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Old 08-13-2016, 07:58 PM #1
chris1948 chris1948 is offline
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chris1948 chris1948 is offline
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Default Balance loss, no vertigo, no dizziness/Uncontrollable shaking of legs

Back on 7 Dec, 2013 I woke up to find that I could not maintain my balance. I was not dizzy and had no vertigo. The day before I was perfectly fine. I've had two VNG (Videonystagmography) tests. The results of the first one showed

Code:
Test results indicate abnormal tracking and fixation suppression which
suggests a central lesion. Fixation suppression and tracking mechanisms share
central pathways. Additionally significant down beating vertical nystagmus
was noted in the head hanging position which is also indicative of a central
lesion
My 2nd VNG test which I just had last month showed

Code:
1. VNG Results-
-Failure of fixation suppression indicates a central finding, often involving
the cerebellar flocculus or the surrounding structures
-Essentially normal oculomotor findings.
2. vHIT- testing indicated essentially normal results. The reduced gain in the
LARP condition is likely a result of the limited range of motion and should be
interpreted carefully.
The Dizziness Handicap Inventory (DHI) was administered and indicated a severe
(54+) handicap due to Veteran's
dizziness.
Functional: 22 (out of 36)
Emotional: 14 (out of 36)
Physical: 20 (out of 28)
Total: 56 (out of 100)
My main problem with this is that I'll be just standing talking to my wife when suddenly I'll take three or four steps off to the right, left or the rear. I'm always able to catch myself however last year I fell about 3 times while working outside in my greenhouses. Another problem I have and I don't know if it's related or not but if I stare straight ahead, keeping my head straight and move my eyes to the right they want to bounce back to center. At the same time I get an odd feeling in my eyes and at times I can even 'hear' a kind of rasping noise in my head. I do have tinnitus however this 'rasping' sound I hear seems to be coming from somewhere in the center of my forehead. I've had several CT Scans (I can't have an MRI due to two implanted neural stimulators in my back). According to my VA Neurologist they don't show anything such as a stroke happening. I finally brought up to him last month maybe I should have an EEG since they've never done one since this happened. He was of course negative about this saying it probably won't show anything but we'll do one anyway. He's prescribed multiple medications for this, none of which worked. I've also been through three months of therapy on a system called a 'Balance Manager' which did nothing at all to help me.

Another issue I have is where my legs will shake uncontrollably when I'm sitting in my recliner with the footrest up or especially at night when in bed trying to go to sleep. This has been going on for a couple of months and seems to be getting worse as time goes on. This starts happening either when I 1)flex the toes of either foot downwards a little bit or 2)bend either leg outwards from my groin. The flexing of the toes seems to make it worse. For instance last night it went on for a good 10+ minutes it seemed like with my left leg. I don't have an appointment with my VA Neurologist until Sept 8th to discuss the EEG results but I have contacted him and sent him a video I made of this happening. His only remarks were

Code:
Thank you for the video. I cannot identify the nature of the shaking which moves from one leg to the other. It is no consistent with restless leg syndrome or seizure activity as I kn andow them
I've had several CT Scans of my head and cervical spine to try and pinpoint the problem with my balance loss. The results of those are

Code:
11 May, 2015
Impression:
1. Multilevel cervical spondylosis. There may be a left foraminal
disc protrusion at C4/C5. Consider MRI or CT myelography for
further evaluation, as indicated.
2. Nonvisualization of the left lobe of the thyroid, possibly
absent. Tiny hypodensities in the right lobe could be further
evaluated by ultrasound. 
Primary Diagnostic Code: SIGNIFICANT ABNORMALITY, ATTN NEEDED
Results of a CT of my head in April of this year

Code:
FINDINGS: The ventricles are normal in size, shape and position
without midline shift or mass effect. There is a small focus of
lucency in the periventricular white matter on the left adjacent
to the frontal horn of the lateral ventricle consistent with
chronic ischemic change. There are no areas of acute hemorrhage
and no mass lesions are identified. The visualized paranasal
sinuses are clear with exception of a small mucous retention cyst
in the sphenoid sinus on the right. The mild deformity of the
skull table with relative flattening in the right parietal region
is stable and probably developmental.
The results of my 10 weeks of training on the 'Balance Manager' system showed little to no improvement in my balance

