[volada]

have had so many surreal and odd and painful experiences since this ms journey began--the only people i have known in my life that i have known with ms were/are severely disabled--but i have now met people living with MA who are working the obama campaign, people who are federal workers like me...my perspective has obviously changed...it is manageable but it does suck! and i am thankful every day that those who came before me are so helpful and open about their lives..

however, i remain committed to making a difference--did the ms walk--raised a bunch of $$$, got some congress people to join the ms network--but still trying to find the right outlet as my energy is still impacted...

what has been surprising is a lot of the books my good friend sent to help ease the transition really made me mad and scared and upset--i know she meant well but the content of some of the books meant to help had the impact of making me super scared

can't say i am totally transformed but i am sure much more adjusted to this major kick in the *****$$ss get a shot and feel like crap once a week--weird disease...and this forum has surely helped....

the advice and insight has been instrumental in helping me live fully, ask my neuro the right questions, enjoy a vacation (BERMUDA ROCKS!) and get those nasty freakin shots....

things i'm still working on--dancing more--(knees are numb a lot--stiffness is weird but workin on it!)

laughing more and just enjoying this journey---odd and tingly as it can be...

[NurseNancy]

hi volada,

it sounds like you're making an inspired journey with your MS.
it does take a while to wrap your head around it and feel more comfortable with your new body.

i admire you for being so proactive, and for staying active yourself.

i was dx'd in '03. had to stop working in '05 but i'm still independent and driving. the hardest thing for me was to learn how to really listen to my body and stop when it said stop. pushing past limits only makes things worse.

good luck to you. hope to see more of your posts.