Like what the baby whisperer teaches?

Ahh, ok.
I thought you meant that when he was really stressed he vocalized or rocked or tapped or something like that. A self-stimulatory behaviour or stereotypy. My son on autism spectrum used to have some of those behaviours when young but he also had a movement disorder so it was sometimes difficult to tell one from the other. My son used to get stressed very easily with tiny little changes in routine or other changes in the environment even. He still does actually and he's 24 LOL ~ If someone is 5 minutes late it's just so terrible.

I hope the tests all go well. He sure has a lot on his plate your little guy. You take care of yourself too. It'd be really good to get to the OT. He/she may have some ideas to help him and some advice for you.

Im not sure since Ive never heard of the baby whisperer lol Ill have to google that

Thanks so much to both of you for the well wishes and the conversation its so nice to have someone to speak with! Sorry it took so long to reply but me being me it took forever for me to realize i couldnt find the responces because there was a page 2 :/ ooooops lol.

We finally recieved the EEG results this monday, they came back normal which begs the question how they went from normal to slightly abnormal to normal again still waiting for answers on that one! His MRI is this Saturday so I'll make sure to keep ya'll posted.

When we saw the OT this past Monday she gave me a print out with terms and official observations and conclusions her diagnosis as far as the sensory aspect goes and she gave him some visual perception test which we will get results back from on this following Monday. Im still learning these terms as related to sensory issues goes but its written as sensory modulation disorder manifesting in over as well as under responsitivity and sensory seeking behaviors. As well as a sensory based motor disorder which effects motor planning/sequencing. She has also requested that he recieve OT at the school as well which will hopefully be a blessing.

We also saw PT at the same time as OT. His PT is adamant that his toe walking isnt physical or so hes thinking now and he doesnt catch him toe walking but as the PT said my son has i guess focused on not doing it while his PT is present. He still toe walks an awful lot at home tho.

Hes also having to attend a lactose intolerance testing this week which was just added along with a new gastro med.

Once again thank ya'll so much for letting me get everything out its so wonderful to have someone to talk with on these matters !

You may find the Carol Kranowitz book called The Out-of-Sync Child: Recognizing and Coping with Sensory Processing Disorder helpful.

Edited to add: I just found the link in the stickies. Chemar posted it in Children's Health : Useful Websites at the top of the forum here. http://out-of-sync-child.com/

Hi, whilst reading this two things concerned me: the toe walking problems and the myoclonic jerks. Has anyone mentioned the possibility of Dystonia? It is VERY rare in children and EXTREMELY hard to diagnose. This could be why no one has suggested it because many doctors don't know about the condition except Neurologists. You should do some research on it!

the term is self soothe, learning to calm one's self instead of needing outside input. Please consider celiac/gluten intolerance. good luck

Did he do this before he started on so many meds? I' m an adult and I'm prone to developing myoclonic jerks from some medications.

I hope you find some help or that he outgrows it as his nervous system matures.

judi