Chronic Pain Whatever the cause, support for managing long term or intractable pain.


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Old 03-19-2015, 01:57 PM #241
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Originally Posted by Diandra View Post
Eva,
Thanks for the reminder about aromatherapy at home. I had forgotten about that and it does help to calm/soothe your brain. What works for me is putting cinnamon in boiling water or lavender or peppermint oil.
My best to you,
Diandra
Diandra,
I miss the days when I could burn Incense Sticks in the house, for Meditation, Health and pleasure. Hopefully, they will return soon.

Dave.
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Old 03-19-2015, 02:07 PM #242
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Quote:
Originally Posted by Diandra View Post
Eva,
Thanks for the reminder about aromatherapy at home. I had forgotten about that and it does help to calm/soothe your brain. What works for me is putting cinnamon in boiling water or lavender or peppermint oil.
My best to you,
Diandra
i am so happy you gave it a try
awesome
if by any chance you eat fresh oranges and or lemon lime
use the skin that has the oils squeeze in a lite simmering
pot with your cinnamon
even drier sheets between your what i have quilted fitted barrier
and it be a soft smell while sleeping
wishing you better than your best day lately
love
me
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Old 08-11-2015, 05:38 AM #243
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Default The Lyrica taper

I thought I'd update on my taper from Lyrica, in case anyone else is interested in doing the same.

I was initially planning on dropping 12.5% of my dose every 10 days. When I wrote last (and first) time, I was 12 days in, and down to a 37.5mg AM and 75PM. I was too ambitious with this.

By 20/3 I was taking 37.5mg AM and 56.25PM. I started getting involuntary finger tremors (actually it looked more like playing air piano ), and bad vertigo. I can't say if the vertigo was linked or not, but I've never had it before.

At this stage I slowed things right down. I spent 6 weeks on that dose, then dropped to 37.5mg AM and PM.

On 25/6, without thinking I dropped down to 25mg for both AM and PM at the same time. No tremors, but a little vertigo. On 30/07/15 I dropped to 18.75mg AM and 25mg PM

I have found that dropping slow is definitely the way to go. Even though I'm getting close and tempted to just stop, I'll hang in there and keep going slow.

Rather than sticking to a calendar, I have found that the best way to go is to stick to one level, and then when my head starts feeling fuzzy again, I drop down again. Each time I drop a level, my head feels clearer.

The all over muscle pain hasn't gone, but I'm hoping that it something that will clear up after this poison is out of my system. At this stage, that won't be a while, but at least I feel like I'm in control of my brain again.

Good luck,

Danjia
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Old 08-12-2015, 07:33 PM #244
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Default Well done

Hang in there, you have a good titration technique going and it is obviously working for you. Thanks for the update.

Quote:
Originally Posted by Danjia View Post
I thought I'd update on my taper from Lyrica, in case anyone else is interested in doing the same.

I was initially planning on dropping 12.5% of my dose every 10 days. When I wrote last (and first) time, I was 12 days in, and down to a 37.5mg AM and 75PM. I was too ambitious with this.

By 20/3 I was taking 37.5mg AM and 56.25PM. I started getting involuntary finger tremors (actually it looked more like playing air piano ), and bad vertigo. I can't say if the vertigo was linked or not, but I've never had it before.

At this stage I slowed things right down. I spent 6 weeks on that dose, then dropped to 37.5mg AM and PM.

On 25/6, without thinking I dropped down to 25mg for both AM and PM at the same time. No tremors, but a little vertigo. On 30/07/15 I dropped to 18.75mg AM and 25mg PM

I have found that dropping slow is definitely the way to go. Even though I'm getting close and tempted to just stop, I'll hang in there and keep going slow.

Rather than sticking to a calendar, I have found that the best way to go is to stick to one level, and then when my head starts feeling fuzzy again, I drop down again. Each time I drop a level, my head feels clearer.

The all over muscle pain hasn't gone, but I'm hoping that it something that will clear up after this poison is out of my system. At this stage, that won't be a while, but at least I feel like I'm in control of my brain again.

Good luck,

Danjia
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Old 08-12-2015, 08:07 PM #245
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Default Thanks Pamela

Hi Pamela,

Yes, slow and steady seems to be the way to go!

Getting sick of mixing up the doses, but after reading about people suddenly stopping, it seems like a small price to pay.

