[shalynn]

I've been dealing with some sort of neuropathy for five years. I've been pigeon holed as "possible MS" and that's what I have been continually tested for. But, after reading here, I'm wondering if I don't have a form of PN that may have some CNS components.

I have seen about 8 neuros, and I do finally have one who at least seems to care, yet I don't sense that she feels a dx is that important. We are watching and waiting. Meanwhile, I am starting to progress again.

I want to find a neuro who will look for answers. I'm about three hours from Indianapolis, three hours from St. Louis (would it be worth seeing someone there? I've read about specialists there), three hours from Nashville, and two from Louisville. So, does anyone have any suggestions.

Thanks again for all of your info and support.

[glenntaj]

--if you could get there, would be to check out the Neuromuscular Diseases Center at Washington University in St. Louis.

They are a major research center and have created very extensive databases of neural conditions, and they also engage in numerous clinical trials. See:

http://neuromuscular.wustl.edu/over/overview.html#nmgen

http://neuromuscular.wustl.edu/

[shalynn]

Originally Posted by glenntaj

--if you could get there, would be to check out the Neuromuscular Diseases Center at Washington University in St. Louis.

They are a major research center and have created very extensive databases of neural conditions, and they also engage in numerous clinical trials. See:

http://neuromuscular.wustl.edu/over/overview.html#nmgen

http://neuromuscular.wustl.edu/

Thanks, I believe that is the place I was thinking of. I'd love to hear about how they are with patients. I've been burned many times over the years, and I don't know if I'm up for that again.

I'll check out the links.

Thanks again.

[eekgame]

Shalynn It may not help, but in Terre Haute there is an orthopedic surgeon who did fantastic back surgery on me without complications. His name is Dr. Stephanian. He is on N. 9th st. I think. I would trust him to suggest a neurologists. ALso at the AP&S Clinic in Terre Haute, IN there is a neurologist who diagnosed a very rare stroke I had when my 6 other physicians wanted me to see a psychiatrist. He is on S. 4th St., but I am sorry his name escapes me at the moment. Hope this is of benefit eekgame

Originally Posted by shalynn

I've been dealing with some sort of neuropathy for five years. I've been pigeon holed as "possible MS" and that's what I have been continually tested for. But, after reading here, I'm wondering if I don't have a form of PN that may have some CNS components.

I have seen about 8 neuros, and I do finally have one who at least seems to care, yet I don't sense that she feels a dx is that important. We are watching and waiting. Meanwhile, I am starting to progress again.

I want to find a neuro who will look for answers. I'm about three hours from Indianapolis, three hours from St. Louis (would it be worth seeing someone there? I've read about specialists there), three hours from Nashville, and two from Louisville. So, does anyone have any suggestions.

Thanks again for all of your info and support.