[antonina]

I have been to Dr. Latov & his associates but would like to find a doc who can evaluate my PN or FMS as a 2nd opinion. Does anyone have a neuro in Manhattan who has helped & whom you see on an ongoing basis? If you'd rather not disclose his/her name online, please PM me. Thank you very much for your help.

[daniella]

I am not sure where in NY Melody lives who posts on here but it is somewhere in NY you may want to PM her. Good luck

[davidx]

Hi antonina-

One neuro to consider in NYC is Dr David Younger (212-535-4314). Like you I saw Dr Latov but am now currently being seen by Dr Younger. One thing to note is that he does not accept insurance.

Take care,
David

[nide44]

Latov is supposedly the end-all, be-all.....in today's neuropathy circles.
Is he associated with Cornell-Weill, in NY?
If not, go there for your 2nd opinion.
Or, take a car/bus ride south, to Baltimore and go to Johns Hopkins. I live in Balto.(and am treated @ Hopkins) and frequently take the bus, for a day trip (to see a show) to NYC.
Its only about 3 hrs away.

[glenntaj]

--either Dr. Latov's group (and you don't necessarily have to see him) at the Cornell Weill Center for Peripheral Neuropathy (Madison Avenue and East 60th Street in Manhattan, 212-888-8516) of the Neurology Department at New York Methodist Hospital in Park Slope Brooklyn (which is where Melody's husband goes--the chief there, Dr. Salgado, is a good friend, and he has good staff that trained with Latov's group, so they're familiar with peripheral issues--718-246-8614).

My name can be dropped at both places, if need be.

[antonina]

Thanks for the help Bob, Glenn & Davidx.

Bob,

I would love to see someone @ Hopkins. The major obstacle is getting there. I would have to go w/ someone since I can barely cross the street by myself using a walker. Do you make the trip to NYC by yourself?

Glenn,

I'm glad you've had good experiences w/ Latov and his associates. I have not been so lucky. But I will try to schedule an app't w/ Dr. Salgado.

David,

It's OK that Dr. Younger doesn't accept insurance. If he's good, it doesn't matter. I'd just like someone who's thorough & competent & with whom I can communicate.

[daniella]

Could you possibly send your records to Hopkins before making the trip? I have done that before for things that are not so close to see if they feel they can help me. I am going to resend my records to Mayo again I think. Then you can work on finding someone to get you there. Good luck. A good doctor is like a gift I know

[antonina]

Originally Posted by daniella

Could you possibly send your records to Hopkins before making the trip? I have done that before for things that are not so close to see if they feel they can help me. I am going to resend my records to Mayo again I think. Then you can work on finding someone to get you there. Good luck. A good doctor is like a gift I know

So you and I were rejected by Mayo. They decreed that my PN is too longstanding and they didn't feel they could "offer...an appointment at this time." The other impediment is that I live quite a distance from their 3 sites and any trip would be a monumental undertaking.

If I went out of state, my best option would be Hopkins since a 3 hour trip is do-able. I think that sending my records first would be helpful.

[nide44]

Originally Posted by antonina

I would love to see someone @ Hopkins. The major obstacle is getting there. I would have to go w/ someone since I can barely cross the street by myself using a walker. Do you make the trip to NYC by yourself?

I could, but I usually go with someone (my wife and one of my kids)
cause its more fun.
I slow them down when walking, but I usually can catch up if they
wait a bit for me at crosswalks.
We take cabs, & I like to ride the subway when we go farther uptown.
There's a bus that leaves Greyhound near home (we get on-line tickets for cheap!!) approx on the hour or 1/2 hour, and one that comes back approx the same- so we can leave at 7:00, be in NY by 10-10:30, get 1/2 price tickets at TKTS in Times Square, have lunch, see a 2:00 matinee (over by 5:00), get some sandwiches for the ride home, catch a bus at 6:00 or 6:30 pm and be back by 10:00 pm.
Sometimes we stay over (weekends) for a day, or so (Expedia, etc- has discount hotel rates), at the Madison Hotel off Broadway. Then we can see a Fri nite show, Sat matinee, Sat nite, & Sun matinee- then come home.
We do Shopping, Greenwich Village, Chinatown, Soho, the Metropolitan Museum of Art, etc..... too. It becomes a bit tiring to do that, & we only do the 3 day trip once (I love it in Dec. before Xmas) or twice a year.

[antonina]

Originally Posted by nide44

I could, but I usually go with someone (my wife and one of my kids)
cause its more fun.
I slow them down when walking, but I usually can catch up if they
wait a bit for me at crosswalks.
We take cabs, & I like to ride the subway when we go farther uptown.
There's a bus that leaves Greyhound near home (we get on-line tickets for cheap!!) approx on the hour or 1/2 hour, and one that comes back approx the same- so we can leave at 7:00, be in NY by 10-10:30, get 1/2 price tickets at TKTS in Times Square, have lunch, see a 2:00 matinee (over by 5:00), get some sandwiches for the ride home, catch a bus at 6:00 or 6:30 pm and be back by 10:00 pm.
Sometimes we stay over (weekends) for a day, or so (Expedia, etc- has discount hotel rates), at the Madison Hotel off Broadway. Then we can see a Fri nite show, Sat matinee, Sat nite, & Sun matinee- then come home.
We do Shopping, Greenwich Village, Chinatown, Soho, the Metropolitan Museum of Art, etc..... too. It becomes a bit tiring to do that, & we only do the 3 day trip once (I love it in Dec. before Xmas) or twice a year.

Hi Bob,

Sounds like you are much more mobile than I am. And that you have a great time in NYC when you get here.

Do you need any help climbing stairs, especially navigating the subway? I've stopped using it and rely mostly on cabs or Access A Ride which are less scary. Do you use a walker or any walking aid?
My legs are so unsteady & weak that I use a walker whenever I go out.

I like your can-do spirit!! Keep up that adventurous outlook!