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Old 11-26-2016, 11:54 AM #11
Summerfun Summerfun is offline
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Join Date: Dec 2014
Location: New Hampshire
Posts: 64
8 yr Member
Summerfun Summerfun is offline
Junior Member
 
Join Date: Dec 2014
Location: New Hampshire
Posts: 64
8 yr Member
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Quote:
Originally Posted by Healthgirl View Post
Do you have this kind of neuropathy in your family?
I do not, but we have some autoimmunity. They suspect something triggered me and my daughters at the same time, but don't know what. I'll report back what my genetic results as well.
How did yours come on? I had autonomic symptoms for a year and then it blew up in to full body painful neuropathy. The doctors have been useless besides one who helps me through with pain meds.
Hi, Mine came on over a period of 5 months. Started in fingers of left hand, and toes, then went away for about 3 months. Then came back with a vengeance in my whole body and has been that way for 2 years now. I think my father had neuropathy. He has passed on now at age 93 but he suffered with a relentless itch for a long time and numbness in his legs. He was never diagnosed. It was considered "old age". There is some autoimmunity in the family. My sister, at age 65, was diagnosed with psoriasis. My aunt was diagnosed with hypothyroidism at age 73, so both very late onset autoimmunity. I have a positive ANA but no other supporting blood work for a specific disease. I have had Raynaud's since early adulthood. If the SCN9a is positive, I guess my neurologist will stop looking for other causes and I will have to remain on gabapentin forever. I am contemplating trying the Paleo diet even though I know it will be very hard for me. I feel like I need to get in front of the train! Will let you know the SCN9a result when I get it.
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