Neuromuscular In memory of Rose Marie.


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Old 07-26-2016, 01:08 PM #32
Maria williams Maria williams is offline
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Join Date: Mar 2013
Location: MI
Posts: 10
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Maria williams Maria williams is offline
Junior Member
 
Join Date: Mar 2013
Location: MI
Posts: 10
10 yr Member
Default Mmn

Quote:
Originally Posted by twitchyfirefly View Post
I would just like to point out that Hizentra is also immunoglobulin. It's just a subcutaneous version rather than IV. Here is information from the manufacturer:



Maria, do you find that it actually reverses some of the weakness or other MMN symptoms? I have never run across this blood product before, so I'm curious, as it's getting harder and harder to start an IV and I'm reluctant to get a port.

If you are new to MMN, be sure to do some Google searches for other online resources. This forum is very good but there isn't a lot of MMN activity.
July 26, 2016.
Yes, I infuse now 9x per week, 4 grams (20ml) per infusion. It really has slowed the weakness. I'm one of 350 people worldwide who uses Hizentra for MMN, according to my Neurologist at U of M, Michigan.
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