[Friend2U]

I can't win for losing. I'm tapering off of my prednizone. I had been doing some better, but not back to normal. I've been feeling like my body was preparing to revolt against me...and sure enough, I woke in the night to complete loss of the left side of my body. It scared the begeebies out of me. Today, I am getting around some better, but still not well. I'm supposed to go Thurs and Fri all day to my daughter's college orientation I am going to have no choice but to rent a wheelchair. THIS SUCKS!!! I still have a few days left of tapering off the steroids. I feel like they aren't really doing the trick, just delaying the outcome...which really scares me!

[SallyC]

Ah, the stress of College Oientation. Been there, done that....and, in the middle of a heat related flare...Ugh!! I was actually in remission, except, for that hot stressful time.

I am so sorry that the Steroids aren't enough to do it for you.. I remember, at the time, taking Robaxin....a wonderful muscle relaxant....and that seemed to help some and cool showers between sessions. I used a cane but a wheel chair is a much better idea....it will save you a lot of strength.

I hope this is just a temporary setback and once the stress is over, so will be, the Flare.

[DM]

Hey F2Y~ Sorry you are feeling rotten. I too, remember the college days of my children. Those orientation days can be long, so take cooling devices and extra water. I hope you get to feeling better before you have to go.

I think a WC might be a good idea if you have to go to different areas of the campus. *we did w/my DD* take care and feel better.

[the Bird]

Hey Friend!

Don't forget to call and tell your neuro! Gotta take care of you!!!

Just think of the wheelchair as a new way of conserving your energy! You can even tell the kids you meet , "I'm saving up energy for my hubby, when she's all settled in here!!!" Did you grin...just a little bit?

[Twinkletoes]

Awww, that's the pits, Friend!

Heckuvatime for the MonSter to rear its ugly head.

I vote for the w/c too -- you'll save so much energy, like others have pointed out. Try not to feel bad.

I hope the steroids do their thing so that your body works like it should.

Many hugs to you! Have a good time with your daughter!

[Jan4you]

So sorry dear for ALL you are going through. I know you wish things could be better. I heard that sometimes you need to give the prednisone time to work. Hope that it does show some improvement for YOU!!!

AND.. yes ride that wheelchair as if you are the QUEEN and every one should bow with respect!! I mean this!!

You deserve to be taken for a "ride".. to be wheeled around. Sit up as if you ARE THE QUEEN!!!

Then this horrible monster cannot truly rule nor ruin your special time with your daughter.

Keep us posted k?
Because I care, Jan

[weegot5kiz]

i agree call neuro tell him or her, bad timing but maybe if its medra pak he might start you on a second medra pak he want to script more and put you back to 60 or 40 mg a day if its reg prednisone. I hope you get to feeling better real soon

[D_HOLLAND]

Maybe you need a 5 day IVSM - predisone never did help Chris much.

[tovaxin_lab_rat]

I agree with some of the others. Oral taper never did anything for me following IVSM, in fact the few times I did do the oral pred, it only made me sick.

Call the doc that rx'd the oral pred and let him/her know what is going on with you ASAP. They need feedback if they are to know how to treat you.

Good luck with the college orientation...stay plenty hydrated. Sounds like you're going to need it.

Keep us all posted, we care.

[Twinkletoes]

Wondering how you are feeling today, Friend. Sending hugs for you!