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08-19-2008, 04:22 PM
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Junior Member
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My doctor wants me to go to Vanderbuilt MS Clinic to see if Tysabri is right for me. Question: What does that involve? How many are taken it and seen a difference? Reason she wants to try this is because my flare ups are happening very often and she thinks this will help more than rebif. I have read some on Tysabri & it scares me to death about PML.
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08-19-2008, 07:30 PM
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Member
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The risk from PML is extremely low, less than 1 in 15,000. So low that it is almost not an issue.
__________________
Bill SCUBA, the true meaning of Life San Francisco Maru 2009 USS Monitor 1996, 1997, 1999 Andrea Doria 1996, 1998 USS Wilkes Barre 1991 |
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08-19-2008, 10:37 PM
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Junior Member
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Quote:
That said, I have had 13 infusions of Tysabri. I feel like I have my life back. At the same time, I am watching the latest PML developments closely. If you are considering Tysabri you should decide if you feel the risk of continued MS progreession outweighs the chance of PML. For me, it does. Benefit vs risk. Good luck. Katty |
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08-19-2008, 10:59 PM
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Magnate
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Come on up to the top of the page and jump right in to the Tysabri thread! There's loads of information from lots of people who are on it!
 17 infusions here and I wouldn't give it up!
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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08-19-2008, 11:21 PM
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Elder
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I get my 16th infusion on Friday.
No problems here, and I won't give it up either. I've had totally unexpected improvements.
__________________
Wiz Turn Left at the next election. . RRMS DX 01/28/03 Started Copaxone again on 12/09/09 Last edited by ewizabeth; 08-20-2008 at 11:02 PM. |
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