Parkinson's Disease Tulip


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Old 10-30-2006, 03:52 PM #1
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Default a poll on symptoms

To what extent would this description of a different disease (to be revealed later) apply to you during an "off" period? Not all of them apply even in the actual condition so don't think of it as a comprehensive listing. For example, mine might include ABCDEGHIMOP

Patients first
-A- lose their alertness, then their
-B- muscle strength and
-C- coordination.
-D- Thinking grows fuzzy, and finally the patient becomes so tired that he
-E-becomes "zombie-like,"

Additional symptoms include

-F-headaches,
-G-double vision,
-H-staggering or inability to walk,
-I-a craving for salt and/or sweets,
-J-abdominal distress,
-K-chronic colitis,
-L-ringing in the ears,
-M-unusual patterns in the frequency of urination,
-N-skin eruptions and inflammations,
-O-pain in the neck and shoulder muscles,
-P-memory problems, and
-Q-sudden and excessive sweating.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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Old 10-30-2006, 04:08 PM #2
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ABCDHIMOPQ for me.

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Old 10-30-2006, 05:21 PM #3
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Default A few.

And none of them strongly felt: C - H - I - O

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Old 10-30-2006, 09:42 PM #4
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Default

For moi:

A-B-C-D (sometimes E)

H-J-L-M-O-Q

I thought I was the only person with ringing in my ears! (It drives me crazy!)

Peggy
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Old 10-30-2006, 09:46 PM #5
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Default not necessarily in that order

BCHIMOQ ... and others not mentioned ... sometimes

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Old 10-30-2006, 10:13 PM #6
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Default Abcdimopq

ABCDIMOPQ





Robert
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Old 10-30-2006, 10:52 PM #7
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Just when Off...A B C D F H L O P Q

L is actually 100% of the time, so it may not count...I also have two other hearing conditions.
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You're alive. Do something. The directive in life, the moral imperative was so uncomplicated. It could be expressed in single words, not complete sentences. It sounded like this: Look. Listen. Choose. Act. ~~Barbara Hall

I long to accomplish a great and noble tasks, but it is my chief duty to accomplish humble tasks as though they were great and noble. The world is moved along, not only by the mighty shoves of its heroes, but also by the aggregate of the tiny pushes of each honest worker. ~~Helen Keller
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Old 10-30-2006, 10:59 PM #8
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Default some constants.

All list C and O. -
All but Ibken and I list A and D. -
all but I list B, -
everett is alone on E and G
All but Peggy list I,
Peggy is alone on J and L
All but Rd42 list H
All but I list M
All but Peggy, Ibken and I list P
All but everett and I list Q

Too tired to go to bed, so I'm fiddling. I don't know what this break down shows/proves if anything, it was just interesting to see how much or little we had in common. I'm also too tired to double check, so I apologize for possible errors.

birte

Last edited by BEMM; 10-30-2006 at 11:06 PM. Reason: sorry you are not included, Carolyn - your post came after I was done.
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Old 10-31-2006, 12:52 AM #9
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Default Symptons

Hi Rick,
I can only put A,C and H.
Your C does not really describe my walking problems, I don't stagger, I'm just unable to move my legs to walk. i shuffle. On D and E, my mind is the best part of me. I have a memory like an elephant, and don't have to look up numbers like visa card, phone numbers etc
You don't have "propensity to fall"
I am falling repeatedly, and i am steadily getting problems as a result.
You know I have got a dislocated shoulder joint, which docs say is untreatable. I have now aded a broken finger.
Suggest you add falling to symptons
Also, it would be interesting to add Number of years of PD, 15 years for me.
Best wishes
Ron
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Old 10-31-2006, 01:03 AM #10
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ACDIOPQ Am very curious as to what other disease you are referring to.
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