:I am here after five years almost , It is long time , My son is little better , Now eating by mouth but liquid is still difficult so tube is also under use . More healthy and more response . Smile , Laughs and becomes angry some time . still no motor function ,command . Now we know that most PVS and MCS are wise and aware but can not tell . Jawad is unfolding the mystery of PVS .

Many year more passed , My partner in this struggle , the mother of Jawad Pasha passed away two months ago , Jawad is little better but still no way to find some way for his motor function . It is very sad to see a man wise and conscious without any communication .
He still smiles

Hello Anwer,

It has been a long time.

I'm very sorry to read this news. My condolences go out to you and to your son at this sad and difficult time.

Perhaps I told you earlier about a very big very big seizure/Fits continued for hours many years ago , which changed actually equaled the temperature of left and right sides of his body , His left side was stiff I mean hard and right was almost like paralyzed ,
Three days ago same big seizure attack occurred , I was expecting some seizure attack since few days because he was more responsive from last many days and it often happened that after showing some improvement a small seizure attack happens and down him .
But this attack was very big and continued for hours even after medication at hospital and a sleep in result of medicine it continued again after hours of sleep , Slow fits type movement continued more than 24 hours . The result which I am feeling that stiffness/hardness of left side has been finished and the both sides are becoming equal . More visibility will take weeks because like last time , these big fits destroyed his all muscle system and recovery will take may days .
It is for record .
Thank you for attention . Looking for some advice .

I so sorry about your son. Best wishes to you both.

Dear Anwer Pasha,

You show great Love, devotion, courage and strength.

I am sorry for the loss of your wife.

I am also sorry your son has had such severe challenges.

Yet, his story is amazing. Your Love for him is amazing!

If only the world had loved ones so willing to advocate and to fight along with those seriously affected by any of life's many challenges.

Thank you for sharing your family's story with us.
Thank you for being You, quite an admirable role model for us all.

May you and your son feel Love surrounding and supporting you at all times.



With Love and Admiration,
DejaVu