Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 07-18-2009, 02:26 AM #1
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Confused one side of face flushes?

I have one side of my face that flushes and is hot hot hot and then the other side of my face is cold?? What is this now?? So weird??? Maybe somewhere in my system I have a blockage>>
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Old 07-19-2009, 01:28 AM #2
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I have rsd in the right side of my face and every once in awhile the right side only turns bright red and it looks like someone drew a line right down the middle. You can put your hand a distance away and feel the heat radiating off my skin and I feel pain and burning, most of it in my cheekbone, like it's really deep. The left side is just normal feeling. With rsd, because it messes with every single part of our systems it can show itself in some pretty funky ways.

Hugs,

Karen
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Old 07-19-2009, 02:16 AM #3
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Quote:
Originally Posted by GalenaFaolan View Post
I have rsd in the right side of my face and every once in awhile the right side only turns bright red and it looks like someone drew a line right down the middle. You can put your hand a distance away and feel the heat radiating off my skin and I feel pain and burning, most of it in my cheekbone, like it's really deep. The left side is just normal feeling. With rsd, because it messes with every single part of our systems it can show itself in some pretty funky ways.

Hugs,

Karen

I thought I was crazy or had heart blockage or something like that. Who dx'd you for that in your face?.. I live in Arkansas and still looking for a rsd specialist close by or closer than Minnesota. I didn't think anyone would answer my question. thanks alot for answering me.. :~) The line right down the middle is exactly the way my face felt.. One side was cool and the other side felt like I was running a fever.. It seems like I have really went down hill just in the last month or so.. Heart rate off the charts blood pressure going up and down and now they have me going to send a nephrologist(kidney specialist) What next??
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Old 07-19-2009, 02:18 AM #4
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Default Where did your rsd start at??

Quote:
Originally Posted by GalenaFaolan View Post
I have rsd in the right side of my face and every once in awhile the right side only turns bright red and it looks like someone drew a line right down the middle. You can put your hand a distance away and feel the heat radiating off my skin and I feel pain and burning, most of it in my cheekbone, like it's really deep. The left side is just normal feeling. With rsd, because it messes with every single part of our systems it can show itself in some pretty funky ways.

Hugs,

Karen
I have only been dx'd since last sept.. Just wondering where your started at?? and how far along are u?? Thanks LIsa
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Old 07-19-2009, 04:29 PM #5
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My face has been doing this for 20 yrs, mainly when i get hot. its weird because you oversweat on one side and hair is dry on the other. when i taught school i used me as a science lesson for right brain left brain. It's embarassing more than anything. if it gets too hot i ice
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Old 07-19-2009, 09:28 PM #6
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Quote:
Originally Posted by SunshineGirl View Post
I have only been dx'd since last sept.. Just wondering where your started at?? and how far along are u?? Thanks LIsa
I got rsd in Feb 2003, over 6 years ago now from a broken kneecap I got a work from my knee saying hello, the hard way, to a broken handle. Except I didn't know the knee was broken until I had my first bone scan 5 months after rsd started. lol It was left knee/lower leg/foot and it quickly spread and it was in all four limbs by month 11. It spread from there into my back and face the last few years so full body now. I have a bladder thing from time to time that is not any kind of uti. I know exactly what rsd feels like so I knew what it was and my pain doc agreed it couldn't be anything else.

Hugs,

Karen
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Old 07-20-2009, 10:01 AM #7
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When I'm under severe stress, my neck and face will start to go totally red as well, I will get these awful red blotches. It's something that just happens and that I have no control over. And it's not as if it's a side-effect of meds, because I also had this when I wasn't yet diagnosed, when I wasn't on any pain meds yet.

This can happen during a car ride that takes too long, during a doctor's visit or check-up, when having tests done at the hospital, ... it's very unpredictable.
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Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 07-20-2009, 07:19 PM #8
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Yes it is unpredictably, and I notice I get it the last couple times when I am really tired and in alot of pain, Like we went on vacation and I had it happen both nights at dinner, like I turned an alarm clock on and it just started.
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Old 07-20-2009, 10:49 PM #9
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Whats also weird is one foot is hotter than the other,,my right foot[the worst of the two]gets colder than the other,,maybe from poor circulation that comes from vasomotor interuption from rsd ,but after activity[aqua jogging it turns red and gets hot,,stings and burns like a sunburn,,its not uncommon for one side to be a different temp on me,,CRPSBE is on the money with the stress,,that makes mine not only flare but spread,,,,I pray for a remission for this whole group,,i wish the gov would more activly look for a cure,,,,,,,,,,bobber,,,,,,,,,,,,
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Old 07-21-2009, 01:00 AM #10
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I get the blotchy skin too! I'm so glad I'm not the only one, although I'm sorry you have the same symptoms

It covers mainly my neck and upper body, but also goes on my face. It even happened when I was at the hospital about my heart problems last week and the Dr hadn't seen anything like it. They were giant red blotches and I felt so hot it was like I had my face in front of a heater. I don't have it constantly, but have had it happen quite often- first noticing it about 2 years ago.

So this is an RSD problem? Can anyone explain it?
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