Thanks for the encouragement x

Danjia

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Originally Posted by PamelaJune View Post
Hang in there, you have a good titration technique going and it is obviously working for you. Thanks for the update.
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Old 09-06-2015, 12:13 PM #246
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Default Down The Rabbit Hole

Hi there

I am a new member, though I have visited this site and this thread several times for advice, thank you to all who have posted. I have been on Lyrica for some time (maybe two years now? Before that I was on Neurontin) for radicular neuropathy down my leg and into my foot following a back and hip injury (repetitive stress from teaching preschool). I am on 450mg/day. I have tried to get off the Lyrica many times in the past year and it has been quite the roller coaster. Most of the time I have tried going off it has been due to not getting prescriptions refilled for various insurance BS reasons as I know many of you can relate to. The side effects and withdrawal symptoms are almost too numerous to list, essentially I literally feel as though I am dying when I try to go off, and I am depressed, disconnected and confused on it. I have a plan to try and taper off 75mg/month until I am free of it. My doctor, the only one I am able to see after months of no doctor, refuses to assist with the side effects, such as prescribing an SSRI, and as it is workers comp my primary care doc will also not help, so I am on my own. It is a scary drug; I have been on and off many meds throughout my life but none compare to the roller coaster that is Lyrica. I mostly take over the counter meds to help, such as Benadryl for the withdrawal (a huge help!), but it is scary how much this drug messes with my mind, my balance, my life. Reality and dreams seem intermingled, my pain becomes overwhelming, and I feel that I am slowly losing touch with who I am. I do not work or even drive, and though initially I blamed my injury for that, I now think a lot of it has to do with the Lyrica. I appreciate any advice and/or support while going through this. I am scared, though my life has been anything but easy, this is the hardest thing I have ever gone through. My docs' main suggestion is to switch to Topomax, but that just seems like more of the same problem. My goal is to be med free, though last time I was I was bedridden with pain. I just want my brain and my life back. I have lots of gaps in my memory, I lose time frequently, like a black out with no recognition of what happened. It is intensified with alcohol (and much easier to binge drink on it) so I will be avoiding that completely until I am off the meds, and maybe even after. I wish I had figured out the connection sooner, but many of the problems with Lyrica took some time for me to be aware of. My vision comes and goes, has anyone found anything that helps with the vision probs associated with Lyrica? I know many of you are suffering through similar issues, and I am grateful for this website. Here's hoping we all make it though this.

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Old 02-08-2016, 04:32 AM #247
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Quote:
Originally Posted by Juicyfruit View Post
Hi
I read all the thread and thought I would my experience. My consultant suggested I take 75mg of lyrics (pregabalin) for restless legs syndrome. It's not licensed for this in the uk but I trusted him despite reacting previously to sari meds and other psych drugs. I started off on 25 mg but had to stop after 2 weeks because of side effects inckudibg migraine and changed vision. The first few days of withdrawal seemed ok but in my second week the headaches returned with a vengeance. I have felt very vague, tight chested, short of breath and sick. On day 14 I suffered a huge panic attack out of the blue and am feeling really very anxious for several periods during the day. I went to see my gp about the side effects and they told me they could last up to 6 weeks. I have to say that this drug appears to be far stronger than you would think even at lower doses and even though I have only been on it for 2 weeks it really has messed with my head chemicals as my moods are very changeable.

I am doing All I can to calmly accept the symptoms as they are and do plent of meditation and relaxation to get my anxiety down but it's hard so I really do feel for everyone here.

I note that only a few have put updates here on progress and I therefore promise to do so when my symptoms have cleared.

I agree with previous posters. Stay clear of this drug or at least go into it knowing the full facts. My specialist will get an earful when I next see them.

Good luck everyone

Juicyfruit

I had neck and shoulder pain and doctor gave me pregabalin for two weeks but on 10 th day i feel a difference in my vision and i suddenly stopped it.on 1 st week i was little ok,but now on 2 nd week after withdrawal i feel like my head is shaking and having headaches,still my vision is not ok really stressed
i just wonder i'm having another illness or is this all because of pregabalin,im really worried and just want to know how long i will feel like this ?? i don't feel good at all, i feel like i'm sick and really worried.can someone help me ??
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Old 03-22-2016, 05:56 AM #248
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call the dr. sounds like a reaction
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Old 06-02-2016, 08:57 AM #249
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Hi Everyone

After six years on Lyrica I decided the blurry vision and other side effects were not worth the benefits of less nerve pain.

I was taking 300mg twice a day and so I started the process of weaning off the drug with the help of my GP.

I got down to 100mg twice a day and started feeling so unwell, I would break out in sweat for no reason and I couldn't think properly. I tried to push on but after two months I had to go back up to 150mg twice a day and i feel human again.

I plan on waiting six months and then trying again
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Old 11-26-2017, 02:58 AM #250
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Quote:
Originally Posted by zecrich View Post
Hi Everyone

After six years on Lyrica I decided the blurry vision and other side effects were not worth the benefits of less nerve pain.

I was taking 300mg twice a day and so I started the process of weaning off the drug with the help of my GP.

I got down to 100mg twice a day and started feeling so unwell, I would break out in sweat for no reason and I couldn't think properly. I tried to push on but after two months I had to go back up to 150mg twice a day and i feel human again.

I plan on waiting six months and then trying again
Hang in there..
Lyrica had me messed up too

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