ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB.


advertisement
Reply
 
Thread Tools Display Modes
Old 11-20-2006, 08:10 PM #1
Twigs Twigs is offline
New Member
 
Join Date: Oct 2006
Posts: 4
15 yr Member
Twigs Twigs is offline
New Member
 
Join Date: Oct 2006
Posts: 4
15 yr Member
Default neck brace

Can anyone reccomend a neck brace for my friend who has lost all motor function except for speech and swallowing. She has tried the Philadelphia and the HeadMaster and they do not work well for her.

also, does anyone know any ways to prevent flection and extension? she is getting a wheelchair with a headrest this week.

thank you.

Last edited by Twigs; 11-20-2006 at 08:23 PM.
Twigs is offline   Reply With QuoteReply With Quote

advertisement
Old 11-21-2006, 07:59 PM #2
lisag lisag is offline
Member
 
Join Date: Oct 2006
Posts: 186
15 yr Member
lisag lisag is offline
Member
 
Join Date: Oct 2006
Posts: 186
15 yr Member
Default

Hi Twigs,
Maybe someone will respond who has a better idea...but have you checked out an MDA clinic to see if they could custom fit something..
Gary used a clinic called the Brace Place..which was part of the MDA clinic for ALS here in town..they custom fit him with leg braces and hand splints..
But due to his trache did not really pursue the neck brace for long...he tried the headmaster as well before the trache ..and it did not work for him either..Lisa

Last edited by lisag; 11-21-2006 at 08:05 PM.
lisag is offline   Reply With QuoteReply With Quote
Old 11-27-2006, 07:18 PM #3
frogga's Avatar
frogga frogga is offline
Member
 
Join Date: Nov 2006
Location: UK
Posts: 830
15 yr Member
frogga frogga is offline
Member
frogga's Avatar
 
Join Date: Nov 2006
Location: UK
Posts: 830
15 yr Member
Default

Hey

I wear a neck brace alot of the time - it is a solid cervical collar called a Miami J brace - I have no ability to hold my head so it has worked very well, I also have an Otto Bock head rest which wraps around my head - but brace still needed for car/ bus etc...

I have been in it a year and it is far superior to either the Philly or the headmaster. I also have a semi rigid one but it's not much use!

hope this helps!

rosie xxxx
__________________
It's always darkest just before dawn... but smile and the world smiles with you, cry and you cry alone
frogga is offline   Reply With QuoteReply With Quote
Old 11-27-2006, 07:20 PM #4
frogga's Avatar
frogga frogga is offline
Member
 
Join Date: Nov 2006
Location: UK
Posts: 830
15 yr Member
frogga frogga is offline
Member
frogga's Avatar
 
Join Date: Nov 2006
Location: UK
Posts: 830
15 yr Member
Default

forgot to add - tilt and recline function on wheelchair with wrap around head rest makes a HUGE difference......rxxx
__________________
It's always darkest just before dawn... but smile and the world smiles with you, cry and you cry alone
frogga is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
My Son Broke His Neck -Where Do I Go for Help? nide44 Peripheral Neuropathy 88 11-18-2006 10:41 PM
Stiff Neck! Kathi49 Spinal Disorders & Back Pain 9 10-28-2006 07:33 AM
Repost: neck and shoulder problems rokemon Thoracic Outlet Syndrome 6 10-01-2006 10:07 PM
My sone Broke His Neck - Where Do I Go for Info & Help? nide44 Spinal Disorders & Back Pain 11 09-07-2006 09:42 AM


All times are GMT -5. The time now is 06:36 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.