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Old 01-06-2009, 03:25 PM #1
Pretzel Pretzel is offline
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I am sorry that I did not introduce myself in my previous post. I have had MS for 20+ years and am in a wheelchair 24/7, but my most troubling symptom is the nerve pain in my left arm. I have been on numerous medications and have been to 3 pain management specialists and still the pain persists.
My friend has suggested that I explore Dr. Garvey's treatments in Florida. I am wondering if anyone has heard/seen him. Any response would be appreciated.

Georgia
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Old 01-06-2009, 08:08 PM #2
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Welcome to NeuroTalk, Pretz....Happy to have you here..

I don't happen to suffer from chronic MS nerve pain, but many here do and may be able to answer your question. I have had nerve pain, so I know it sucks bigtime.

Come on in and settle in with your new Family.....we are all here for each other..
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Old 01-06-2009, 09:53 PM #3
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Welcome to NT Pretzel!
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Old 01-06-2009, 11:31 PM #4
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Hi Georgia,
Welcome to NT. I have permanent nerve pain from MS, and also from getting hit in the rear of a car I was riding in. We were stopped at a red light many years ago. Lower back pain.

I have tried every legal drug I was prescribed for pain, used machines at PT and exercise. I also had deep massages, heat and sound waves, shots and the TENS machine. Sometimes, you get lucky and find something that works. I haven't. I just try to ignore it so my mind doesn't concentrate on it all day. Trust me this is not just a headache in intensity, it is a 6 to 10 on the scale of pain or sometimes I say 20+.

Ever find when you are real busy with activities or major thoughts, or involved in a good book or movie that the pain is less? If you can divert your mind to other things, pleasant memories, etc., it might help. The more I think of my pain, the more it intensifies. I think they call it, mind over matter.

I am sorry you are experiencing this pain. I have not heard of the treatment doctor who mentioned. I hope you find relief. Do you have an electric chair or a manual? Is the arm pain/damage related to use? Arm pain could originate in the shoulder or neck too.
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Old 01-06-2009, 11:39 PM #5
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I just wanted to welcome you, Georgia. I wish I knew of something that would be helpful to your pain,but sadly,I don't. I do hope you feel better soon.
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Old 01-07-2009, 07:31 PM #6
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Welcome to NT. I suffer from neuropathic pain and have tried lyrica with horrid side effects. Doc has suggested neurontin.

Thus far, when I have a flare, IV solumedrol it works to lessen it!
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Old 01-07-2009, 07:36 PM #7
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Welcome to NT!
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Old 01-07-2009, 07:57 PM #8
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Hi Pretzel/Georgia and welcome to NT!

I don't suffer from nerve pain (much) but there are lots of folks here who do, but I wanted to welcome you just the same and I hope you can find answers here!
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Old 01-07-2009, 11:03 PM #9
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Welcome to NT!
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Old 01-09-2009, 11:59 AM #10
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Quote:
Originally Posted by Pretzel View Post
I am sorry that I did not introduce myself in my previous post. I have had MS for 20+ years and am in a wheelchair 24/7, but my most troubling symptom is the nerve pain in my left arm. I have been on numerous medications and have been to 3 pain management specialists and still the pain persists.
My friend has suggested that I explore Dr. Garvey's treatments in Florida. I am wondering if anyone has heard/seen him. Any response would be appreciated.

Georgia
Georgia: I have wicked nerve pain. It feels like fire under my skin. I heard someone describe it as acid on the skin. Mine not that bad, but it is enough to disturb your peace. It is a delicate balance. I am still working and am really trying not to file for disability, however between the pain and fatigue I am wondering how long I can maintain. After trying Neurotin and Naproxen, I started taking Tramadol. It is a mild narcotic, but I only take 100mg in the morning to get to work. I then use 600 mg of Ibuprofen two more times during the day and evening. I have found that keeps it at bay so I can work. Mine is bad in the morning. I find that it subsides if I rest. Give yourself as much as you can. You cannot run at the same speed you used to. The Tramadol is supposed to be addictive, but I have not had a problem. Try that regiment. I also go for Steriod infusions once a month and that has really helped. I am researching White willow bark, however I think I will be careful with that and the Tramadol and Solumedrol. Take care. I completely understand.
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