American. We don't make anything, we import it. And the car makers brought it on themselves. Finally big oil. Despite what they say, do you think that they're really working that hard to develop other fuels? Brazil is almost completely off of oil, really! But we can't figure it out? We've got this country run by an oil family that wants to drill in ANWAR. For what? Oil that won't help us for some 5-10 years down the road?? Not that the Dems would likely do better given the way things have a way of changing once you get to where the deals have to be made, etc. But it's time that the big companies and President Bush wake up and smell what they're shoveling. The problem is that this never affects them, just the little guy.
(spit).


Oh, by the way I have seen my post op-MRI's. My neuro was trained at The Cleveland Clinic so I have confidence in him. As for the targeting, that is always a question but we have not been through enough of the settings to determine that yet. I think he is progressing very slowly to be honest. I don't have a tremor and that is a good signal for targeting so they had to locate the leads based on feedback from my motor function alone. I don't know the percentage of patients who actually go drug free after DBS. I did not know that it was only 10%, maybe you can share that info, it's much lower than I expected. Thanks for you comments/input. Your ball....
Slow is good!!All to often programmers either make too big a jump or change more than one thing at a time and blow right thru the settings, and unfortunately over-stimulation symptoms are often indistinguishable from understimulation.
the 10% statistic is part of a study published in E-move in 2002.


Well let me say that I am a warrior. As a warrior I abhor war, as the result of war is violent horrible death.
SOmetimes there is no good alternative to war. There is no doubt in my mind that we would have had many run-ins with Saddam had we not removed him.
HE is such as despot that he would have destablised the whole region.

As far as fuel goes, our only hope is nuclear energy, I think. Thats the only power source thatt will economically makes hydrogen for fuel cells. I like McCain's idea about $300 MILLION for the invention of new battery technology.
As for my "learning experience" remark, you'd rather we not???

ALl those brave folks are there because they VOLUNTEERED. We can never repay their sacrifiices. They, like I, believe that we are doing the right thing.

Brazil is a gross polluter of the planet. It takes energy to make ethanol. they are destroying thousands of square miles of rain forest every year. WHo knows what they are destroying, perhaps the plant that contains the cure for PD???
As far as money being mispent, I couldn't agree with you more. We have used sub-contractors to an excess, but the Democrats know all about spending also. DO you want to be taxed at a higher rate for pork-barrell projects. I GUARANTEE you will be paying higher taxes if Obama is elected.
Your individual freedoms will be curtailed too.

I could go on and on, but hopefully this will give you a sense of what I am about. You cannot get a true picture of any subject from the mass media.
I hope everyone does their homework!!

Charlie
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Old 06-26-2008, 03:31 PM #10
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Default I humbly suggest

that we keep from giving our mods ulcers by being extraordinarily courteous to one another and keep in mind the targets of our ire are the big guys (take your choice).

Did you know?-
The Bush family got its start by helping the Nazis manage their money? Keep in mind that Fascism is a merger of Big Government and Big Business and read http://www.guardian.co.uk/world/2004...secondworldwar

That President Eisenhower used the occasion of his very last speech to the country he had served for decades to warn of the dangerous rise of an alliance between Big Business and Big Military - the now infamous Military-Industrial Complex? In the same speech he warns of the dangers of Big Government and even Big Science.
http://coursesa.matrix.msu.edu/~hst3...ts/indust.html

That on 9/11/01, a third tower collapsed straight down into its own footprint just like the other two? It had not been struck by a plane or debris and had only minor fire damage. No other building of its type had ever before or since done so. The 9/11 commission studiously ignored it.
http://www.globalresearch.ca/index.p...xt=va&aid=8472

Finally, a plug for a project that is a superb example of the internet's David against the Goliaths of the world, technology at its best- http://www.cooperativeresearch.org/p...ct=911_project

Perhaps one can dismiss things like this, but there are no tinfoil hats here. The bigger question is why is there no discussion of such things in the mainstream media? Who are the men behind the curtain?
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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