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Old 12-18-2009, 07:47 PM #11
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I'm so glad that you could post today. I'm also glad that you can
feel some relief in this. Its really necessary that they do what they are.

I believe you may have to start thinking about not only her best interest, but also yours. Its really possible that if you let the state take over they could
figure it out.

I hope things start to look up.

I believe the agencies I could find are going to be more for school issues.
And I'm afraid you need more for a mental illness. I think nami would
be a good start..


I really believe NAMI is going to be the best start for you.

Donna
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Old 12-18-2009, 11:08 PM #12
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HI,
Wow. I'm glad that you both are safe now.
Mari
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Old 12-19-2009, 03:10 PM #13
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Quote:
Originally Posted by Mari View Post
HI,
Wow. I'm glad that you both are safe now.
Mari
I found the 211 site for Tenneesee here on the website. I personally
believe you might go look through this too.

But here are a couple of places to call and talk too.

LifeLine, Inc-Community Parent Resource Center
Virginia Piper
1609 McCallie Ave
Chattanooga, TN 37404
(423) 991-4525; (423) 645-0504 (fax)
Email: virginia_piper@lifelinefamilies.org
Web: http://lifelinefamilies.org
Mentoring to families who have children ages birth-26 with disabilities. Support through the special ed process, teaching rights under IDEA, attend IEP meetings. Services are free.

Office of Children and Adolescent Services
Department of Mental Health and Developmental Disabilities
Cordell Hull Building, 3rd Floor
425 5th Avenue North
Nashville, TN 37247
(615) 532-6767; (615) 532-6612 (TTY)
Web: www.state.tn.us/mental

Parents Encouraging Parents (PEP) Program
Tennessee Department of Health
Cordell Hull Building, 5th Floor
426 5th Avenue North
Nashville, TN 37247-4750
(615) 741-0353


Try these.

Donna
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Old 01-01-2010, 01:24 AM #14
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Exclamation

Well she was in the hospital for ten days. Released on a couple new meds. Received a call the next day from them telling me to take her off because her level was to high. Her doctor called the day after that and said put her back on them and she couldnt believe they told me to stop a med cold turkey on a child that has siezures allready. She is back on the meds, but is driving me NUTSSS! She is going nonstop. She will not stop talking, sleeps about two hours a night and keeps talking about someone shutting and opening her door and the dolls eyes following her and shadows all over her room. I finally went to a psyc doc before she got out but do not go for a meds apointment till feb. I so need something for my nerves. never took anything like that before but if they dont hurry and get me something Im gonna be the one going into a psyc hospital with a nervous breakdown. I dont think I can deal much longer. HHHEEEEELLLPPPPP!!!!!
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Old 01-01-2010, 02:31 AM #15
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Hi,

While you are waiting for a psychiatrist appt (pdoc) , you can see your family doc to talk about whether some some benzos might be appropriate for calming your nerves.
The therapist (tdoc) can help you work out the decisions you are facing. Also you can feel stronger and less alone.

I don't know why they can medicate her so that at the very least she can can full nights of sleep. This sounds like very dangerous territory to me.
Talk to her doctor. If she is not sleeping more than 2 hours a night, she might be back in the hospital soon.

M.
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Old 01-02-2010, 11:25 AM #16
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Quote:
Originally Posted by one-more-day View Post
Well she was in the hospital for ten days. Released on a couple new meds. Received a call the next day from them telling me to take her off because her level was to high. Her doctor called the day after that and said put her back on them and she couldnt believe they told me to stop a med cold turkey on a child that has siezures allready. She is back on the meds, but is driving me NUTSSS! She is going nonstop. She will not stop talking, sleeps about two hours a night and keeps talking about someone shutting and opening her door and the dolls eyes following her and shadows all over her room. I finally went to a psyc doc before she got out but do not go for a meds apointment till feb. I so need something for my nerves. never took anything like that before but if they dont hurry and get me something Im gonna be the one going into a psyc hospital with a nervous breakdown. I dont think I can deal much longer. HHHEEEEELLLPPPPP!!!!!
Sorry for the quote.

But first I would talk to the primary doctor about whether these things happening that she is seeing are seizures. Because if they are then she may also need a medicine adjustment for them. Because the shutting and opening of doors could be a seizure.


I would definately want more control on the seizures too.
Donna
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Old 01-02-2010, 01:53 PM #17
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One-more-day, my heart goes out to you. I can't imagine how you do what you do.
Please start looking out for yourself more. It is amazing how you have managed to hold it together for ten years!
__________________
My blog:

I started to write so I could keep a track on my thoughts. This particular Lupus flare has turned my life on its head. Although I am pretty content with this enforced solitude, I have a constant dialogue going on within myself. So I thought I'd write it all down.


.


I hope you enjoy reading it when you can.
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Old 01-15-2010, 11:36 PM #18
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Red face caution re: seizures

Hi...

just read through this... a quick note...

all these things can have psychiatric side-effects:
- seizures
- successful seizure control
- seizure meds (whether effective or not)

Children are neurologically more sensitive as their brain is still evolving... and some children more than others just due to individual differences, and so greater attention is needed with meds.

In general, many people with seizure disorders end up mis-dx'd as psychiatric cases for years, which just makes them worse as many psychiatric meds, not just antipsychotics, are contraindicated.

So, i really feel the seizure issue needs to be given some first line attention until you have good understanding of what experiences of hers are seizure-related, and subsequently, achieve good seizure control - with medication that at very least does not worsen any pre-existing (before ANY meds were involved) psychiatric symptoms.

the behavioral stuff and premeditative thoughts (killing animals, stating intent to kill you etc) make me thing there is likely some sort of psychiatric pathology (can coexist with seizures). those aspects are not inherently bipolar at all however. she could have another type of disorder.

unfortunately the psychiatric labels are easy to acquire and hard to ditch... sigh. and yes, any or all could easily be garbage diagnoses i would say... i she perhaps could benefit at some point from a long term stay as inpatient - for longitudinal observation and complete and careful RE-evaluation.

i also agree with Mari on getting therapy for yourself and if your 18 year old is amenable, legally adult or not, that is still very young... it might be good to even do some therapy together as well as apart. (just a thought).

my best wishes to you and all your family.

~ waves ~

Last edited by waves; 01-15-2010 at 11:59 PM. Reason: redundancy with something Donna said i hadn't seen
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Old 01-16-2010, 08:14 PM #19
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Hoping you can return to update us soon.

Hoping things are goingwell.

Donna
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