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07-26-2008, 05:27 PM
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Elder
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ok, after many pokes, prods, and tests by several special MDs. it has been determined that I DO NOT have primary sjogrens. The RA MD was more than premature in her zeal to provide me with a sjogrens dx. The MS MD said i have PRIMARY MS, RRMS. NOT sjogrens, and he proceeded to take a bite out of the other md for trying to drag me off my path. He said they work very hard to provide a dx, and frequently keep people ON limbo isle till they can prove or disprove MS, and he didnt hand me that dx lightly.
So, IF and thats a big IF I have secondary sjogrens, it doesnt matter if I have that lip biopsy or not, it wont change my treatment. it wont matter. I can still be treated for my poor old dry eyes without interfering with my dx. My MRI shows 2 new non enhanced lesions and 2 new enhanced lesions. I was a run away train before and was collecting lesions like a kid collects baseball cards. So, this is a slow down for me. I am to stay on copaxone for another 6 months and we will re eval from there. it appears as though the C is starting to do its job. took forever with me. Thanks for all the support.
__________________
RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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| "Thanks for this!" says: | AfterMyNap (07-26-2008), Bannet (07-26-2008), barb02 (07-26-2008), Bearygood (07-26-2008), Debbie D (07-28-2008), dmplaura (07-26-2008), ewizabeth (07-26-2008), FinLady (07-27-2008), GladysD (07-26-2008), hurtsobad73 (07-26-2008), Jodylee (07-27-2008), MSacorn (07-26-2008), SallyC (07-26-2008), sugarboo (07-27-2008), Twinkletoes (07-27-2008), weeble (07-27-2008), weegot5kiz (07-26-2008) |
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07-26-2008, 05:33 PM
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Member
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So glad to hear you have a dx. Maybe not the best one, but no doubt you feel a little relieved knowing exactly what you are dealing with.
It gives those of us in "limbo land" so encouragement (if that is what you want to call it). I go see my neurologist (he is an MS specialist) in August and I am hoping to get this mess cleared up. (((((((Hugs to you for all that you have gone through.)))))) Missy
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"Cool, never goes out of style" - The King, Elvis Presley Chronic Fatigue Syndrome '97, Chronic Sinusitis '97, Chronic Pain '04-present, Degenerative Disc Disease '86, Depression '88, Fibromyalgia '00, RLS+PLMD '04, Severe IBS '05 Non-Epileptic Seizure Disorder '08 |
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| "Thanks for this!" says: | Dejibo (07-27-2008) |
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07-26-2008, 05:35 PM
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Elder
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Support is yours.
Hey, were you near the tornado??
__________________
* * * **My flesh and my heart may fail, but God is the strength of my heart and my portion forever. (Psalm 73:26) |
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| "Thanks for this!" says: | Dejibo (07-27-2008) |
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07-26-2008, 05:45 PM
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Wise Elder
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I am not sure if I should say congrats or not. So, I'll just say I am glad you have some answers now and wont be driven off the path.
__________________
. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt |
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07-26-2008, 05:51 PM
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Member
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Glad to hear that you've got some answers and your health is stabilizing!
Not glad to hear that it's MS, but what can ya do? 
__________________
. |
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| "Thanks for this!" says: | Dejibo (07-27-2008), weegot5kiz (07-26-2008) |
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07-26-2008, 06:07 PM
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Magnate
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Finally some solid answers! And grats on the Copaxone working!
__________________
2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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07-26-2008, 06:42 PM
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In Remembrance
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Finally, a Doc with some gutts...Congrats on the Copaxone working.....that is good news.
__________________
~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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| "Thanks for this!" says: | Dejibo (07-27-2008) |
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07-26-2008, 06:44 PM
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Member
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Glad you're getting definitive answers. That's reason enough to feel good!
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| "Thanks for this!" says: | Dejibo (07-27-2008) |
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07-26-2008, 07:25 PM
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Wise Elder
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Congratulations... right?
Has anyone taught her the secret handshake yet?
__________________
—Cindy For every day I choose to play, I set aside a day to pay. —AMN "Sometimes plastic wrap just won't cling, no matter how much money you put in the meter." —From the Book of True Wizdom |
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07-26-2008, 07:42 PM
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Magnate
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Congrats on the Dx! It is good to have someone tell you it is all in your head...so to speak..you know what I mean. MS..that is...a Dx...I mean...
__________________
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| "Thanks for this!" says: | Dejibo (07-27-2008) |
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I have MS!
Linear Mode
