Lizard, I totally agree with you there!

Hi Lucymay
I beg to differ also! Looks like you have had to deal with one of those cluless Doctors or Neurologists. A Cyst that size surely would be causing the headaches, pressure and other symptoms...I know, I've been there! Get another opinion, or more, or try to see a top Neurosurgeon, not a Neurologist. Just my opinion, but I'm sure the Cyst is the cause of your headaches...
~Jaime~

Hey Jaime, Saw your post today, this is my first day here. I also had a arachnoid cyst, mine as a child. I actually had my cyst removed it was on my auditory canal and 7th and 8th cranial nerves. Mine was removed at childrens hospital philadelphia in the early 80s. Then I had several reconstructive surgery procedures due to nerve damage. i couldn't smile or close my eye, also limited hearing in left ear. Figures I would get something so rare. But we all have our stories and problems. I figure this is what God gave me and maybe it will be useful to share my story with others. Wishing you all the best

Hi AMYand !!!!


Please feel free to roam around the boards and jump in ANYWHERE.... The water's great and the people are very caring and supportive!!!

If you would like... please introduce yourself over on the New Members Forum : http://neurotalk.psychcentral.com/forum88.html

That way more people can meet you and welcome you to our little corner of the world!!

Hope to see you around the board!!

Abbie

Hi Amy,
Sorry to hear you had quite a bit of nerve damage from the surgery. I had some nerve damage to my occipital nerves from my surgery, but not quite as bad. Do you get pain still from the damaged nerves? I hope things aren't too bad now.

~Jaime~

Afternoon folks,

I have been symptom free for almost 21 years. In December '06 I started to develope balance problems. Seen my DR who said I had an ear infection. This did not improve and I was referred to an ENT specialist who was puzzled. I then was sent for an MRI scan which showed I have a large left front arachnoid cyst. At the time they did not want to do anything and wanted to see if the pressure settled. Unfortunately I then developed severe vomiting and headaches. The national health service seemed to take forever and almost a year and a half has passed so I decided to go private. I found a neurosurgeon and I visited him 2 weeks ago. He done another scan. He believes although my cyst is at the front the pressure being put on my brain is causing symptoms like vomiting, headaches and balance problems. Everytime I have flown my balance symptoms have deteoriated and he said this is due to the cabin pressure adding to the existing pressure from the cyst. I am now awaiting my letter and I am going to have a shunt placed inside the cyst and a tube running under the skin from my brain to my stomach to constantly drain the fluid. Hopefully this should relieve the pressure and improve or eradicated my symptoms given some time. Reading the postings these cysts seem to vary in symptoms from person to person depending on the individual, size and location of the cyst. I am just praying my shunt is a success and I can gain some normality back to my life. I wish you all luck in your own cases as I understand how frustrating this can be. I agree, any of you who seem to be having no luck with your GP keep pushing and pushing until you find someone who is willing to take the time to thoroughly look at your case and try and help. PLease respond to this post to give me your input and let me know what you think. All the best.

Hi

I also have been reading the threads/posts on here. My son was diagnosed 4 years ago with 2 archnoid cysts at first we were told he one. Let me state he passed out in school one day this how this all came to be discovered. He was unconcious for well over 20 minutes the medic wasn't sure they'd bring him back...thank god they were able to. I fought with the ER to do a scan (they didn't want to do one) due to a family history of aneurysms and tumors I demanded it as did our family doctor who met us at the ER.
We took him to a few doctors (neurologists included) and they said it's nothing to worry about. I never felt comfortable but after seeing many doctors and getting the same answer I figured they knew what they were talking about. He then passed out a year later for 8 minutes still same answer.
He's now over 18 and I worry about this a lot. I'm wondering if I should take him to an adult neurolgist now that he's over 18.
He has scans every year to monitor the growth and so far they have not grown.
He's had cardic work ups as well which were all fine.
Just wanted to share and get some advice.
Thanks everyone.

Hello,
I was so glad to find this thread, I am new here today.
I have a 5.6cm poster fossa arachnoid cyst with boney remodeling, which just means it is to hard to reach.
I had an unrealated surgey and when I awoke my head was never the same.
that was in april 2006.
My ongoing symptoms are head pressure, head pain expecially in the back it feels like I was hit with a baseball bat. 3 seizures, over 50 episodes of left side pyralisis, tremors and muscle spasms even when I sleep, falling and all the rest that goes along with it. Nausea, vomiting, dizzines and hearing loss episodes.
I am just sooo happy to find friendly people.
Thank you.
Maile

Hello Jaime, I also have a posterior fossa arachnoid cyst about the size of a gulf ball. I have been told for years that it was not causing any problems. But I am having many neurological symptoms, though some may not be caused by the cyst, I can't help but feel that some are. I believe that my facial palsy, dizziness, tremors, concentration problems, headaches, seizures, etc must have something to do with this? I have many other neuro disorders so I am not sure and either are the doctors--what is causing them. How large is your AC? Was yours growing, and thats why they did surgery? If you had to do it again would you have the surgery. Also, did it take alot of neurologist to look at you before one agreed to do the surgery. I look forward to hearing from you--thanks from hutch

I was wondering how your brother is doing? I too have an arachnoid cyst. I have many type of neuro symptoms but am not sure which is linked to my arachnoid? I to am told that my arachnoid is NOT the cause of my problems. This is very hard for me to believe because I have: Facial Palsy-headaches--partial seizures--tremors--depression--cervical dystonia--vocal cord dysphonia, mieniers disease, and possible Meiges syndrome. It seems to me this is an awful lot of neuro issues, yet my cyst is not responsible. I hope I hear from you so we can discuss this further. from hutch