[BobbyB]

TEAM IPLEX
PALS Go To Washington D.C.

Dear Brothers and Sisters,

We are asking for your assistance in this David vs. Goliath battle against the forces that have denied PALS (patients with ALS) access to the therapeutic Iplex.

Team Iplex has decided to bring our case to Washington, DC. We are in the process of organizing & coordinating a peaceful demonstration to protest and create awareness of this particular travesty of justice. We have decided to expose the triumvirate of Genentech/Tercica/Insmed and their official & immoral philosophy of profits over human life.

What we are asking is that you join us on our 11/11/08 peaceful protest in Washington, DC. As we all know, there is strength in numbers. With your help and involvement, we will be able to apply the very much needed pressure, which will once and for all, gain the release access of Iplex into the hands of PALS.

After several attempts to get straight answers out of the principals in this patent dispute, we have slowly come to the realization that the triumvirate of Genentech/Tercica/Insmed does not care about our right to live. We believe the time to stop sitting by silently has come to an end.

What we will be demanding is that all three - Genentech/Tercica and Insmed - come to the table and develop an immediate agreement to facilitate a release of Iplex. All we want is the same opportunity that Genentech/Tercica/Ismed has given to PALS in Italy.
Better said, we want the same opportunity and chance at life as those that are dying and suffering from ALS in Italy. End of story!

The bottom line is that we can't continue to stand around waiting. Not with ALS!!! We've already tried asking; that simply doesn't work. It's time to start demanding our right to life, our right to a therapeutic. What Team Iplex is proposing has already been done successfully by Italian PALS. I say if we come up short in our mission, we try again in six months. The only way we can possibly lose is by giving up. Brothers and Sisters, how on earth do we possibly expect different results from the same methods? So at least for two or three days, let's get off the ALS forums and get together in Washington, DC. What have we got to lose?
Please help our effort to help ALL PALS obtain a therapeutic.

Sincerely,
Team Iplex
Please Contact One of the Team Leaders about the Details.

Andrea Vaughn, California
E-mail Address(es):
andyvaughn@roadrunner.com

Debbie IPLEX, New Jersey
E-mail Address(es):
wgattoni@optonline.net.

Eddie Esparza, Chicago
E-mail Address(es):
e.esparza@comcast.net

Eric Fox, Michigan veterans)
E-mail Address(es):
info@ericfox.us

Guy IPLEX Chicagoland)
E-mail Address(es):
gderosa@aptude.com

John Citron IPLEX
E-mail Address(es):
Jcitron@krpartners.com

Kathy T work IPLEX
E-mail Address(es):
quiltersdreambatting@juno.com

Steve Byer, Wisconsin)
E-mail Address(es):
bsbyer@mhtc.net

Virginia Schoenfeld, Military Liaison)
E-mail Address(es):
ashjoh@cox.net

A placebo-controlled trial of insulin-like growth ...[Neurology. 1998] - PubMed Result.url (284b), Allow IPLEX to be distributed to ALS patients.url (201b), ALS patient denied access to drug.url (305b),
ALSTDI Forum - IPLEX- letter from italian forum.url (251b),
Beneficial effects of intrathecal IGF-1 administra...[Neurol Res. 2005] - PubMed Result.url (286b),
chicagoreader.comfeaturesstoriesourtown080717.url (287b), Director Eva L. Feldman, M.D., Ph.D..url (197b),
Effects of Insulin-Like Growth Factor-1Binding Protein-3 Complex on Muscle Atrophy in Rats.url (213b),
Efficacy and safety of mecasermin rinfabate. [Expert Opin Biol Ther. 2006] - PubMed Result.url (250b),
Glycosaminoglycans co-administration enhance insul...[Int J Dev Neurosci. 2000 Jul-Aug] - PubMed Result.url (566b),
Growth factor stimulates rapid extension of key motor neurons in brain.url (296b), Growth of spinal nerves is improved [Archive] - CareCure Forums.url (277b),
IGF-1 Role Adds to Understanding of Nerve Cell Development and, Perhaps, Repair.url (221b), IGF-I specifically enhances axon outgrowth of corticospinal motor neurons - Nature Neuroscience.url (274b),
INSM2007.Support.for.iplex.url (219b),
INSM-Court.Documents.url (205b),
INSMCourtDocuments.url (205b),
Insmed Presents Positive IPLEX(TM) Data At ENDO 2006 - Health - redOrbit.url (418b), Insmed Provides Update On IPLEX(TM) Expanded Access Program In Italy For The Treatment Of Amyotrophic Lateral Sclerosis.url (4KB),
Insmed reports positive results for Iplex in HARS - Pharmaceutical Business Review.url (327b), Insulin-like growth factor delivery across the blo...[Chemotherapy. 2006] - PubMed Result.url (286b),
Insulin-Like Growth Factor System in Amyotrophic Lateral Sclerosis.url (332b),
Insulin-like growth factor-I for the treatment of amyotrophic lateral sclerosis - Amyotrophic Lateral Sclerosis.url (354b),
Iplex (Mecasermin Rinfabate [rDNA origin] Injection) clinical pharmacology - prescription drugs and medications at RxList.url (259b),
Ipsen, an innovation driven international specialty pharmaceutical group.url (363b),
MyotonicDystrophy Message Hello Its me im back.url (316b),
Recombinant human insulin-like growth factor I (rh...[Cochrane Database Syst Rev. 2002] - PubMed Result.url (286b),
Recombinant human insulin-like growth factor I (rhIGF-I) for amyotrophic lateral sclerosismotor neuron disease..url (686b),
Retrograde viral delivery of IGF-1 prolongs surviv...[Science. 2003] - PubMed Result.url (286b), Retrograde Viral Delivery of IGF-1 Prolongs Survival in a Mouse ALS Model -- Kaspar et al. 301 (5634) 839 -- Science.url (272b),
rhIGF-IrhIGFBP-3) In Myotonic Dystrophy.url (377b),
Statement Regarding Requests to Make IPLEX.url (177b),
Team Iplex Web Site - Give-Us-Iplex.Blog.com.url (2KB),
Tercica — On the Horizon.url (199b),
The Insulin-Like Growth Factor System and Its Pleiotropic Functions in Brain -- Russo et al. 26 (7) 916 -- Endocrine Reviews.url (211b),
Therapeutic benefit of intrathecal injection of in...[J Neurol Sci. 2005] - PubMed Result.url (608b), Translated version of http--www.carlobruno.it-.url (850b), www.indestructiblefilm.com.url (171b),
Yahoo! Message Boards - Insmed Incorporated - Physician Request for a Single Patient IND for Compassionate or Emergency Use.url (598b),
Yahoo! Message Boards - Insmed Incorporated - Re Class-action lawsuit ......url (444b)