Originally Posted by bmillerpony
that is the exact problem my 22mo daughter is having. It is all through g-tube but is staying undigested. When I tell the Dr. this he says that because she does great with breast milk or formula that it can't be her being allergic to the pediasure. She is covered in mucus and throws up can't take bolus feedings with the ped but formula she she clears up and is well and developes. We have been going through this for over 6mo were at times she was so sick i thought she was going to die. I have only connected this in the last 2 weeks although i told the dr. i thought this was a posability over 6mo ago. do you have any ideas i know someone her age needs more noutritionally than formula. can you tell me what was finally done for you. sorry about the rambling i am so excited to see my daughter well and need to know how to get the dr. to believe this IS the problem. I haven't seen her smile or laugh in so long till now and i just want it to keep going.
PLEASE give me any info you can we see him on friday
(((Hugs))) I'm sorry your daughter is having problems. Are you familiar with the allergy bucket theory? I don't have a good definition, but I can give you an example. Suppose you're allergic to cats and pine pollen. You can go visit your friend with the cat for an hour before you really need to leave the house. But, if it's pollen season, you can only stay for a half hour before you need to go. And, if you have a cold on top of that, you probably wouldn't bother visiting her at all. The idea is that you can handle so much of an allergen before you start having problems. If you throw in some other allergens, your bucket fills faster.
Anyway, if you go back to my first post on this thread (post #6), that's what I'm getting at with the ratio of whey to casein. Perhaps the extra casein in the pediasure is tipping the bucket for your daughter? There's not enough casein in the formula to fill her bucket? Of course, it could be a completely different ingredient in the Pediasure that's bothering her.
My son is not tubefed, so I don't have any experience with it. However, we've had a couple of recent discussions over on Brain Talk about blended food diets / blenderized diets for tube fed kids. That's one way to help your daughter get more nutrition in her diet with less worries about food allergies. If you're worried about dairy or any other allergens, you can leave it out of her diet.
My other suggestion is to try a different meal-replacer. (Sorry, I know Pediasure is not a formula...I'm drawing a blank at what to call it.) See if you can find a non-dairy-based meal replacer to try. In formulas, there are soy-based formulas as well as dairy-based. Unfortunately, soy is also pretty high on the allergen scale (one of the US top eight, just like dairy), but it might not be a problem for your daughter.
Hope this helps. I'll pop back in a few times to see if you have any questions for me. So... what did your doctor say?
Originally Posted by Abasaki
I'm sorry that no one has answered your question... This is an old thread and it doesn't appear that the people who started it haven't posted anywhere here on Neurotalk in months.
Hee! It says I haven't been here since Jan 6. But, you're right. I don't visit here very often any more.