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08-28-2008, 10:13 PM | #1 | |||
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Senior Member
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Many of you know Tom Isaacs. He's one heck of an advocate, and they already have a video. AND Europe only has one big organization!
synopsis: The campaign was launched at the 12th Congress of the European Federation of Neurological Societies (EFNS) in Madrid where delegates heard from EPDA representatives and watched a series of emotive short films featuring people with Parkinson's battling with everyday tasks such as shopping and crossing the road. The campaign, 'Parkinson's is visible, make it livable', is the first step towards eradicating inequalities in care and treatment access across Europe and a summit meeting is scheduled to take place in Brussels next year where MEPs will discuss the practical steps required to improve management of the disease. Campaigner, Tom Isaacs (40), who has lived with Parkinson's disease for 12 years, commented at the event, "It always amazes me how Parkinson's is so visible socially and yet seemingly invisible to society. This is a ruthless condition and help is needed throughout Europe. This EPDA initiative is crucial. We need to increase understanding. We need to raise the profile. We need people not just to see, but to act." read full article here: http://www.medicalnewstoday.com/articles/119310.php and the video: http://www.parkinsonsdecisionaid.eu....2008/video.asp |
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