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Old 12-20-2008, 06:38 PM #1
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Default Good and Bad

The good news is that I had IVSM this past week, and the ON eye pain, blurriness and focusing problems are almost gone.

The bad news is that I've developed a tremor in my head, arms and hands, and now my legs. It's nearly impossible to control my hand movements now, and it's affecting my walking.

I was wondering if any of you who have this are on meds for it, and if you're having any good results with the meds. My doctor increased my Baclofen, in fact he doubled the dose yesterday to 20 mg three times a day. I'm also taking Klonopin, but at a low dose. I'm having bad muscle spasms at night, and my doctor said the increase in Baclofen may help control the spasms and the tremor.

The tremor is scaring me because of the fact that it has gotten so prominent.

Thanks for any help and information.
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Old 12-20-2008, 08:51 PM #2
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((((((((((((MaryAnn))))))))))))
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Old 12-21-2008, 02:38 AM #3
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I don't know what to say about the tremors. I do hope they pass, or get under control to a point.
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Old 12-21-2008, 06:18 AM #4
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I am getting the leg issues at night....but dont know on the other..
but wanted to give you great BIG HUGSSSS and hoping it all slows up for you soon....hugss,sarah
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Old 12-22-2008, 08:45 AM #5
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I posted this to three other MS forums, and someone on one of those told me about using weights. She has tremors so that it's hard to eat, and said she uses a certain kind of specially made weighted cutlery. I looked them up. The handles are weighted and some sort of rubberized material so that they can be gripped easier than regular silverware.

This person also said that she wears wrist and ankle weights a lot of the time, and that the weights help with her tremors. I found that suggestion also on the NMSS website.

I found all of these items on Amazon.com, and I'm going to make the order today. I'm going to order a weighted teaspoon, tablespoon, and fork. I'm ordering Bell Fitness 3-lb Soft Touch weights. They got the best reviews and seem easiest to put on and wear.

If these items will help in place of more meds, I'm sure willing to give them a try.
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Old 12-22-2008, 08:58 AM #6
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I have tremors from both the MS and essential tremors. I can't tell which is which but the neuro can during a neuro exam. The tremors vary throughout the day and from day to day.

I started taking Neurontin about 5 years ago for nerve pain. To my surprise, the Neurontin helped with the tremors as when I started taking it the tremors got so much better.
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Old 12-22-2008, 01:13 PM #7
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Tkrik: I'm on Neurontin 600 mg twice a day. At one time I took 600 mg three times a day, but I didn't like the way it made me feel. I had no saliva in my mouth, plus it left me feeling dopey.

I'm glad you got some help from it.
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Old 12-23-2008, 01:39 PM #8
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Weighted cutlery? Wow, that is a cool idea! I'd have never thought of it (nor had I heard of it before).
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Old 12-23-2008, 02:58 PM #9
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Quote:
Originally Posted by dmplaura View Post
Weighted cutlery? Wow, that is a cool idea! I'd have never thought of it (nor had I heard of it before).
I ordered weighted cutlery from Life Solutions Plus today. I'll be getting a rocking knife, a fork, teaspoon, and a spoon with a deeper bowl and rounded edges, which I think is called a souper spoon.

Anything that will help.
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Old 12-23-2008, 03:37 PM #10
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I'm so glad to hear that the IVSM has taken some of your blurriness and ON pain away but so sorry to hear about the tremors that you are having .

I don't have MS but I do get a lot of spasms and tremors and my nanan had spasms also (she had progressive MS). My spasms are Myoclonic Spasms which I believe (but I could be wrong), you can also get with MS. I have tried so many medications to try and get the spasms to stop but nothing has helped me that much.

One of the meds that really helped my nanan with the spasms and jerks from her MS was Keppra and Baclofen. My Neurologist suggested Keppra to me but because of my age (13), he said that the side-effects could be too much and the med could interact with certain hormones.

I hope you get the tremors under control real soon and am keeping you in my thoughts.
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