Code:
PT has been seen for total of 11 visits for vestibular training and CDP testing on Neurocom. (age 65, ht 5'11".)
Testing procedures reviewed pt and pt agreeable to testing. HArness
applied and pt secured in machine. UNderwent 4 tests with the following
results--
1) Limits of Stability: tests ability of pt to move safely/quickly/smoothly
through full limits of stability. abnormal findings--
(a) pt continues to demonstrates inability to reach set targets of this
test in single, linear movements as well as reduced endpoint
excursions (EPE) improvement-- pt's reaction time and movement velocity now within the norm for age
2) Adaptation test: objectively quantifies pt's ability to adapt or develop
a balance response to varying support surfaces.
abnormal findings--
(a) still has difficulty generating required force initially to overcome
the induced postural instability posteriorly thus subsequently lost his balance with first trial.
improvement-- in subsequent trials, pt was better able to consistently
demosntrate ability to adapt to surface change. SUbsequent trials show slight improvement from initial testing results of 6-30-14.
3) Rhythmic weight shift: quantifies pt's ability to vary movement speeds
while maintaining coordinated motor control.
abnormal findings--
(a) pt demonstrated lack of coordination and control of movement(DCL)
toward FORWARD position; but directional control(DCL) was within normal
limits for LEFT/RIGHT.
improvement-- demosntrated improvement in average speed of movement in BOTH directions to be within normal limits for age/ht.
4) Sensory organization test (SOT): isolates/quantifies abnormalities in
pt's ability to make effective use of (or suppress inapproriate) input from
three sensory systems that contribute to postural control as well as brain's central integration of these inputs-
somatosensory/proprioceptive(SOM), visual(VIS), vestibular(VEST).
abnormal findings--
(a) SOM score (condition 1&2) reflects NO CHANGE pt's inability
to use cues from the somatosensory system to maintain balance- this is likley
related to foot surgery pt underwent July 2013 from which he has continued to have numbness in (L)foot.
(b) VEST score(condition 1&5) reflects NO CHANGE pt's inability to use
cues from vestibular system to maintain balance. Pt again lost balance with every trial of condition #5.
(c) pts composite score of all 6 conditions is 13 points below normative
performance range (68). This is 4 points higher than previous test.
(d) pt lost balance on all but one trial of conditions 2, 5, and 6 which
are conditions dependent on somatosensory and vestibular systems.
THese results are UNCHANGED from previous test.
(e) COG position demostrates pt's tendency toward standing slightly
posterior and to right side to center of base of support(again likley
explained by issues with surgery/resultant numbness left foot) -
UNCHANGED from previous test.
(f) strategy analysis demonstrates ankle stretegy ONLY, hip strategy
ONLY used when starting to step to avoid fall - UNCHANGED from
previous test.
PROGRESS TOWARD GOALS OF PHYSICAL THERAPY--
(1) will demonstrate improved ability by 10-15% improvement in ability to reach targets in the LEFT/FRONT quadrant - not met
(2) independent with home program that encourages wieght shift/limits of
stability into LEFT/FRONT quadrant - MET
(3)demosntrate working knowledge of safety issues with gait on outside uneven surfaces/terrain - MET
Patient Plan/Comments: Essentially results of pre and post-CDP reveal NO CHANGE in pt's ability to maintain balance after 10 weeks of vestibular
retraining.
Will discontinue PT at this time however pt encouraged to continue use of cane when walking in community and to continue home program.
I also had a visit with the ENT Doctor last year in Aug. His comments were

Code:
ASSESSMENT: Dysequilibrium problem is likely of central origin. I
strongly doubt an inner ear issue, with normal hearing and the
videonystagmography (VNG) pointing towards a central lesion. I really
have no further suggestions at the present time.
Some questions I've asked my VA Neurologist about stroke being the possible cause of my balance loss have met with unhelpful replies

Code:
Be advised that damage to the organ of balance is the most common cause of imbalance. stroke MAY have such a symptom but is the rare, unusual, atypical cause for imbalance. but, as they say , it is possible it could relate to a stroke so small that it cannot be seen on CT scanning but this is unusual, and a stroke so small you cannot see it should have correspondingly minimal symptoms, which is not your case.
From what I can understand none of the tests I've had or exams I've had show any vestibullar issues.

I'm constantly trying to find answers to this and wondering if anyone else has experienced something like this?

Chris

Last edited by chris1948; 08-14-2016 at 09:52 AM. Reason: Add more information
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Old 08-14-2016, 12:37 AM #2
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It might help if you include as much information as possible in a single thread like this one, for best replies. Just easier early on when all info is in one place..

You can copy/paste your info from your posts on New Members if you would like to.
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chris1948 (08-14-2016)
Old 08-14-2016, 08:44 AM #3
chris1948 chris1948 is offline
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Thanks, I'll do that. Appreciate the help
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Old 08-14-2016, 08:30 PM #4
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Quote:
Originally Posted by chris1948 View Post

From what I can understand none of the tests I've had or exams I've had show any vestibullar issues.

I'm constantly trying to find answers to this and wondering if anyone else has experienced something like this?

Chris
I can tell you from personal experience that VNGs are not always accurate. I have facial neuropathy in my trigeminal nerve chain that stretches from my throat to eye....and also in my ear. At the peak of my symptoms, I lost my hearing, experienced hyperacusis, and had loud ringing in my ear for over a year. My appointment with the ENT happened almost a year after my symptoms started. My VNG didn't show anything and I was told that my disequilibrium was of a central origin. This is a bunch of nonsense. I'm not even sure why I wasted hundreds of dollars on this appointment.
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Old 08-14-2016, 08:49 PM #5
chris1948 chris1948 is offline
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I really don't have much faith in my VA Neurologist even after seeing him for over 2 1/2yrs. I recently asked my Primary Care doctor at the VA what I need to do to get a 2nd opinion, she has no idea. Maybe when I have my EEG on the 23rd something will show up since I have so many other seemingly neurological issues.
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