[jeanb]

Did you know that fewer than 1% of people with PD participate in clinical trials? That is scary because all new treatments must go through clinical trials before they get to us. Scientists are having trouble finding people to join trials. And the longer it takes to find participants, the longer it takes for us to get new treatments.

You can find listings of clinical trials on:
clinicaltrials.gov
and
PDTrials.org

And you can read all about clinical trials here:
PDPipeline.org

And yes, I have participated in clinical trials -- 5 in the past 3 years, 2 are on-going. I'm doing my part - how about you?

[lou_lou]

if Amgen had not hurt the ones who did participate, we may have been
been closer to a cure -
I am advising all my friends with PD, MS, Cancer etc. to quit playing the
same ole game, then maybe the greedy ones will wake up, and see we are not
as stupid to participate in more than just an extended "TRIAL" but an actual
pre-existing CURE... ie: Dr. Levesque's adult stem cell transplantation with the GDNF TRIAL being re -opened?

perhaps it is Time To Shoot The Messenger:ie: BIG PHARMA etc.

[jeanb]

I agree totally about Amgen and am a member of the group of advocates who has been fighting for it for years now.

But... in the mean time ... there is other good research going on and a breakthrough may come through different avenue.

[jeanb]

when everyone knows clinical trials are necessary, no one joins?

just wondering...